Hi Lulu. Im herbgarden although the new forum sees me as pam01?!
I think intuittively we all feel that mets should all be treated as soon as possible to keep things under control. studies indicating that outcomes are worse in this country than in other european countries and the states might indicatethat less aggessive/fewer choices for treatment here might be at least one of the reasons for this again indicating that early treatment may be better.........but I think the jury is out!
My onc (an author on the paper discussing outcomes) sees himself as "evidenced based". He told me he had become more conservative after being involved in research for more agressive treatment (in terms of higher dose chemo) in primary breast cancer which led to no better outcomes and increased mortality from side effects of treatment.
I think timing of different treatments is an art as well as a science. ...To get maximum and longest possible benefit from the options which are available....and sometimes that may mean delaying more aggressive treatments until the right moment even if in virtually every other situation in medicine this would not be the appropriate thing to do and appears counterintuitive..........I think scottishlass /her onc seem experts at spining out treatments........managing to do the right amount of holding off treatemtn vs pauses for 14 years or so! (plus presumably a bit of luck). Im sorry not to directly answer your question but Im not sure the evidence for the correct answer is out there and you may have to depend on the experience of your onc plus your own views to make a decision! best wishes Pamx
Hello Lovely Lulu,
I have no special experience to draw upon and am only responding as I care about you and you have helped me and so many other women on the forums. I don't have mets. (as far as I know) and so its only possible for me to imagine the dilemmas and feelings you are facing.
I just wanted to share that like you and having had breast cancer twice, I think you start to understand the limitations of treatment. I knew when I had my second lot of chemo there was no guarantee that the treatment would help. On the other hand, I took that treatment as I needed to believe it would help and as Angelfalls says, I hoped it would give me more time.
I know you enough about the science to ask the right questions, but from an emotional point of view, I think it is also about risk/benefit - the risks of watching and waiting, the benefit of starting treatment soon and your overall quality of life.
I really wish I could offer some information and hopefully someone will post who does?
Take good care Lulu, Rattles xx