I have read your comments 're node involvement with interest. I am now on my 3rd breast cancer in 4 years and all have been node negative and I have had chemo for the first 2 as triple negative and had rads for 1st 2. Have had bilateral mastectomy and waiting to start chemo for 3rd time. My point being that being node negative or positive does not guarantee anything!
Hi ladies....Oh my goodness, how fab to see that this thread is still going strong. hmmmm ...well,i am 3 years past diagnosis and im still here...:) xx all 25 nodes of mine were affected with cancer..so don't let it worry you...all i will say is for us ladies who are node positive we have to thank our nodes for doing their job and stopping the cancer from going any further!.xx
I have been following this thread and not liked everything i've read, some of it i think is anxiety provoking for you ladies still going through treatment. Please don't be despondant, DCIS as we know has the potential to turn nasty but in reality nobody knows how long this would have taken. Now it's going to be gone and won't even get the chance......
When i was first diagnosed everybody says we are all different so don't be comparing. All the time i looked for similarities, looking for people who have survived with similar diagnosis to me.... I had 6.5cm IDC Stage3 nodes involved I had Chemo first which didn't feel quite right sitting there for six months with the tumour which responded poorly to FecT100 (this didn't do much for the tumour but damaged my muscles eyes hearing and i am left with significant nerve damage).
I had a Therapeutic Mastopexy (removed about 1/3rd of my breast and reshaped from what was left) I was left with 36D pert breast gorgeous......... I returned a fortnight later to be told she didn't get clear margins. Bloody livid my gorgeous pert boob now in the bin............ However i have had 2.1/2 years now with No Evidence of Disease and a lot of time to think. If the Consultant had got a clear margin the 5mm area of concern might have changed over time. So maybe not so livid now....I went on to have Mastectomy, Radiotherapy and reconstruction since.
When i was first diagnosed my Son had just asked his girlfriend to Marry him and my first thought was my baby is going to be married and i won't be there. We planned and went to a fabulous Monastery wedding 140 guests from all over the world, they've got there own place which i've helped them to decorate and now my first Grandchild is due in November.
I know you've got to go back for more treatment..........and i'm much further down the line so am able to be more philosophical. Please try to let your team do everything possible for a good outcome. As you say they didn't bat an eyelid and will just tweak your treatment plan. Try to be kind and look after yourself. Keep posting as you go through treatment.
Take Care Gilly x
Flowergirl, I had four nodes involved and was Her2 positive. Like you I was worried sick about my node involvement however I know from speaking to others that having node involvement is only one road for infiltration of the cancer cell to other parts of the body. Cancer can spread via our vascular system so regardless of node involvement or not as long as you have the treatment you will know that you have done all you can. I now feel that way. Everyone's cancer behaves differently so listen to your medical team, keep as fit as you can and keep on living and enjoy every minute.
Welcome to the BCC discussion forums, where I am sure you will get lots of good, honest support from the many informed users of this site.
While you are waiting for replies I have put for you below links to some of BCC's publications you might find helpful.
I hope this helps
Tricia, l have sent you a reply to your message.
Please stay positive, very easy to say when you have just been diagnosed! l very rarely come on BCC but your message came up in my email.
Perhaps l need to come on more often for you 'node' ladies.
I was diagnosed grade 2 16/18 nodes in 2010! l am more than happy to say l am still doing ok! my onc thinks it is best for me to stay on Femara for another 5 years, as recent studies have suggested it is the best option for us node ladies! told him more than happy to stay on them forever!
I now belong to a breast cancer group on face book, and we have lots of ladies with high nodes doing really well many years down the line.
We all know things can change, but we are also more aware of our bodies, the sooner you report any changes the better outcome for you. So much more treatment out there now.
Seemed back in 2010 my life was 'just' about breast cancer, happily to report it is more about grandchildren, enjoying my life and shopping.
Hope you ladies all stay as well as possible
oh bollx. I am so sorry to hear that. I picked up on your thread as I am having surgery this week and they doing lymph node clearance.