Hope everything has gone well for you with the chemo. Do you have a diabetes nurse to speak to about your treatment? It is really difficult to keep blood sugars down if you are having steroids which I expect you are. As you probably know the steroids make you insulin resistant so you need more insulin either with food or without. I was surprised how much more insulin was needed but I remember the same happened during pregnancy, that is needing much more insulin.
It's very nerve racking to just give a lot more though, isn't it? Especially in a short space of time, like 6 hours after chemo and suddenly you need a large dose increase. My level went up to 18 the first time. I kept giving more insulin and nothing happened, so I kept giving more until it eventually came down and then increased the base rate. I think I'd go carefully and request an appointmnt with a diabetes specialist. My diabetes nurse said to reduce dosage after the last steroid dosage as requirements drop quite rapidly. I have found so far that I have dropped the dosage from quadruple to double 24hr after the last steroid dose, and kept a close eye and reduced basal insulin quite quickly to prevent hypos. But we're all different and I think you should have been offered some help.You can always have an extra bolus if sugars are running high.
Anyway, hope the first one went ok.
Best wishes x
Thanks for your help. Obviously you're working during the radiotherapy so you went back really quickly, I don't think they're expecting me back until the radiotherapy is finished. I was just wondering if it might take longer than that to feel up to it, but sounds like you are feeling well enough during the process, so that's good. I'm part time anyway so should easily be ok to go back quite soon after the radiotherapy if your experience is fairly typical. Mind you, it's different for everybody so we'll wait and see, but chemo not as bad as I thought, so hopeful.
Best wishes x
Thanks for your help. I was just wondering if the radiotherapy lasts very long or is it just a few minutes? I've heard mention from a friend who went through the same chemo and radio process last year that she felt quite tired with the radiotherapy as it was every day and she had a long journey to the hospital. I wondered if you felt anything like burning or if you've been told what to expect. I expect they'll tell me this later, I'm just eager to know what's coming and get it all over and done with! I'm also wondering when I'll be fit enough to go back to work. Not that I'm in a particular rush, but still have bills to pay.
Best wishes x
Nice to see these posts on here as haven't been able to find much on the internet about diabetes type 1 and cancer. It's good to see how everyone is just getting on with it as those with the diabetes always have to!
I was diagnosed with Grade 3 breast cancer in February but very lucky, no spread to lymph nodes. Undergoing FEC chemo currently, 3rd session 04/07. Radio planned afterwards.
I started on an insulin pump in January, not the best timing I think, but I buried my head in the sand and thought the biopsy was going to be negative. Diabetic for 53 years from age 4. The pump has helped as I have been able to quadruple my base rate in order to keep the sugar levels down without worrying too much about hypos as can always switch it down if sugars drop too low, which hasn't been a particular problem with the steroids! Blood sugars all over the place even so as also needed to treble food boluses.
Can anyone give me more info about the radiotherapy? I haven't asked too much so far as more keen on getting the chemo sorted. How long are the sessions and is it every day or a break at weekends? And how many days , is 20 the usual number, I presume that is 4 weeks with a break at w/ends?
Thanks for your help.
From someone whose hair has just fallen out ( after 2nd chemo ) would recommend getting it cut shorter if you have longer hair but don't shave it until you need too. If your chemo is a few weeks away , then it takes another few weeks for it to fall out ( mine was 3 ) then you still have about 6 weeks of hair !! I would recommend leavig it as long as you can as we are going to be bald for a while !!:-)
Once mine started to fall out though couldn't wait to start wearing wig as it felt very thin and lank and could not be brushed for falling out. Have worn wig now last few days and does look good !
Good luck xx
Hi katie. Just had my first oncology appt. Confirmrd FEC-T as expected 3 sets of each over 18 weeks, however I have a 2 week wait to chemo assessment and then another week to start treatment, i was hoping for sooner, but everything in others hands - back to the waiting game which im not good at, getting very impatient!
Got an appt with the wig lady booked so will be off to have the head shaved before i start chemo just to feel in control of something.
How is your radiotherapy going, hope its not making you feel like a fried chicken? You will soon be done and still have some summer to look forward to.
Take care, sending hugs coz sometimes nothing else helps. Hbunny xx
Hi katie, thanks for the encouragement, its good to hear chemo isnt always as bad as expected. Good luck with the radio and really hope you have a very special weekend away - spoil yourself, you deserve it. Best wishes. Hbunny xxx
Hi ladies, well the results are now in. Its a grade 3 ductal with 1 out of 4 lymph nodes effected and also vascular invasion (god knows where its planning its next attack). ER negative and HER2 negative, still waiting for PgR result. All in all means 18 weeks chemo (probably FEC-T) followed by radiotherapy to breast and effected arm pit. I thought that was a better option than complete clearance? 2 weeks to first oncology appt and another 2 weeks to start therapy.
Was hoping for some moer positives in there, but its still curable! Holding on and hanging in - the rabbit hole gets deeper.
Ps - did any of you have semi permanent eyebrow tats?
Thanks for your help and love to you all. Hbunny xx
Thanks for the advice ladies. Did you suffer with any neuropathy type problems as i read that is a poss side effect of some chemo drugs. Ive been lucky to escape that with diabetes so far and worried in case chemo might trigger an ongoing problem. Thanks hbunny
I was dx the first time in 2008, had adjuvent chemo x 6 taxotere and at that time I had been a type 1 diabetic for 40 years.
I monitored my blood glucose carefully, the steroid tablets caused a raise in them so I had to inject more whilst taking them. I took all the anti sick pills and pessaries i was given and luckily although nauseas, was never actually sick. So i would advise frequent testing and adjusting insulin as required.
Good luck with it
Hi katie. Just a quick post to say all went well yesterday, was able to go for a wle rather than mx as the results of calcification was "innocent". First good news so far! Blood sugars not too bad and now back to normal. Still no other info however, that will come in another two weeks along with follow up plan. I know this will mean radiotherapy but fingers crossed will get away with chemo, although probably not with grade 3. Anyway how did your last chemo go hope your now feeling good and ready for a good summer. Xx hbunny
Thank you so much katie, its just one more problem to make life interesting. So pleased you are coming out the other side and can now look forward to the rest of your life. I will keep you posted andd certainly take yoou up on your offer of support over the next few months. Take care. Xx hbunnie
Hi katie, just wanted to offer support, although im sure you are well on your way by now. I too am type 1 for the same no of years - lantis and novorapid. diagnosed on tues with Grade 3 although have no further info as yet, although op on 23 May probably mx and scared to death. Let me know how the chemo affected you as i might be there soon.
In the meantime, take care and good luck. Hbunnie
You might find it helpful to talk over some of your concerns with one of our helpliners. They can offer practical information and emotional support. They will be open again as normal tomorrow; 9-5 on weekdays and 10-2 on Saturdays. The number is 0808 800 6000
Very best wishes