This is my first visit to the site, have found it interesting to read of other folks problems. I had double mastectomy 2010 with secondary on my liver.Had all the chemo etc then onto herseptin,which was good, reduced the liver problem to a minimum. Unfortunately a very large lump appeared on my chest next to my sternum so a course of Tomotherapy was the next step, I found it very tiring but managed to get through in the finish. Following this a course of Lapatanib and Capasitin was the next step, unfortunately not done much to help. I am now waiting for a new drug (don't no what its called!) am going to be a guinea's pig! IIn the mean time I am terribly out of breath and have an indentation on my chest like a volcano!Dare I say my faith has helped me a tremendous amount stay positive and at 74 I guess I amdoing ok. I would like to know if anyone else out there has had simular problems with the breathlessness. Kath.
@_1janey wrote:
I have had secondary bone mets since last August initially in left hip & pelvis area. Recent bone scan showed some spread to right hip & pelvis area. As treatment plan was needed to be revised a CT Scan was carried out, the results showed no spread to the three common areas brain, liver, lungs but it did show mass in the soft tissue area near my heart. My doctors were unable to tell me a great deal & the treatment prescribed involved only my symptomatic areas. They are unsure if the tumour near my heart is malignant or benign as they openly admit this is not something they have seen before- which is where you guys all come in, have any of you ever experienced or heard of a tumour in this area before? The not knowing & feeling alone with this quiet scary ! Thank you
h
