Hi everyone I have read your posts with interest my onc's don't do tumour markers and when I asked my last onc why they didn't do them he replied because they are not conclusive. Should I try again with my new onc or would I be doing myself a favour by not knowing. The new onc is young and lovely and I met her for the first time 2 week ago she looked at my breast and skin mets and I told her I had lost spots of blood from somewhere under the breast she said one of the mets where ulcerated I inspected myself with a mirror it is my chest wall tumour she had mistaken for a met. So could tumour markers be worth mentioning????
I agree with you there Helen, you can get a little obsessed with them and read too much into them, but must admit I do have faith in my onc and if she tells me she isn't worried then it does make me feel better.
Hugs Janette xxxx
Hi ladies, just ben looking at this thread with interest..i have never had TMs done in 4 yrs since i was first diagnosed. However, i have skin mets (2nd diagnosis after being off chemo for just 6 weeks and no response to letrozole) and recurrence in the fatty tissue of my reconstruction and am now told that thses are not picked up on scans..useful!! so i was thinking about asking if my Tms could be done as an extra monitoring system. Only trouble is i would be even more terrified if they kept going up so dont really know if i would benefit but if they highlighted something quicker than a scan i supose thats good?? nothing is ever asy is it? x
Hi Sarn, TMs....They don't half cause some confusion!!! Some oncs don't even use them, mine have been slowly rising and I was getting myself in a right old state over it but I had a good chat with my onc who explain them to me, as Helen has said they look at the trend rather than the actual number plus they look at the bigger picture, scans, TMs, and how you are feeling in general. Try not to get too hung up on them....that's what she told me. Hope this helps.
Hugs Janette xxxx
This tumour marker business is driving me mad! I have tried to find out about them, and it seems what Helen has just said is spot on.
Mine started at 1000 when first dx with mets. They went down for a while but have been rising now for 4 months and are 1700. Because of this I have had 3 scans, 2 thorax and pelvis and 1 brain. The scans show no spread, but I am going to ask at next appointment what my options are as at present I am on anastrazole and surely if it is still working the TMs would not be rising? I also feel well, but am getting some pain in rib and a shooting pain near my shoulder blade, and of course all this is a bit of a worry. But nothing showing on scans so far!
One other thing my dr said was it could be cancer actually breaking down (good) but that would only cause a temporary rise.
Anyway I haven't seen my onc consultant for a while, only a Dr and the nurse practitioner who are good, but as they admit to being baffled I think I'm going to ask to see consultant if they are still rising next time.
As some hospitals don't measure them because of unreliability I don't know how seriously to take it?? Aaargh!!