That's very interesting Kim.
I ended up ringing the on duty GP yesterday late afternoon, she called me in to do a full check over ( what a service I had yesterday, awesome GP!) Everything was OK, she did all sorts of things like tapping here and there on my face to check reflexes, asked loads of questions, heart, lungs etc and seeing if muscle twitches were created by a tight band round my arm ?!?! Anyway, she also took bloods herself there and then to check for potassium but mostly calcium changes ...she mentioned checking if they were high. I had to drop them in to the local hospital and the results were back, she called me by 9 pm!!! Flippin heck, the NHS at its best is damned good.
All normal, no changes of concern. She said to me that although she had never heard of the symptoms I was referring to, and they aren't documented, she believed me that there appears to be anecdotal evidence out there. She agreed that if it had definitely started after taking tamox. then I was aware enough to know of changes occurring and it was happening ( so at lest she didn't say it wasn't the tamoxifen like your onc!). I asked if it could just be tiredness and anxiety, she said it could play a part but could also just be 'one of those odd temporary side effects' that some people get. I feel reassured that nothing concerning is going on....and I'll stick with it and hope for it to resolve. So, maybe that is why your onc wasn't bothered.
I just find it odd that people are clearly having and mentioning this twitching thing and yet it isn't on the side effects list.
anyhowwww....take care and hope your hot flushes don't get too bothersome...or even better ....get better !! :0)
