I'm glad to hear some positive results from Kadcyla. That's encouraging. I'm still no closer to starting treatment as the Gynae team who are doing the biopsy didn't receive my referral. Now I've chased it up twice and they've got it, they've had a consultation and decided to request my scan results! Radical idea!
honestly I sometimes wonder if I should go to their office myself and physically move the piece of paper from the in-tray to the to-do pile!! I know they have loads of other patients but it's been 4 weeks of nothing happening, and the onc wanted to have all the results and actually start the treatment in another two weeks' time - Frustrating!
jul, it's chemo attached to herceptin. So the chemo concentrates on the cancer. Nifty.
Hi. Samantha is tdm1 a chemo or is it like herceptain ? . I think it's great you go to work I hope I get back when I finish docetaxcol x x
Hi Helen I can't work from home I work in a children's home and a betting office two different kinds of job haha. I feel really down at the min I was on fec from May til end Sep so I was off work then had radiotherapy discovered secondary and had to go on docetaxcol I've had three treatments another three to go then I'm on h and p . I feel like I've had no life for months it's awful it's getting to me now it's like 12 chemos one after the other I'm worn out this docetaxcol makes me feel crap ! But il get there hopefully it's probably just time of year too ❤ x x x
I worked during chemo but at home - I am an administrator for a secondary school, ironically dealing with staff absence! I spent from Nov 2014 to Apr 2015 working at home and it really helped me being able to work. Since Sept, I now work 27.5 hours a week at school, every morning, and have afternoons off. This enables me to have my herceptin every 3 weeks in the afternoon without messing up my work. What do you do?
Brilliant to see you're still posting! And glad your cancer is only progressing slowly. I hope your spine isn't too painful. I'm due to start Kadcyla too, as I've now had some progression on my ovaries and peritoneum. Just waiting for a biopsy to check it IS BC and to check the cells are still HER2+, then I will start. Kadcyla sounds sooo clever, how it locks onto the HER2 surface of the cells but then delivers chemo at the same time. Genius. How have you found it? I've just started a new job and really want to keep working if the side effects aren't too bad.
Big hug to you Dawn,
Wow ten years is along time . Hope you get as long or longer on your next treatment x x x
Hi Julie, I was on herceptin for ten years without any problems or side effects. Last year I was changed to kadcyla as my consultant was concerned that although my progression was very slow he was concerned about a tumour on my spine causing problems should it get any worse. So I continue on herceptin but in a different form.
waves to Jacksy 😊. Haven't seen you for ages - how are you keeping?
Thanks Helen I've still got four of the docetaxol to get then I'm on perjeta and herceptin glad its working for you long may or continue. I read the inspiring stories all the time to help with my anxieties you all help a lot x x x
Hi just thought I'd bump this thread up doesn't seem to be many people on this x x x
Thanks jacksy it makes me feel better knowing you've been on herceptin for 8 years hope you get your heart sorted so you have many more x x x
Hi just thought I'd find out how long you've all been on herceptin or herceptin / perjeta is it working ? Do you manage ok ? In need of a few positives for Christmas love Julie x x x x