CanIi just say a very big thank you to everyone who posts on this sight, I find it the best medicine . I had primary in 2009. , all fine until 6 months ago , now bone mets ? lung , gettin on ok , then last week / liver mets Devastated , been under the duvet all weekend , I know I will surface , but finding your experiences giving me more hope than the clininal teams. Onc keeps saying all very small volume and all very slow growing xx
keep well , hugs to all x
Thank you Blondie
I am 5 yrs on from an initial diagnosis of primary with mets to bones.
Yes there are days I feel frozen with fear especially between the scans and going for results, it's like a game of Russian roulette and I know you folks understand that !
but then there are the days that I hold my grandchildren and am so grateful I've been given this time when I've lost friends that didn't get the chance to feel this.
Onwards and stable!
Hi Blondie. This is my first time here and I am so inspired by your story. I have just been diagnosed with bone Mets and was feeling pretty devastated until I read about you. You have given me hope.
So glad to hear you are well. Thank you for posting that is really kind of you to give us all such hope. If you wouldn't mind me asking a few questions if you are around. First of all do you have any hormonal treatments? Secondly, I don't know if I dreamt this but are you being treated at Colchester hospital? I thought I read in an old post that you were. I apologise if you don't want to disclose this. I am treated there and after the initial shock of my diagnosis in May 2013. I think that the treatment I receive is absolutely excellent. I have bone Mets and am on herceptin and perjeta or pertusamab plus tamoxifen. I go to the Mary Barron suite every 3 weeks for this for h and p. The staff on there are amazing.
Wishing you another great year.
Best wishes to you all!
Welll Done, hope I doo as well. I have just this week been diagnosed with Secondary in the lung and am waiting for treatment to start.
What fantastic news for you Blondie - and your positivity will hopefully rub off on those of us a bit newer to this journey. Take care and keep well xxxxx Val