I have no experience to equal yours, but I do know of several ladies who have had full lymph removal with NO problems at all. They have to be careful not to 'overuse' the arm and they just take a little extra care with themselves. (Couldn't we all do with doing that though?!) You'll just have to do your Superwoman pose with the opposite arm, that's all!
Before I knew what my treatment would be, I looked into the effects of lymph removal and lymphdoema. Don't google it cos they make it sound quite scary and it is not often like that. In fact, don't google anything!
What a story I have to tell.....
A routine mamogram resulted in diagnosis of Breast Cancer yet again in November 2014. In March 2011 I had DCIS of 750 grams, I had mastectomy and reconstruction. The lastest diagnosis of breast cancer of the other breast was a total shock.
In January this year I went into hospital and had another mastectomy and reconstruction.
Yesterday I was given the news that there were in fact two tumours. One grade 2 and one dcis is which is the beginning stages and what I had last time. I had my sentinel lymph node removed and four others and cancer was found in the sentinel node so it had spread. the good news is that hopefully the node has done its job and stopped it spreading.
I have to go back into hospital on the 24th of February for removal of all my lymph nodes in left arm for them to be fully tested to see if its spread. If it has then I have to have radiotherapy under arm. If not that's one less thing!!! However. I need to have chemo ;-( one session every three weeks to ensure that the cancer doesn't return then go on a cancer drug called tamoxifen for five years. The outlook however is good. Its just going to be very hard for the rest of the year...... I am currently battling a very painful infection in my hip donor site and have two loads of high dose anti biotics because I need that clear before I can start the next phase. I am also waiting for genetic results to see if I have a brac gene which can also cause ovarian cancer. Hoping no but if yes surgery to have them removed.
I am looking for advice from any ladies who are going through similar things. I have heard that removal of all the lymph nodes can result in frozen shoulder and then you have to be exceptionally careful with your arm and the risk of infection.
The chemo I am due to have is FEC I think or something like that. What are your experiences.
I am a mumy to a four and five year old and will do ANYTHING to be there for my family. Grateful to connect with anyone to give support and get advice, knowledge.