Hello everyone,im starting tax and heceptin in 2weeks time,i am dreading it...have had x3 fec and cant stand the thought of it being any worse..I can cope with pain better than sickness so i guess im hoping tax dont make me feel as ill as fec does,hate that we dont know untill we start and that we are all different in side affects..
Hi ladies, just popped over from december angels to share my experience on tax. I had 4 treatments after 2 fec and had the following se's
joint and muscle pain in lower back,legs and sternum - i had lots of hot baths took paracetamol and used hot water bottles to ease this.
Constipation followed by tax trots (lol)- get lactulose from gp for constipation - it works
slimy mouth with no taste- i was told by chemo nurse to rinse 4 times a day with dilution of bicarbonate of soda and i also used mouthwash regularly.
I had also heard to use dark nail polish but chemo nurses to me not to as that could mask any infections growing under nail so i didnt bother and just moisturised. My last treatment finished on 21st march and I have not lost any nails although they are yellow looking.
On a positive note there is no nausea or sickness.
Not everyone suffers from these se's and I have read comments that some ladies got through tax better than fec. It is perfectly do-able just take plenty of rest and accept help when offered.
Take care ladies and wishing you all a speedy recovery and hope ses are minimal.
Cheers Donna - hopefully we will get good tips - read good idea to keep feet and hands well moisterised. This gets good reviews cream called 'udderly smooth' by a site called 'not just for cows.com' (really!!) or can get
from amazon etc, or some cycling shops sell it. It has a really high urea content which is what you need. Otherwise e45/aveeno are good, though not as much urea in ithem.Moisturising regularly with any cream you can get your hands on will help. Soak your feet regularly to keep the skin soft.
Also - advice from someone who went to second drug - was to take both ondasetron and domperidone 30 minutes before eating - this seemed to help. (not sure why I wasn't told this from the oputset and there was nothing on the patient info leaflet
I have had my 3rd FEC and like you will be chaning to Tax and herceptin on the 21st May.......feeling anxious. Lets hope the jpurney isn't too tough for us xx I will be slightly ahead of you so will post.......