I was thinking the same too. I believe Blondie is being treated at the same hospital as myself. I had mentioned to the counsellor I see at the hospital how she is such an inspiration. The counsellor did say she thinks, she knows who I am talking about. Obviously she didn't disclose any information . I just hope Blondie does post soon if she can.
Having mentioned being on herceptin for a long time. There is apparently someone at my hospital who was very ill with liver Mets and has been on herceptin for 12 years now.
I too have the same as you but my first cancer was sole invasive duct stage 3 Tripple Neg. I took 8 rounds of EC &T, Mast and rads. Three months later went in to see onc who before she discharged me thought I should have a follow up scan because when I was first diagnosed, I had numerous scans including a CT and it should in my onc's words "small blemish on spleen and nothing to worry about". Unfortunately the scan showed uo clear spleen but secondary to lungs and liver. I have an appt with her today to see what can be done to treat as I know cure is out of the question. How is your treatment going? Good I pray.
Hi I was diagnosed with BC in 2001, had a Mastectomy followed by Chemo and Radiotherapy. 5years on Tamoxifen and 2years on femara. Surgeon discharged me in 2011. This summer a hard lump appeared where sternum and ribs meet, but I honestly thought I had strained something doing excercise. My surgeon was on holiday in Sept so I saw another breast Surgeon who told me it was Chest Wall Lymphedema, after waiting SIX weeks to see Lymphedema Nurse she told me quite catergorically that is was NOT Lymphedema.
Made an immediate appt with my original surgeon wh thinks it is a recurrence. Had a CT scan same day and am going for a Bone Scan on wednesday. I am so frightened by this and very concerned by the delay.
Please use this link http://forum.breastcancercare.org.uk/t5/Appointments-and-waiting-for/bd-p/4428 you can find your way around the other areas of the website using the coloured boxes on the home page or at the bottom of each page.
I'm so sorry you find yourself in the waiting room again. I'm pleased you have already found some support on this site. As well as the support you will get from fellow members you could also call our helpline for information and support. They are open from 9-5 on weekdays and 10-2 on Saturdays. The number is 0808 800 6000.
Very best wishes
PS You might find more people will see your post if you also post in the section "Appointments and Waiting for test results"
Hi I was diagnosed with BC in Feb 2001 and had Mastectomy , Chemo and Radiotherapy followed by 5 years on Tamoxifen and 2 years on Femara. My consultant discharged me in 2011. This summmer I noticed a swelling between sternum and rib but actually thought it was somemthing I had pulled excercising. I went to see a Breast Surgeon in August who diagnosed Chest Wall Lymphedema. After a 6 week wait to see Lymphedema Nurse she told me catergorically it is NOT lymphedema.On Friday I went to see my original Breast Surgeon who told me he is 90% certain that it is a recurrence. My world collapsed and I am so frightened of the time lapse. He immediately sent me for a CT scan and I am having a Bone Scan on Wednesday, and hopefully the results on Friday. Finding this site has been my mental savouir. I am entering a very scary place but as there is hope for treatment and know I will drag myself up ONCE AGAIN to be the strong person that I am and look to the future.
I loved reading about the fact that you are doing so well so long after diagnosis. I was diagnosed with secondary bone mets in Feb at the same time as my primary diagnosis. It's all been a very scary road since then. I have tried using the forum before but only got one reply and it sort of put me off so I thought I had better give it another go as I feel like I would really benefit from some support from women in the same situation.
Anyway, just wanted to say thank you for posting.
Hi - my name is (edited) - used to be on here regularly but not been on for quite a few years now. Just thought I would sign up again as I have missed everyones stories. I was diagnosed with breast cancer in 2003 and found out it had spread to my bones in 2005.
I have secondaries in my spine and hip (had hip replacement) and am on Herceptin and Armidex along with Zometa which is given intravenously every 6 weeks. I have been living with this now for 8 years and have had no further spread anywhere. As people have said, Herceptin is a miracle drug and Im thankful my cancer (although very aggressive and the lump was rather big - 5cm - when diagnosed) is very treatable.
When I was first diagnosed, they said the outlook was grim - and here I am still going 10 years later.
Never give up.