69161members
363172posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Tamoxifen and eye-sight

22 REPLIES 22
Highlighted
Member

Re: Tamoxifen and eye-sight

I went to hospital to discuss eye-sight and Tamoxifen with Breast Care Consultant. She said there is no proof that Tamoxifen could cause cataracts so to continue on Tamoxifen!  After being told by Optician and Pharmacist that yes, Tamoxifen can cause eysight problems and cataracts. I'm now totally confused so guess will continue Tamox. I only have another 16 months to go. Also on some of the leaflets in the Tamox packet mentions eye-sight and cataracts!  All I know is that my eye-sight was fine before I started Tamox(just low prescription reading glasses).

 

xx

Highlighted
Member

Re: Tamoxifen and eye-sight

My eye sight isn't great normally but Im the first few weeks of taking Tamoxifen they were really blurry and I felt quite light headed, it settled down after a few weeks but I get it on and off still, I think it's down to certain brands as I seem to get a different one each month! Xx Jo 

Highlighted
Member

Re: Tamoxifen and eye-sight

I noticed a lot of headlight glare when night driving. So now I'm wondering whether it's the start of something sinister. Another reason to hate this drug... xx
Highlighted
Member

Re: Tamoxifen and eye-sight

Only been taking tamoxifen a few weeks but eyes have been watery. Woke up this morning with swollen eye and bloodshot. Could this be the tablets. Due to start rads on Thursday 😊
Highlighted
Member

Re: Tamoxifen and eye-sight

Hopefully not too long to wait!   I phoned my Breast Care nurse to talk about Tamox and eye-sight.in particular Cataracts. She didn't really have an answer so told me to phone Pharmacist at G.P's!  I phoned Pharmacist and he instantly said Cataracts can be side-effect of Tamox.  Then back to Breast Care nurse(she told me to phone back). I now have appointment with Consultant to discuss!  Watch this space!  x

Highlighted
Member

Re: Tamoxifen and eye-sight

Hi JJ,

I'm under the Countess of Chester hospital.

When I saw the eye consultant she said the waiting list was three months.

M x

Highlighted
Member

Re: Tamoxifen and eye-sight

Not sure I want to see actual operation!  Very good that it only takes 15 mins though. Maybe I'll just read about it.

 

Which hospital are you under?  I go to west Suffolk at Bury St.Edmunds-usually very good but don't know how long waiting list is.

 

x

Highlighted
Member

Re: Tamoxifen and eye-sight

Hi Jiggyjoo,

I didn't know anything about cataract surgery until I started Googling.  Found a couple of good, informative videos on YouTube demonstrating the surgery.  The best thing is that the surgery only takes 15 minutes.

Agree, I hope we both get a date soon.  Better eyesight would be a much appreciated Christmas present.

Best Wishes and Good Luck to you too!

M x

Highlighted
Member

Re: Tamoxifen and eye-sight

Hi Magical Moon. Sorry to hear of your bad side effects. All these drugs are toxic but I guess better than recurrence. I had no problems with my eyes before Breast Cancer so can only presume chemo,steroids and especially Tamoxifen have done this to me. Not looking forward to cataract surgery - do you know much about it?  I have the same as you with my left eye - blurry,cloudy vision and occasional double vision. Hope we don't have to wait too long for the surgery.

Good luck! x

Highlighted
Member

Re: Tamoxifen and eye-sight

I took Tamoxifen for four months then switched to Anastrozole because of severe s/e's.  Been taking Anastrozole for 18 months with awful s/e's.  December 2014 was diagnosed with early stage cataract in my left eye.  Within six months cataract rapidly developed and vision in my left eye deteriorated fast.  Now have blurred, double vision which can only be rectified by lens removal.  On hospital waiting list for cataract surgery which hopefully will be within three months because now have early stage cataract in right eye.

These drugs are toxic and whilst they may prevent a recurrence, for some unlucky ladies like me, the side effects are awful.  My joints are in a terrible state, but that's another s/e story!

M x

 

Highlighted
Member

Re: Tamoxifen and eye-sight

Morning!

I am post menopausal but can only take Tamoxifen as I have osteoporosis as it is supposed to be kinder to the bones. I started with Arimidex but after Dexa Scan it was found that I had Osteoporosis. I have been on Tamoxifen for three and a half years now and was told by my Optician that Tamox can definitely affect your eyes,hence the advice to have annual eye tests.

I had my appointment with Opthalmologist at hospital yesterday. I have cataract on my left eye which she suspects could be caused by Tamox. or steroids during chemo. Now I have to have cataract surgery - yuk! x

 

Highlighted
Member

Re: Tamoxifen and eye-sight

If you are post menopausal you can take an aromotase inhibitor, but these also have side effects, just different ones.... It's very rare for eyes to be impacted by tamoxifen, so unless like aura you already have major issues, it's worth taking it and just having regular checks. And making sure your optician knows you are on it.
Highlighted
Member

Re: Tamoxifen and eye-sight

I am concerned about my eyes and hormone therapy. Can you say what the alternative drug is?

Highlighted
Member

Re: Tamoxifen and eye-sight

Only just found this thread . When I was diagnosed told I would need to take tamoxifen but as I have problems already with my eyes my oncologist and consultant have decided that they are not going to give me tamoxifen as the risk to my sight is not worth it plus when they worked out the benefit % it was only 0.4 % they also did blood tests to check my hormone levels as they said once gone through the menopose the other drug they could supply would not have the same side effects .goid luck ladies x
Highlighted
Member

Re: Tamoxifen and eye-sight

Read about possible cataract SEs in the Tamoxifen info leaflet etc, but nobody told me to get my eyes checked annually, will make myself an appointment pronto as my eyesight is fine currently, ie don't wear specs, so suppose I should go get a "baseline" assessment for comparison with future assessments.

 

 

Highlighted
Member

Re: Tamoxifen and eye-sight

My eyesight deteriorated during chemo and I'm wearing glasses for the first time in my 48 years. It started to improve when I finished chemo in April. I'm on Tam since June, it hasn't got any worse but onc suggested eyetest to rule out anything serious. The young optician said that it could be an se of chemo and tam, but he would also expect to see deterioration at my age!!!
Highlighted
Member

Re: Tamoxifen and eye-sight

Thanks for all replies.  Another side effect from this drug!   I'm stopping it until I have been to the hospital - a rest won't hurt as I have been told it stays in your system for 3 weeks after you stop it. Will re-assess after appointment. I just wish G.P. or Breast care team had advised me to have eye checks every year!  Will let you know after appt.   xx

 

Highlighted
Member

Re: Tamoxifen and eye-sight

Hi

I was told that Tamoxifen can affect eyesight. Mine has never been brilliant, but I mentioned T to the opthalmologist during my most recent eye test and was given an extra test which apparently showed that any deterioration was not due to the meds. But I've only been taking it just short of 6 months, time will tell!

Love

Rose

Highlighted
Member

Re: Tamoxifen and eye-sight

My eyesight has deteriorated rapidly since undergoing chemo, my optician advised annual eye tests due to being in Tamoxifen x

Highlighted
Member

Re: Tamoxifen and eye-sight

 Hi Jiggyjoo

                      I have been on tamoxifen for 3 years, actually just stopped taking it as side effects so bad and very low e/r positive so onc has said benefits being outweighed by s/e, anyway my eyes are dreadful, I have to wear glasses for pretty much everything now but had perfect eyesight before treatment, I have also been advised to have eyes checked yearly 

 

L x

Highlighted
Member

Re: Tamoxifen and eye-sight

Hi J
well that's an alarming thought! Onc never mentioned have eyes tested at all. I have only been taking tamoxifen since beginning of July so think I'd be wise to go and have eyes checked soon. Hope you get your appointment soon and can have it sorted out x
Sheena x
Highlighted
Member

Re: Tamoxifen and eye-sight

Hi

I have been on tamoxifen for 18 months and noticed my eye sight had deteriorated recently. The optician said that my right eye had changed significantly in the past year. I have become more long sighted in this eye. Everything seems OK behind the eye, but the optician said we needed to monitor for cataracts.

 

I have stopped taking the tamoxifen for the past 10 days as the stiffness and pain in my feet has been making it hard to walk. I don't want to stop permanently so I am seeing my Consultant on Monday to discuss my options.

Highlighted
Member

Tamoxifen and eye-sight

Morning all.

 

I was just wondering if any-one else has had eye problems on Tamox.

 

I have been on Tamoxifen for three and a half years now and my eysight has got steadily worse. I had an eye-test yesterday and one of my eyes has deteriorated a lot. I have cloudy vision on this eye. Optician said it could be cataract but has referred me within two weeks to hospital! She said everything looked fine behind eye but of course yet again I'm panicking! Evidently this is  another side effect of Tamoxifen. She did say that Tamox users should have annual eye tests - nobody told me this!

 

Thanks. x