Jobey I'm the same...I REALLY struggle to stay awake until 10pm these days. I was hoping it's the Herceptin & will go in 6 weeks when I finally reach the end of my active treatment road. I think my other half will have a fit if it ends up being permanent. This is far too much information, but I would like to know why my lady garden grew back straight & brown (previously greying & curly obvs) & my head hair grew back grey & curly (previously brown & straight). Let me tell you a pant moustache looks highly odd ladies....perhaps I could be the one walking around on my hands!xx
It would be a modern dance Jill, not a ballet lol your waving legs will be just fine, it'll be a gritty performance....we can build in a synchro element to it with other people. Isn't it past your bedtime now then Jobey ??! Well we are used to showing our
( I couldn't find the puppy image so had to use a cat) to plenty of people already through medical avenues, what difference would live television make ?
We can win him over if we show him our puppies........ 🐶🐶😜😜 I can also make copious amounts of Gin disappear! That can be my show stopper 🍸🍸🍸🍸🍸
we have to keep a level of humour about us after all the stress we've been through!
My hair is very dry and definitely thinner around my hairline but it's quite long so easy enough to hide, I'm so tired all the time too , can barely keep my eyes open past 9 most nights 💤💤💤
bald bearded ladies lolol Well, Jill, can you juggle, ride a unicycle or swing from a high trapeze etc.? if not then I think maybe a Victorian freak show act rather than a circus act, as we d be a bit disappointing on the thrilling exciting act front. Mind, there is plenty of time to learn something in the circus skill field.....what with 10 years of treatment !!!! Hey, how's about Britains got talent? To showcase the Bald bearded look, we could choreograph a tamoxifen dance routine based on side effects.
Apologies to whoever started this important thread, please don't be offended, or rather to the recent commentators as it is an old thread.... it was the laser advert started this off.....oh and Jill And Jobey. To be serious, hair loss is a really upsetting side effect as so tied up with femininity and self esteem. I am on a break, but mine as already coming out more than I had expected after 6 weeks, and it was very unsettling ...a constant reminder of the BC to be honest. It's hard, as some people Have to adapt to major body changes on this treatment, but this is such a visual one and tied up with identity.
My post below relates to a now removed advertising pitch for laser hair removal in India. I seem unable to edit/ delete my post below, so explaining why it's there.
Ha ha, I don't think us ladies suffering with tamoxifen hair thinning need laser hair removal!!!!!
Reported 'advertising' post below.
I have also been taking tamoxifen for 3 years. It is only now, that I just changed to arimidex that hair loss is evident. As I've been taking arimidex for just 9 days, I am fairly certain that hair loss is due to tamoxifen.
i've been on Tamoxifen for 2.5 years and only just in the last few months has the hair loss kicked in. I have to use a drain cleaner ever 3-4 weeks due to the volume of loss. But considering I've already been bald for this journey, a little thining is not the end of the world. Stay away from the hair loss stop products though, many are carcinogens. Watch what hair products you use too so that you are not too hard on your hair.
Hi. I have been on Tamoxifen for 3 years and until recently have not had any side effect. About 3 months ago my hair starting falling out and it continues. Thank God I started with very, very thick hair, but I am very concerned. I see that many have posted about hair loss in the beginning with it tapering off. Has anyone had the same problem as me - hair loss after 3 years? I had a complete physical just recently and extended blood work to help find the cause, but alas nothing. Any I haven't changed any meds I am taking. Yikes!!!
I totally understand your sentiments. I have been on Tamox for 5 years since 2010 and was told by my onc recently to take it another 5 years. However, i suffer the side effects of oily scalp and hair thinning and is having 2nd thoughts taking tamox for another 5 years, although drs have informed me about increased survival rate. I have stopped it for 2 months to enjoy the feeling of being off tamox after 'suffering' for 5 yrs of side effects. But i think i will resume it and heed advice of my drs. However, i will stop it if i cannot bear the side effects anymore but hopefully we be able to take it through for another 5 years.
God bless everyone here!
how are you doing? My hair thinning has reduced quite a bit now! Not to say that it has stopped but def better! My hairdresser has cut my long hair to shoulder length with layers with a particular layer across the back of my crown. It does seem to stop my hair from parting and showing patches!
How are you getting on? Are you back on Tamoxifen? I am pleased to say that although my lovely long thick hair has been replaced with thin wispy hair, the hair loss seems to have diminished quite a bit! It still falls out but not as badly! I have also had it cut and my hairdresser has layered it...it looks so much more bouncy! She has cut a short layer across the back of my crown to stop my hair parting and showing the patchy areas!
Are you eating a good diet? I have a really good home made muesli with oats, coconut, walnuts, banana, strawberries and raspberries and I really think it helps make the side effects seem less dramatic!
I've been on Tamoxifen 5 years and just been told to stay on it another 5. Been loosing hair from eyelashes, eyebrows and head since 2010. Also my nails split from base to tip. I want to try Boots own Skin hair and nails suppliment, however, if having cancer that needs Tamoxifen you mustn't have eustrogen. This suppliment has Evening Primrose in it, does anyone know if EP has eustrogen, I am getting conflicting answers.
Hi, I started Tamoxifen at the end of August this year. I noticed some thinning of my hair at first, then it seemed to be ok.
Over the last couple of weeks, I have noticed a dramatic reduction in the amount of hair on my head and most of the strands are extremely fine! The air is getting to my scalp too easily and I can practically see through my hair to my scalp. I find I'm losing a lot of body heat quickly.
I am on Zoladex too, which I started 2 weeks after the Tamoxifen.
Can anyone tell me if I would be entitled to a voucher for a wig(NHS) with just being on hormone therapy?
I have always dreaded the thought of losing my hair and my daughter is worried about it too!
I've been on Tamixifen for about 3 weeks and have noticed my eyelashes are thinning. Has anyone else had this problem? My hair doesn't seem to be thinning. Yet.
Only been on Tamozifen for a month and loosing lots of hair. I am a hairdresser by trade and know its not a normal amount. I am starting my Rads after Xmas and that can cause hair thinning too 😞 I am going to start using Nioxin shampoo and conditioner as it is especially for hair loss so fingers crossed!
BRAC 1 Triple Negative Diag. 2006 Left Breast Lumpectomy/Rads- Stage 1, 1 mm, No Nodes Involved
BRAC 1 ER+PR+ HER2- Diag. 2012 Right Breast Lumpectomy/Rads-Stage 1, 9 mm No Nodes involved
Hysterectomy--done 25 years ago---age 63 now
I had been on Tamoxifen since Nov. 2012, but was changed to Femara on Oct. 22, 2015. I was having severe anxiety and nerve issues & some hair loss with the Tamoxifen. With Femara hair began to fall out within a couple days and my long, very thick hair is now a wispy mess of fly-away hair with thin strands that are invisible when held. At least 50 hairs (I counted) come out each time I brush; what's left gets oily in a day or two. I am stopping the Femara today until I see my oncologist on Jan. 5th. In addition, I have the shakes about 5-8 times a day, cry many, many times a day, am jittery, can't think clearly or logically, have joint and bone pain plus sharp, shooting pains, and the like. I am torn about whether to go back on Tamoxifen since I had depression and nerve issues, plus some hair loss with it too. Any advice would be welcome!
How is your hair? I am now back on Tamoxifen and my hair is still falling out! What is so annoying......it is growing elsewhere! I am wondering if the Biotin is promoting that now! Grr!
Maybe we need lots of sunshine!
i have just read your post. I had a mastectomy and reconstruction with implant last October and was put on to Tamoxifen straight away. I had night sweats at the beginning and coped fairly well ..... I think it can play havoc with your emotions at times but to me, that is nothing compared with the thought of losing all my hair. I was fine until about 8 weeks ago when my hair started falling out on a daily basis. My oncologist suggested I try Arimidex but unfortunately, I still have the hair loss and am now suffering from joint pain. So....I have been in touch with my cancer surgeon and he thinks that I am better off with Tamoxifen! Hopefully I can change it next week. I guess it is finding a drug that suits you best!
I was on Tamoxifen since last November. I had a few weeks of night time sweats and a vaginal discharge ...it eased off and I was fine until about 8 weeks ago when I noticed my hair was thinning dramatically! I had long hair and fortunately it was very thick but I would say it is now half the thickness! Oh...and my hair has gone greasy not dry!!
Just over three weeks ago my oncologist changed the prescription to Arimidex (anastrozole) but my hair loss has continued! However, I have experienced joint pain so much so that I could hardly place weight on my ankle. I spoke with breast cancer surgeon today and we have agreed that I should to back onto Tamoxifen. However.....I suspect the hair loss is going to continue because these inhibitors act similarly. This is such a challenging journey!