Welcome to the BCC forum. I hope you will find lots of information and support here from fellow members.
Very best wishes
This is my first visit to the site, have found it interesting to read of other folks problems. I had double mastectomy 2010 with secondary on my liver.Had all the chemo etc then onto herseptin,which was good, reduced the liver problem to a minimum. Unfortunately a very large lump appeared on my chest next to my sternum so a course of Tomotherapy was the next step, I found it very tiring but managed to get through in the finish. Following this a course of Lapatanib and Capasitin was the next step, unfortunately not done much to help. I am now waiting for a new drug (don't no what its called!) am going to be a guinea's pig! IIn the mean time I am terribly out of breath and have an indentation on my chest like a volcano!Dare I say my faith has helped me a tremendous amount stay positive and at 74 I guess I amdoing ok. I would like to know if anyone else out there has had simular problems with the breathlessness. Kath.
I have had secondary bone mets since last August initially in left hip & pelvis area. Recent bone scan showed some spread to right hip & pelvis area. As treatment plan was needed to be revised a CT Scan was carried out, the results showed no spread to the three common areas brain, liver, lungs but it did show mass in the soft tissue area near my heart. My doctors were unable to tell me a great deal & the treatment prescribed involved only my symptomatic areas. They are unsure if the tumour near my heart is malignant or benign as they openly admit this is not something they have seen before- which is where you guys all come in, have any of you ever experienced or heard of a tumour in this area before? The not knowing & feeling alone with this quiet scary ! Thank you
Hi Janey, I am not surprised that you feel alone and scared with your diagnosis. I have been around hospitals and breast cancer for 24 years now and have never heard of the type of tumour you are describing. I wonder what part of the country you are in, and where you are being treated. I think as the doctors treating you have never come across this before it would be quite in order for you to seek a second opinion with an oncologist who is much more experienced. We are not allowed to mention names on here but I will pm (private message) you with a suggestion. In fact I would be surprised if your doctors don't suggest you do just this.
I have recently been diagnosed with SecondaryBreast cancer to my Vertebrae. I alsso showed a mass near my heart/breast area which I have been told is a Thymoma. They think I've probably had it for years and they are very rarely malignant. It is something to do with your immune system. Obviously I'm no doctor but hope that helps xx
I'm sorry to hear of the worry you are under at the moment, but am sure your fellow forum users will be along soon to offer some much needed support. In the meantime could I suggest you give our helpline team a call when lines are open again tomorrow, Monday? The helpline is open 9-5 weekdays and 10-2 Saturdays, the staff are here to support you. 0808 800 6000.