You are invited to consider taking part in a research study sponsored by King’s College London, called ‘exploring women’s and clinicians views of early decongestive treatment for newly presenting breast cancer-related lymphoedema (BCRL) of the arm.’
We wish to find out the views of up to 12 women with breast cancer about different forms of lymphoedema treatment. We are running discussion groups, called focus groups, to find out breast cancer patients’ views of the value of lymphoedema treatment and how acceptable it is, the potential burden of treatment and any barriers you see to women taking part in a future trial, and the best ways of assessing treatment benefit.
The focus groups will be held on Friday 21st and Monday 24th August at King’s College London, near Waterloo Station. The discussion group will last around 1½ hours, and you will need to only attend one group. We will repay your travel expenses to a maximum of £20 on receipt of relevant travel receipts. If you need to arrange additional child care in order to attend the focus group, we will be able to offer you £20 to help with this cost.
To take part in the discussion group you must have arm lymphoedema following breast cancer treatment, be able to understand and speak in English, and have finished your breast cancer treatment (surgery, chemotherapy, radiotherapy or biological therapy, e.g. Herceptin) at least 3 months ago. If you are having hormone treatment (e.g. Tamoxifen) you can take part.
If you would like more information or would like to take part in this study, please contact Eunice Jeffs on 07583 992181 or email: eunice.jeffs@kcl.ac.uk.
Thankyou for reading this.
This study is independent research supported by the National Institute for Health Research (NIHR/HEE Clinical Doctoral Research Fellowship, Ms Eunice Jeffs, CDRF-2013-04-023). The views expressed in the study protocol are those of the research team and not necessarily those of the NHS, the National Institute for Health Research or the Department of Health.
This study has received ethical approval from the NRES Committee London - London Bridge, REC number 15/LO/0917
Florence Nightingale Faculty of Nursing and Midwifery
King’s College London
James Clerk Maxwell Building King’s College London
57 Waterloo Road
London
SE1 8WA
Telephone: 020 7848 3500
Email: nightingale@kcl.ac.uk