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Thyroid Problems

11 REPLIES 11
Seashell60
Member

Re: Thyroid Problems

Well i am well confused now! I have been on Thyroxine for Hypothyroidism for at least 5 years, then diagnosed with ILC in Oct 2012. Had no problems with it (regular blood checks during chemo showed no problems) until last Sept wheni started Anastrozole and my system went haywire! Worst thing was my heart went crazy - hospital said it was prob hormone related and gave me Bisoprolol ( betablocker) until further notice. Considering that Thyroxine is a synthetic hormone and starting Anastrozole (also synthetic hormone) has caused me to have this happen resulting in having to take a heart pill and i have a 24hour monitor being fitted next weekend? My GP did full bloods recently and mentioned something about Phosphate levels were borderline/thyroid 'seemed' okay i wonder if it is worth asking for another blood test to compare? I am sure that all these drugs can't be good...Cheers, Michele 🙂

Ceely
Member

Re: Thyroid Problems

Probably just coincidence, but after two years on Levothyroxine I had to have a lumpectomy.
Mac123
Member

Re: Thyroid Problems

Morning ladies

Well, I had my blood test for thyroid levels 2 days ago and my GP rang me yesterday-my TSH has gone up from 49 to 73 so I definitely have hypothyroidism! I have to start Thyroxine ASAP. I don't feel that I have been particularly symptomatic as I put any lethargy and fatigue down to recent chemo and radiotherapy. However, when I think about it now, my periods were excessively heavy prior to my BC, I have suffered with constipation for a long time and I have struggled with my weight for several years so I really don't know how long thyroid has been abnormal. What is even more confusing is that apparently a blood test in May for thyroid function was normal so I'm very confused!!!!

Wishing all of you the very best x

fimbo123
Member

Re: Thyroid Problems

Hi Hotmonma, I'm sorry to hear you've got an overactive thyroid and hope your endocrinologist sorts it out for you.
I'm hypothyroid not hyperthyroid so can't really help at all I'm afraid but just wanted to jump on this thread to ask if anyone else has heard of a link between levothyroxine (synthetic thyroxine for hypothyroidism) and BC? I read somewhere that even if you are well controlled on average as I have been, levels of synthetic thyroxine in the blood can temporarily go too high and can act like a growth hormone, fuelling tumour growth. If this is true, what am I supposed to do about it? Should I ask my GP to reduce my dose a bit and go slightly hypo to avoid cancer recurrence? Never had too many hypo symptoms anyway, just really heavy periods which the chemo and Tamoxifen will sort out anyway! I'm just finished chemo so based on the comments before I might expect my TSH to be all over the place for a bit anyway 😞
hotmomma
Member

Re: Thyroid Problems

Hi Spookymoo,I was shocked at reading your post is an understatement!!! I can't believe your GP fobbed you off at all,never mind 2yrs. I think it's disgraceful. I also think that I'm in the 10% of people with Hyperthyroidism that  put weight on,not lose it.I put weight on very easily if I don't go to the gym and workout.It was the day after  good workout that I could hardly get out of bed the next day.I thought I was getting the flu,I didn't and every day my joints became more painful and eventually went to see my GP.I have been given Naproxen until I get to see the Endocrinologist,which seems to be helping,but not enough for me to return to the gym.This is really getting me down now as I normally train 4x2hrs of aerobic exercise a week and ride my bike twice a week.I have gone from an exercise freak lol to not doing anythingat all  since the beginning of Sept and I look like I'm losing a lot of muscle tone now.I tried to go for a  walk with my husband and dog,but my legs were so sore,my knees buckling beneath me and out of breath that I haven't been again.Just as I'm getting my self back on track,I'm hit with this.I know this can weaken the ehrt Spookymoo,but will I be able to get back and train like I did,or will my once supposedly healthy lifestyle have to change.Thanks for replying  Spookymoo,hope you are doing well re;thyroid and BC treatment and I will see if the Endocrinologist I see, thinks BC ladies with Thyroid problems are rare too

Take Care

Franca

xxx

hotmomma
Member

Re: Thyroid Problems

Hi Cressida,I think you are right about treatment sending everything out of balance,but shouldn't my body have "fixed" itself by now,since it has been nearly 3yrs since I finished treatment? I went to my GP because  every joint in my body felt sore and when I  went back for my results I asked her if that is why I felt so sore and she said no,but the leaflets she gave me to read about Hyperthyroidism,suggested otherwise.My appointment to see the Endocrinologist is not until November  21st,but it will be interesting to see what he has to say and I will let you ladies know

Take Care

Franca

xxx

hotmomma
Member

Re: Thyroid Problems

Hi Janet,  I'm so sorry to hear that you ended up in hospital. I think it is weird that your results are swaying between uvderactive and overactive. Does that mean you have different symptoms each time it changes? I went to my  GP after feeling very out of sorts for 2 weeks.I thought I'd developed some sort of arthritis or anaemia because my joints were so sore and I was out of breath.Apparently my GP said she knew I had it because I have protruding eyeballs (Graves Disease),but  I told her that my eyes have always looked like this. I will let you know what the Enocrinologist has to say, but I'm almost certain that it's not as rare amongst BC ladies,as the medics tell us.Pleas let me know of your results at the end of this month.

Take Care

Franca

xxx

spookymoo
Member

Re: Thyroid Problems

Hi Franca, I read your post with interest. I was diagnosed July 2012 with Breast Cancer, probably as a direct result of my thyroid raging out ofcontrol! I will explain... I thought I had found a thickening in my left breast at least two yrs prior to this - but repeated trips to GP did not get me referred I was repeatedly told I was "too young" to have BC and it was just normal cyclical changes. Anyway, my health started to go downhill from Jan 2012. I felt tired all the time and lost about a stone in weight. GP fobbed me off with stress + anxiety and told me to have a holiday! Anyway by June I was really unwell with racing heart beat and had developed tremors in my hands. Finally GP took me seriously and did a load of bloodtests. It was at this point I was diagnosed with Hyperthyrodism (overactive). I was told I was extremely thyro-toxic and in danger of having a thyroid storm and a heartattack. The blood tests also threw up tumour markers and at this point I finally got referred for a mammogram. I was then also diagnosed with IDC, grade 3 and it was also confirmed it had spread to my lymph nodes. Because the thyroid was still going crazy and I was quite unwell, I was put on 40mg of Carbizamole and given primary chemo, as too dangerous to operate onuntil thyroid stabilised. I was fortunate enough to have a brilliant endocrinologist at Royal Surrey (the  best in the country I have been advised!) and an amazing BC surgical consultant who has a thyroid specialism. They really looked after me. I am pleased to say my thyroid is now stable and under control and I hope to be completely off the carbizamole soon. My BC is very ER+ positive and grew quite aggressively and I am sure this is directly linked to the thyroid raging out of control. No one can advise me if there is a correlation between the two. I think there has been a bit of research in the states but there us not a lot published about it. However, although the thyroid probably made the BC worse, I think it saved my life as my GP would not listen to me and I may not have been diagnosed with BC until it had spread even further. I hope your endocrinologist sorts you out.. The carbizamole has really controlled the thyroid thus far. Hyperthyroidism  (overactive) is rarer than hypothyrodism (under active) and much more dangerous. My endo had never come across someone with Hyperthyroidism and BC - he said its as rare as hen's teeth! 

Cressida
Member

Re: Thyroid Problems

Hi,

 

I had very low levels of thyroid stimulating hormone after treatment.  I was excessively exhausted (even for someone post chemo), but having low TSH is suggestive of hyperthyroidism, whilst my symptoms are suggestive of hypothyroidism.  The level just kept getting worse and I eventually saw an endocrinologist.  She told me that it is not unusual for her to see ladies after BC treatment.  Treatment just sends everything out of balance and it  often sorts itself out.  It does seem to be very slowly returning to normal.  It has taken about 6 months though.  I will see her again for a final check next year, but I feel much better.

 

xxxx

Janet_BCC
Member

Re: Thyroid Problems

Re: Thyroid Problems

 

This reply was posted bi Mac123

 

 

 

Hi Franca

I posted on here several weeks ago about my weird and abnormal thyroid blood results but had minimal response. I finished chemo in August and in May this year my thyroid levels were normal. In July I was in hospital with neutropaenia and when my thyroid levels were checked, they were raised (Hyperthyroidism). However, when they were checked again  a few weeks later they were low (hypothyroidism). My Onc cannot understand this variation and I am due for a repeat blood test at the end of this month. If still abnormal, I will be referred to an Endocrinologist. The professionals have no explanation for these changes other than it may be chemo related. I am now waiting with some trepidation to see what the next blood test reveals. It will be interesting to see what your Endocrinologist can make of it. Hope all goes ok for you x

 

Posted by Mac123

Janet_BCC
Member
Moved:

Re: Thyroid Problems

hotmomma
Member

Thyroid Problems

Hello Ladies, I am nearly 3 yrs on from Breast Cancer treatment  and last week was diagnosed  with Hyperthyroidism (overactive thyroid gland). I have been referred to an Endocrinoligist,but was wondering if any of you ladies have had the same thing,either before being diagnosed with Breast Cancer or not long after Breast Cancer treatment.

Thank-You

Franca

xxx