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Thickened womb lining and tamoxifen

11 REPLIES 11
Pawsnjaws
Member

Re: Thickened womb lining and tamoxifen

Ok, think about taking Magnesium, Selenium and B Vitamins all help with joint pain. HUgs back 🙂

Alewis
Member

Re: Thickened womb lining and tamoxifen

Thank you I'm of to the doc today have rung the breast care nurse about my joint pain and they are seeing me next week xxx.
Big hugs and thank you
Pawsnjaws
Member

Re: Thickened womb lining and tamoxifen

HI Alewis

 


Sorry to hear of your situation, I'm afraid I cant help you with your particular issue, unless someone else responds, if I were you, I would go to see GP 

Its always a shock to see a period again when youve not had one for a long time. 

Sending you best wishes, please dont panic.

 

 

Pawsnjaws
Member

Re: Thickened womb lining and tamoxifen

Hi

 

Thank you for your reply, it is good to hear you're through that difficult part of your life. My story is a little different in that I have always suffered from abnormal thickening of the lining of the womb, and this has been treated for the past 10 years with a Mirena Coil which "sheds" the lining on a monthly basis. 

However having just been through Breast Cancer and finding out that my particular Tumours were hormone related, I have now embarked on a course of Tamofifen which directly conflicts with the Mirena Coil. It looks like its a hysterctomy for me wither way 😞

I'm more bothered about the fact I havee to face another BIG operation. 

 

Wish my body would just behave xx

Alewis
Member

Re: Thickened womb lining and tamoxifen

Hi can you help I've been on tamoxifen for 7 months not had a period in over a year since my second chemo I have started to bleed today and can't move because of the pain is this like you ? X I've had awful panic attackes and joint pains also since taking it xx
jos
Member

Re: Thickened womb lining and tamoxifen

Hi Pawsnjaws

 

Sorry if you are going through similar.  What's your situation?

 

I had a biopsy under general anaesthetic last November and it came back all clear with an apparently normal endometrial lining.  However I am now on a schedule of ultrasounds every 4 months to check and the last one I had still showed a thickened lining.  I am reassured by actually having had it tested though.  I have a couple of ovarian cysts which are apparently of the "normal" variety but I also get regular blood tests to check my CA125 levels (ovarian cancer marker). 

 

So, it's still a bit of a worry but I feel that, as I am being checked regularly, if anything happens they will pick it up early.  I'm just not sure how long they will continue with the checks though!  My GP thinks I should consider a hysterectomy just to take away all the worry for good but that does seem rather drastic.

 

I hope that's been some help.

 

J x

 

Pawsnjaws
Member

Re: Thickened womb lining and tamoxifen

Hi,

I am scrolling through this board trying to find a story similar to my own. I've just read yours and wondered how you are doing..sounds like you've had a tough time.

Hope nearly a year on you're now through the tough times.

 

Pawsnjaws
Member

Re: Thickened womb lining and tamoxifen

Hi, I am scrolling through this board trying to find a story similar to my own. I've just read yours and wondered how you are doing..sounds like you've had a tough time.

Hope nearly a year on you're now through the tough times.

 

Hollyberry
Member

Re: Thickened womb lining and tamoxifen

Hi Jos,

i am glad you found some more, positive stories. I do have a follow up appointment in a few months time. I am not sure if I will be having any more tests. I would have thought, that I might have a follow up ultrasound but I will have to see what happens.

 

Take care

hollyberry

 

 

 

 

jos
Member

Re: Thickened womb lining and tamoxifen

Hi hollyberry

 

Thank you - it is so good to hear your story.  I have found other cases online too where it has turned out fine (during a manic googling session earlier!).

 

I'm not sure the oncologist handled the phone call very well tbh.  She wasn't very encouraging although she did admit at the end that they don't treat many women who have had endometrial cancer after taking tamoxifen.

 

Do you have to have any other follow ups or tests?

 

Jx

Hollyberry
Member

Re: Thickened womb lining and tamoxifen

Hi Jos,

i too had endometrial thickening after taking tamoxifen for a year and had to have an endometrial biopsy and hysteroscopy to rule out the possibility of endometrial cancer. It came back clear of cancer. I was told that they always like to check it out, if you get endometrial thickening on tamoxifen because there is a very small chance of the tamoxifen causing endometrial cancer but it is not very often that, that is actually the case.

 

it is very frightening while it is being investigated but in the vast majority of cases there is nothing to worry about.

 

i hope I have managed to put your mind at rest at least a little bit.

 

Take care 

hollyberry

 

 

jos
Member

Thickened womb lining and tamoxifen

Hi there

 

Posted this in "Coping with Fear and Anxiety" too....

 

I haven't been on the boards here for ages but something has cropped up and I was wondering if anyone has gone through the same.  I was diagnosed with breast cancer in March 2014 and had 6 rounds of chemo, a wide local excision, LICAP reconstruction and 6 weeks of rads, all finishing Dec 2014.  I've been doing pretty well since then (lots of emotional struggles but that's another story...).  However....

 

I've been taking Tamoxifen for just over a year.  I've had lower back problems for a while - these pre-date cancer - but I pushed to get an MRI on my back to rule out anything "sinister" (as they like to say).  Two weeks ago I saw the oncologist who said there was nothing worrying on the back BUT the MRI showed some endometrial thickening.  I had an ultrasound yesterday and a phone call with the oncologist today who said that there is a possibility that it's endometrial cancer and I need to have a biopsy ASAP.

 

I am devastated.  I have only been on Tamoxifen for a year – can it really make this much of a difference that quickly? The oncologist said it is unusual but not impossible. She also said they really don’t see that many women on Tamoxifen with endometrial cancer. I am really scared. I am a single parent with a 9 year old and don’t know how I will cope with another round of cancer treatment so soon after the last.

 

Has anyone else been through similar?

 

Thanks for reading.

 

Jx