Welcome to the discussion forums, I'm sure you'll find them a valuable source of information and support.
Whilst you're waiting for others to come along, I just want to make you aware of our Helpline who are great to talk to if you feel you need to discuss things. They're on 0808 800 6000 and are open weekdays 9-5 and Saturday 10-2.
Also, I thought you might find it helpful to order a copy of our resources pack which contains lots of information to help you understand your diagnosis, test results, etc. Here's the link to the page where it can be ordered:
Hope you find this helpful.