Results appointment this morning and confirmed chemo for me, so have appointment this afternoon at 4.30 pm with the oncologist. How quick is that!!! So I will hopefully have a better idea of exactly when it will start, though he seemed to think it would be soon. I know I was told August, but this suddenly all seems very quick and very real and very scary! I'll let you know what is said today, but know that after the chemo, radiotherapy then drugs. Hope ypu are all doing well.
Hi ladies .. been realy nice to ready all your messages and its really helping to put my mind at east about starting my first FEC next friday(29th)... went yesterday for my first wig consultation and decided to go for something similar to my own but slightly longer.. my 16 yr old daughter keeps telling me to go for the long bright red ariel wig and have some fun as ive always wanted really long hair but i think this will be a bit too much for me although by the look in her i can see its really for her lol .. kids!! .... was supprised at how lovely the guy was at my new hair and how at ease he put me with all the advice .. highly recomend goin for your wigs ladies...
lots of love and hugs
maxine xx
Bless ya Mel66
You take it easy & hope you enjoy your eve with the girls 👭 I'm sure they'll manage to keep you entertained whilst they're drinking wine!! 😀 Take it easy. B xx
Thanks Niceemee 😘 Keep your chin up xx
Good luck today Kate! 💕
Fingers crossed all goes well. & hope you're OK in the days to follow!. Keep us posted on how you are if you can.
Thinking of you with love & best wishes hunnie 😘 B xx
Morning luvlies......how are we all today?
A restless night for me 😟 was dreaming vividly & my mind just wouldn't shut down! Think subconsciously as FEC day looms I'm starting to be anxious about it. Thankfully my boyfriend sensed I was awake & gave me a reassuring chat at some unearthly hour....bless him! 😇 He was up at 6 to travel to work!!
So it's my pre-chemo assessment this afternoon......fingers crossed will be on track for FEC tomoz & then it's my venture into 'the unknown' for a while 😞 Thankfully all your posts have made this next stage much easier to face & I know I'm not dealing with this alone 👭👭👭👭
Hope you all have a decent day. Sending love. B xx 😘
Hi Toria42,
My goodness, if you can't have a meltown from time to time then we need to remind you just what you are coping with!!!! You are doing great! Being strong all the time is just so tiring both physically and emotionally and it seems fine to me that sometimes we just can't cope. Wine and chocolate both sound fab - go for it. I can't have either at the moment as I am diabetic and getting BS levels under control, so I go for the vicarious pleasures of watching other people enjoy them.
Today I felt weepy as I got my long hair cut, and a fringe put in. I didn't actually cry, but felt like it. This is me taking control in case the cold cap doesn't work for me. Our hair is so much part of our identity, and our identity has already been challenged as we are now 'cancer patients'. I'm struggling with this.
I have two sisters. My younger sister has been mavellous, and I told her from the outset and she has come to results meetings with me and supported me. I called my older sister a week past Friday to tell her, and even though she knows what is happening I have heard nothing now for nearly two weeks. I know this is because she can't cope, but it has really upset me. So, I completely understand how you feel. It is hurtful, and it makes no difference if they are busy people - a five minute call would be enough to show she cares!
So pleased you continue to escape the worst of the side effects - fingers crossed for you that this continues!
Stay strong Toria42, and all you lovely ladies out there.
P x
Toria42
The chocolate sounds good!! Go for it 😘
Bali2001
I was considering pouring myself a glass of pinot grigio & have now been convinced as it's only right that you don't endure your large red alone 😜 Cheers!! 🍷
Will bid everyone goodeve & will tune in tomoz. Take care all & hope we all sleep well & feel OK tomoz.
Much love.....B xx 😘
Hi Bali2001
Just wondering how you're feeling this afternoon?
Hope your distractions have helped you along hunnie.
B xx
Hi Bali2001
Just wondering how you're feeling this afternoon?
Hope your distractions have helped you along hunnie.
B xx
Have a good day 27 Kate!! Good luck for tomorrow hunnie....I'll be thinking about you.
Going to keep busy here too. Think will take my dogs out for a nice long walk this morning....find it very therapeutic. 🐕🐕
Take care. With love 💜 B xx
Morning all.
Sounds like a day of mixed feelings ladies 😟
Eileen B - Thanks for the tip re Annabandana! I had a brief look at the site & there look to be some nice items on there. Hope your SE's continue to be few & far between x
Mel 66 - Well done!!! You're 1treatment down ☺ Hope the hangover feeling abates soon & SE's are manageable. Perhaps have some red wine anyway 😋
Bali2001 - Sorry to hear you're feeling rough & now having to deal with lymphoedema!! 👎 Reiterating alijay, no need to apologise for feeling grumpy - feelings & problems shared are hopefully halved. Tuck in under that duvet & listen to your body. Tomorrow is another day on the road to full recovery hunnie 😘
Alijay - Good luck with the wig shopping! Go funky 😀 I'm sure your daughter will make sure you look great!! Think I should make an appointment to look at wigs too.
Here's a laugh for you all....my boyfriend reckons he's gonna draw a face on the back of my head if/when I have to shave my hair off!! 😈 Told him he'll be freaked out in the night if he wakes to find the back of my head staring at him LOL!!! 😁
Take it easy everyone. Sending love & best wishes 💕 B xx
Thanks Eileen and Kate, I collect my wig(s) on Friday, couldnt decide on one when I tried them before so I'm taking my 17 year old daughter with me, I know she will give me an honest opinion Think I will go with scarves and the soft turban things around the house and wig for going out. The wigs really are very good but I need to get over my fear that they still look like wigs and everyone will know!
Mel, hope you are feeling ok this morning. It is kind of a relief to get the first over with, not nice watching the red stuff going in as Eileen said, but if its doing its job bring it on I say!!!
Bali, just seen your post as I was was about to post mine. Sorry you're feeling down, but you musn't apologise for being grumpy, you're allowed! It's so hard knowing life will never be the same but we will get through this and be able to enjoy life again, although I know that seems a long way off right now. Have a duvet day (i've had loads of those) and take care of yourself xxx
Hi All
First fec yesterday. Was a bawling mess beforehand but fine once it got underway... point of no return and all that...!
So far so good.... was given Emend to take beforehand and together with the antisickness drugs given iv, I just feel like I've got a bad hangover, but without the headache. I've had plenty of practice with them so I can handle that... knew my love of red wine would come in useful! Lovely shocking orange diarhorea too!
I'm really not looking forward to the next bit... hair loss... but I'm sure, like all you fab ladies on here, when it gets to it I will deal with it as we have dealt with everything else so far. I opted out of the cold cap so it's just a matter of time... Will check out Annabandana.. thanks for the tip Eileen. 🙂
Thanks Eileen, I'm sure I will feel much better when I've got it over with, it's driving me mad itching my neck, also my scalp feels all sore.
Did you get someone to do it for you at home or go to the hairdressers (don't fancy that much!)
Ali
Urgh! Hair coming out in handfuls now, I'm leaving a trail of hair around the house, wish I'd had it cut really short now!! Think I need to get it shaved off asap
Good luck everyone who is starting their chemo this week.
Take care xxx
Hi 27Kate. Thanks for the insight. Looks like we're only a day apart so we'll have to see how we fair together.
I've also opted for cold cap. Am mindful, from a post I read on here, to take warm clothing as I think the 'brain freeze' can make you feel chilly!!
I have had a bit of a debacle with hospital today as I just received a text to say my apt was 2pm on Fri presumably for my chemo 😷 I rang to check detail as knew that would need to be in majority of day & thought 2pm was a bit weird!! As I thought, I do need to go in for bloods etc the day before & I actually need to be at hospital for 9am on Friday!!
Feeling a bit anxious now & only hope that I am starting chemo Fri as am revved up for it....sad & crazy as it seems 😛
Hope all goes well for you Kate. Stay positive & strong.
Sending 💕 B xx
Thanks P! 😃
Will keep you posted.
I've opted to give cold cap a go as well as Kate so we'll see how we get on with that.
😘 B xx
Thanks P! 😃
Will keep you posted.
I've opted to give cold cap a go as well as Kate so we'll see how we get on with that.
😘 B xx
Hi ladies.
How are we all doing today?
3 more sleeps on chemo countdown for me! Have just spoken to hospital & am in for pre-assessment on Thursday afternoon then hopefully all systems go for 1st FEC on Friday. Just wanna get started now 😱
Sending love & best wishes 💖 B xx
Chemo Countdown! After several postponements and veins being unsuitable for a picc line ~ On Thursday
morning I am to have a Groshong Line fitted under sedation and then in the the afternoon the first Fec.
Would have preferred chemo on another day ~ Has anyone else had both on the same day?
Serenity 😕