I also brought a heart shaped pillow from Jens friends on facebook for 3.50 postage, the pillows are free. Its great to protect op side in car or at home. I used mine when I had seroma, you gently hug the pillow to apply pressure to force the liquid to disperse.
From Amazon I got a triangular pillow which I used in bed so I could sit up comfortably. Also used it to make a "nest" in bed at night to help me sleep.
Hi, pack an overnight bag and leave it in the car just in case. I was told mine was a day case but didn't go to theatre until 4pm, reacted to both radioactive and blue dye, woke up in bed in a ward 9.30pm.
I also took throat sweets as throat can be sore after having tube down it in op.Baby wipes too so you can clean up if needed!
Bag for drain is a must as you can put your other bits in and still have free hands. Hairbrush, hankies, lip salve
Dont forget a little pillow for over your boob and under the seat belt when you get driven home. Good luck. X
yes, soft crop top type bras are the way to go! I'm still wearing mine (nearly a year on) - not particularly glamorous but very comfy!
Feelthefear - re what to take into hospital - you may well know about this already but, if you are likely to have a drain after the op then take a soft cotton bag with straps long enough to go over your shoulder comfortably (like all the reusable fabric shopping bags) as it makes carrying the drain around a lot easier xx
Like Heather I just wore crop top and loose shirt (pyjamas!) for first week or so, then ordered some post op bras from M&S which are fine. Debbie x
Hi I couldn't wear a bra for awhile. Came out on hospital wearing cami top with loose shirt over the top. This is what I used for 2 weeks as scar didn't have a dressing over it. These were cheap ones from Asda. Then I have got 3 elasticated bras, no wire or proper cups from Peacocks. They have a removable padded cup each side so I took both out and made my softie the same size as remaining boob, I am 34B/C. I am comfortable like this, never liked underwired bras anyway. Will buy proper bras when I get prosthesis in a few weeks when any swelling has gone down.
M&S, John Lewis and Debenhams all do post op bras but I haven't been let loose in the shops yet.
Oh how true, I remember when I was diagnosed, mine was as a result of a recall from a routine mammogram, one week I was playing in a bowls final competition and the next week I was being told I had breast cancer talk about extremes 🙂 but it is history now and the new bowls season starts this week 🙂
If I was you I would check with your breast team, there is something in the back of my mind about not using bio oil until a scar has completely healed.
E45 seems to be recommended by a lot of the hospitals for moisturising during radiotherapy the skin hydrated.
Mine is glued but healed well. Physio said to massage e45 in circular motion twice a day to reduce scar tissue underneath and to stop it feeling tight.
was going to look this morning. Got all ready. Told my husband and he suggested waiting until tonight so it didn't ruin the day 😂 I don't have any more reviews now. Just got told would be seen in 6 months. But to ring up when the scar is healed for false boob 😀 Got glue on the scar according to my husband.
Tgregory, thought you would have looked by now, be brave, you will be fine.When you have had your 1st Physio review after op then you need to start putting on e45 or similar twice a day to the scar so unless your husband is a willing volunteer or draws short straw you will need to look at it!
Heather, I asked for both when I had my mastectomy and was told no. I haven't been given the option. Now I feel lopsided and as we've discussed before had op 30th March and still not looked 😩
Feel the fear, I classed myself as a strong person both mentally and physically until my diagnosis then I've cried more in the last month than in my entire life. But the support you get on this forum is amazing. And people care and can speak from their own experiences. I had mastectomy and sentinel lobe biopsy on the 30th March if you have any questions.
Are your breast care team aware that you have a disabled son, it might be worth mentioning it to them, when I at my apt for my treatment plan, I mentioned that my partner had MS which is why I did not want to stay in overnight!! they asked if there was any care package that they could put in place to help me with him over the coming weeks. Perhaps your hospital might be able to assist you.
I didn't hear much either at my appointments as I was so upset at being told it was cancer but took my husband and he could remember exactly what the Consultant said, usually he can't remember anything on a day to day basis, typical man.
I now go to appointments with pen and notebook and write everything down, then they have to go really slow with explaining things so I can keep up.
I also wanted double mx straight away as I thought the other one was a ticking time bomb and wanted to remove as much risk of it coming back. I still want to get rid of the other one but have to wait. Thinking about doing both at same time, my recovery would have been longer and was pleased that I could at least use left hand, it would be difficult with both.
That is quite normal and why they recommend someone going with you to the appointments because you really do not hear much after they confirm it is cancer. The stuff my friend told me about what the consultant said was amazing, I really had not heard much at all.
re the double mx - the docs will usually only consider it if you already have cancer in both sides or if you have an underlying condition eg the BRCA gene, which raises your risk over a certain threshold. I know I considered it before my mx as there were changes showing on the mammogram on both sides - I got referred to genetics and there is also a psychologist who works with the BC team to talk through the process with you and make sure you have thought through all aspects of the decision.
In the end I went for only single mx but am considering left side as well again now (I have a genetic condition that tips the risk into the 'right' level). After my first op I did wonder how I would have managed if I had had both sides done at once as I couldn't use my right arm much for a while and had to get good at doing things left handed. Again, as Raitchr said, please ask if there is anything else you want to know. Liz x
Will let you know re chemo.
My consultant wouldn't do double mx as they will not take healthy tissue. That's why I had Mri to check other boob which showed on Mri to be healthy and no cancer. You can have a psychological test to see if emotionally deal with double if one is healthy but I was told this would delay op by 3 weeks.
Breast care nurse said do single mx then after chemo if can't live with one boob then can have other taken off at later date.
I had Mri which showed nodes looked clear and in op I had Sentnel node biopsy, the first 4 were removed and came back clear. They used the radioactive tracer pre op and blue dye in op to find them.
Mine was a day case but they only operate in afternoon and only see 2 ladies at my hospital a day. I went to theatre at 4pm, took a long time in recovery as reacted to blue dye so stayed in overnight, allowed home 11am. Was happy I stayed in as was looked after very well and checked every 30 mins until 2am, pain level was checked and given liquid morphine in the night once. I did pack an overnight bag on the off chance I had to stay in. Was able to get up in night to go to the toilet but had to drag a drip trolley with me as had 2 saline bags through the night. Due to my reaction to blue dye. Had my own room too.
I didn't have a drain and there wasn't a dressing so could see scar, I didn't have reconstruction as that op was 6-8 hours. All I wanted was the cancer to be gone and to get home. If you have immediate recon then you are in hospital for 3 to 5 days.
Recovery at home was quick. I slept in a bed on my own to 10 nights, made a nest with loads of pillows to keep me from rolling on to op side. GP gave me tramadol tablets, one before bed and have slept well. I couldn't wear bra for 3 week, got some cheap cami tops from Asda to wear under loose shirts and leggings. Got cheap elasticated bras from Peacocks as have a pocket for softie to go in.
Do exercises 3 times a day without fail. I did and physio discharged me on 3 week follow up appmt as so pleaded with progress. They gave me a 2nd set of exercises to do for 3 months. Have only just started driving again after 4 weeks, that was my choice, enjoyed my husband being taxi service for me as he works from home!
Re chemo they give you antisickness medication before chemo and you take it regularly at home after chemo, you are rarely sick. I think for me the tiredness will be worse.
My chemo will be FEC-T so 3 cycles of FEC then 3 cycles of T. My cancer was triple negative invasive ductal, stage 1 grade 3 2.4 cm no lymph or vascular involvement.
Sorry for the long message!
BTW I had right mastectomy 4 weeks ago so if you want to know anything about op and recovery then just ask.
My husband told me to look at my treatment plan in stages, 1 is op, 2 is chemo and 3 is rads. This meant I only researched (ok, googled like mad) each stage and only focused on that stage. Just about to start chemo this month and was told I don't need rads so only chemo stage to go.
Let us all know how your CT scan goes and we will be here for you.
Hi sorry that you feel how you do but as others have said when you get a treatment plan you will be able to make your choice and be in a better position.
I googled everything too soon before knowing what the plan was and scared myself silly. I couldn't sleep and if I did I woke up at 3am and that was it for the night. Remove all electrical devices from bedside to stop you googling in the night.
After I was told my plan I just cried for the rest of the day. Relief because I was scared, relief because it could be treated, relief that I could grieve for my old life and move on with the new one.
One thing I know is that we are stronger than we think we are and this is just a test for us. Don't give up and let Mr C win, be strong and fight for your family.
Meri is absolutely right, do not go beyond what you know already know, just look to the next stage. Even though there is loads of great support here, understandably, those having problems will post, so sometimes things can seem more daunting than they may turn out for you & everyone's experience is unique to them. This time last year, I found reading the 'hormone treatment' led me to be more anxious about tamoxifen, than I needed to be as it turned out. There is no need to visit the secondaries section, or even the 'going through treatment' section yet as your treatment plan has to be finalised.
Just come on here & chat whenever you need to, we've all been where you are now.
It is like grieving process, shock, denial, anger, fear, resignation,
The fear I feel is so agonising as we spend so long wiating for results, once we have them then plans can be made, but meanwhile fear the worst.
I just had lump removed and some nodes, wiating for results, very sore. Each procedure, test, scan is traumatic in and of itself.
And apart from here don't feel prepared for them much at all.
I found looking online very scary and decided to be kind to myself focus on next step, look it up, ask questions.
Even on this site try to only read relevant sections and bear in mind those most affected come here, most of those who cured, doing well, not all here so some sections seem worrying.
I hope you find some way to ease the fear a little, distractions that get u through the day.
Hi newby, sorry to hear you have joined our very exclusive club. Firstly, follow everyone's advice and DONOT google! If you do you will certainly find more aches, pains and lumps as your mind is in overdrive. I'll bet you aren't sleeping, either, which just makes it worse. You could get help from your GP , you know.
I think your dates are pretty impressive, and you seem to be moving at a fair old rate. You don't say anything about the type of cancer, or the stage. Knowing a few facts made me feel more in control, and even though my Mr.Blobby was out of control I was told it was very treatable. He's all gone now, and I'm moving into chemo next week. Have faith in your medical team as they only want the best for you. Just keep busy, meet friends, and stay off google! Sending a big hug. X