libby i think i have done that day into night thing too but do have the odd early night when im just so tired im in bed by midnight which is superdooper early for me.
hope you all have a better night tonight xxx
thought I would sleep tonight after 2 nights with no sleep,one worrying about op and one in hospital with no hope of sleep.Anyway have done first lot of post op exercises and will have to catch up on sleep later.can't go too far attached to drain for another 4 days.
Hope most of you had a good nights sleep.
Morning all. Went to bed very late and now awake and can't get back to sleep despite being really tired. Bah ...
Been awake since 0400 had 1st FEC yesterday so i,m lying here waiting for Se,s to start (i,m a half empty glass apparently) its prob just down to the fact that i drank loads yesterday and my bladder is screaming at me. Think i,ll have to get up and go but it feels cold out from under this duvet xx
Awake still and had NO sleep. I do have sleeping tablets but they don't seem to help, sometimes they do, other times they don't, same with Piriton.
I'll probably fall asleep about six but then I won't waken until eleven, I so wish I could break this pattern. The last two nights I've managed to sleep ok (ish).
On a positive my wakefulness has allowed me to catch up with emails to friends. A negative is I won't see tomorrow morning.
I went for a good walk today and got lots of fresh air, thought it would help but alas, no!
I'm pleased no-one else is here, that you are all in the land of nod. I hope you're all having pleasant dreams.
I'll go back to bed now and try to get some kip.
Well its now 06.00 and i,ve been awake since 03.00 i am going to try and sleep again now, i think a sleeping tablet might have to be taken tonight Zombie comes to mind.
I'll join you tonight. I am a lifelong chonic insomniac. I usually don't bother going online in the middle of the night. I watch things on my little DVD player until it makes me doze off. When it doesn't I may resort to a sleeping pill or a wee shot of something relaxing around 40% proof. I had a decent sleep last night probably due to exhaustion so I might have known I would see the wee small hours today. I think my body has adjusted over the years and I can actually function not too badly on little sleep. My OH could sleep for Scotland but he obviously needs it more than me.
I am off now to watch more of my box set of "The Good Wife"
Libby I echo what Choccie says. Sometimes just knowing I have sleeping plls in the drawer helps me to relax and get to sleep
Could you ask your gp for something to help for a couple of nights help break the non-sleep cycle?
Oh Libby...............I hope you have managed to drop off by now, not sure what my excuse is apart from cramp again........same time, its as though my body is on auto timer as its the same time every night. To make matters worse, the remote for my bed was obviously not attatched properly and this beached whale had a hell of a job picking it up off the floor with a foot before I could move...... lucky it has a little guiding light so at least I can locate it..........
Sleep well hun
Why, oh why can't I sleep!
And where's the sleep fairy the lazy little imp? If I see her, which is doubtful - as I'm sure she's gone on strike- I'll catch her and imprison her for a couple of days, yeah I know selfish, but I NEED a good nights sleep, and I'll release her after her duties here are done and post her on to the next insomniac.
I hope no-one else visits this thread tonight, wishing everyone a sound and blissful sleep.
Going now to toss and turn for a couple of hours - no doubt I'll be back later.
My gp only too happy to give me low dose sleeping pills, but I only take them when I really need a nights sleep as they make me feel so drowsy the next day.
I have however found a natural remedy in boots called sleepeeze (their own make) and I find they help me to drift off.Come in 2 strengths as as I always wake up I take the low strength so I can take another to get back to sleep.They may not work for everyone and I did check with pharmacist they were ok to take with other pills.
I was prescribed night sedation by the on call oncology registrar when I had talked to the chemo sister about sleepless nights. Worth a try?
Aramid, you poor thing to have such unfeeling doctors. You could try a letter to the Head of the practice and Oncology Consultant to ask if the Chief Executive of the Trust amd Lead Clinician in the Cancer Patients partnership held the same views. The Cancer patient's survey has just come out and you could mention the fact that you will be expressing your concerns on that. It includes GPs practices. The Helpline has contact details of the best way put in a complaint. These views are NOT held by all.
I so hope you can get something, a local pharmacist might help. There are some mild tablets that are antihistamine based that can be bought over the counter.....Peter Rabbit ate lettuce which made him soporific!!!!
Tried and failed, again! I'm getting so fed up of not sleeping, I have no trouble sleeping from between 6.00am - 7.00am, but then I don't waken until around 11.00am or 12.00, not good as I miss most of the day which is OK when the weather's bad but once better weather is settled I'd like to be up earlier. It's so frustrating, before BC I wasn't a great sleeper but I did manage to get to sleep about 3.00am and if only I could again I'd feel so much better. I've tried counting sheep but I'm so agitated I lose the bl**dy sheep as can't concentrate on them.
aramis, poor you! I can understand GP's not wanting to dish out sleeping pills like smarties but you are only asking for a few, you'd think they could prescribe one or two without the fear of you becoming addicted. Have you tried Piriton which sometimes works for me, worth a try anyway.
I took a sleeping pill last night and still didn't sleep it was 5.00am last time I looked at the clock. I think I'll be resorting to a bottle of red wine in future if this insomnia carries on!
Lulu, good that your dau's appointment went OK, how would you feel if she decides not to be tested? I suppose the test can be left for a few years, can it? It's an awful situation as she may well prove negative which would mean lots of worry lifted, but if she's positive then that would add to the worry. I'm sorry you and she have to think about it. Lulu. On a lighter note, did you enjoy lunch with the Edinburgh ladies?
Ah well, I'll try to get some shuteye soon. I hope everyone else is having sweet dreams.
Believe me I have tried. I have been to see three different doctors in our Group Practise and I get the same response. They have all said they don't prescribe sleeping tablets even to Cancer patients because they become addictive. I have even told them that my cancer care nurse said it would help me over a difficult period...brick wall! They are more than happy to give me Mmirtazapine for depression on repeat prescription but a sleeping pill no way. I worry about taking the antidepressant dru gs because of all the other medication I need to take...surely a body can take only so much and the side effects to all the drugs are horrendous...chemo, Herceptin, hormone therapy, anti inflammatries and antidepressants... One nights sleep that's all I want!
Aramis why dont you go and see another Dr if there is one and tell him how you feel, (i think sometimes its easier to get methadone)i think we all cope better when we,ve had sleep as for your oncologist like you say he should try this ride ans see if he sleeps well, i dont intend taking it every night but its there if i do and lets face it sleeping tablets are no more addictive than some other drugs eg. Painkillers but they get dished out easily enough. X
I went to my doctors and asked for something to help me sleep and they refused on the grounds I could get hooked on sleeping pills... I only wanted one good nights sleep! They prescribed me an antidepressant which made me like a walking Zombie all day. My sleep pattern is nowhere near as bad as it was when I was first diagnosed. I worried for my family and for my handicapped daughter even more. I was even worse during Chemo and then I started to sleep a little better while I was on the antidepressants but like I say I was like a Zombie during the day...After taking Hormone Therapy your up all night with flushes and joint ache. Its hard to believe we'll ever get back into a 'normal' sleep pattern after this...My Oncologists said he can't understand why I can't sleep??? Perhaps he should change places with one of us for a week! x
Megamum fantastic you will be do much better for that good kip......taste in mouth is awful isn't it. I get it too, that is why I avoid them if I can, but sometimes sleep is more important than breakfast. It goes by about 10 hours after you have taken the.
Hi clare i was a bit wobbly but once i had a coffee and biscuit which i brought back to bed i was fine, i needed to sleep as tonight we are going on a sponsored "ghost" hunt to raise money for our local childrens hospice, yes we are mad i know but this was arranged before Bc. We will be out until the early hours.
Has anyone who has taken Zopiclone woke up with a strange taste in their mouth my hubby says it is a side effect.
So glad, megsmum that you got a good nights sleep, did you wake up with fuzzy head ? If not they are perfect for you, sometime they don't always work for me but I have other cotributing factors though..........Glad you were so proactive and got them there and then 🐵
Megamum did you get yourself sorted!!!! I wish something could sort me. I seem to have what I call a "power sleep" for and hour . I go to bed exhausted, fall asleep straight away and then waken up an hour later full of the joys of Spring but not tiredness or the ability to go back to sleep. So I have given it three hours now and it is past the time when I want to take a tablet....silly me. Tomorrow afternoon will be nap time I suppose.
Lulu are you nodding for once? Enjoy your day out with the girls.
Hey ladies appt went well with daughter. She's still not sure if she wants to be tested...l she doesn't want a blood test but they said they could offer her a mouthwash test so this gas made her more keen to have it than if it was a needle but shes still not really too sure.
Because of her MH problems I think the counsellor is a but wary too that it could make her feel worse and more depressed..... And she said she would think about what to if she tested positive only if she needed to.... So I think that he thinks she's not ready to be tested but will see how she feels about it over the next while till he sees her again.
Anyways I did have a good sleep last night.... think the pink fizzy stuff helped!
Have lunch with the Edinburgh breast buddies tomorrow so looking forward to that.
Hope you all get good sleeps tonight with or without sleeping tablets.
Here,s to a good night tonight I came away from Drs with Zopiclone, Iron tablets and a higher dose of Bp meds, my Bp is up surprise surprise,I wonder why that could be ha ha.
Don't suffer in silence.
Zopiclone 3.75mg. It's a sleeping tablet you can get from your doctor which helps to get you off to sleep and then your normal sleep pattern takes over.
I take them occasionally myself and also prescribe them to others as a nurse. Have a word. It can help to get you back into a normal rhythm.
I would go to the doc and ask for a sleeping, pill, I have tried a selection and they do work, I just have other symptoms that get in the way sometimes with them , so when I am awake, i'm awake. I fiddle on the computer a bit and then try again after a cup of T.
I hope you soon get sorted, there's nothing like listening to those who are snoring near us to put us in a bad mood for the morning.......
Morning to anyone who,s still awake I have forgot what its like to sleep all night since i was diagnosed 8 weeks ago, I am lying listening to my oh having a lovely sleep very jealous, I feel as if i,m in limbo at the moment 3 weeks post mx and have appt to see oncologist on the 7th to plan next step. I have found your posts very informative and helpful, and also inspirational. I have appt with Gp today as my sick note runs out and am toying with the idea of asking for a mild sedative but have never tried anything like this before although i have never had Bc before either. I just want to get back to some kind of normality if thats possible, and that involves sleeping more than a couple of hours. Sorry i,m rambling so will go make a warm drink have a cuddle off the dogs and try again xx
Unfortunately I am joining you all, well not if you have all managed to go to sleep, of course 🐵
I wanted to have a full night tonigh as I was exhausted after my visit to the hospice. I still have reservations about it, I really don't no why. I think its the worry of being apart from the kids.........no one apart from me drives and I know I have lots of friends to rely on but......
Mum was very enthusiastic about it all, it is a lovely place, I admit and I'm sure it would be lovely to stay there for respite but I know I would be fretting about when I would see Ashy and Jamie. I may go and visit as they run a lymphodema clinic, so may get some help there. I can also have a bath there they said, they have a very posh spa in outpatience, so anyone coming in for the day can use it as it has all the gadgets to get you in and out too. They also have nurses that visit and stay with you at home, so perhaps thats my option too. Its back to the scary bit I first spoke of and having to face it, which I thought I had once but finding it harder this second time. I suppose I have had so much happen these last few months, I don't want it to stop, slow down , perhaps LOL as I'm losing my spoons like they are going out of fashion.
I had a phone call from my cousin tonight. she has a few days off and wants to come down from yorkshire with her mum to see me next week. Really pleased with this news as I was worried I wouldn't see my aunt again (mums sister) whome I love dearly. I also spent many a happy times with my cousin too when we were in our 20's as she was a nurse in london and had lots of good parties :O)
Hope you are all bored to sleep by my ramblings..........
Libby I have the same thing he who is making slumbering noises next to me will be there till seven without a break in the breathing. I don't know why I waken after what I call my power hour. I go to bed and go to sleep really quickly, than about an hour later I am awake...grrrr.
The burglars came at about nine thirty in the evening. I had a really rotten cold and had been in bed , my husband came home to bed at six rather than go to a Rotary meeting because he had man flu!! It was March and a heavy wind warning had been given. I woke at nine thirty for a wee ( i had had my power hour) and put on the TV. At two I heard banging and thought it was a back gate. So I woke OH up and poor chap made him investigate. He came back to bed and told me it was the conservatory door banging then rolled over and started sleeping. I thought it wa odd but because of the gale force winds thought it might have happened somehow. The next morning my husband went downstairs , thought he had left the dirty foot marks all over the house and had breakfast. Then HSBC rang to say they had a fraudulent try to get cash from my debit card at midnight in Bristol. We live way out in the country in Bucks! We looked about then and lots of antiques and pictures had gone. They knew what they wanted, antique silver etc. they also took a couple of portible apple computers. They had cased the place I think. Three months later we got an e- mail from a girl in Latvia asking for passwords for the computer she had just bought!!! In August the Herts police stopped a van for light problems and it was filled with antiques etc. do they arrested them, they wrte from eastern europe. A hard disc from one of our computers was found at their home but not anything else. Guess what...they still haven't been locked up for human rights reasons!!! We were £18,000 short in goods. It is amazing how things you take for granted add up in value when counted en mass Luckily itnere wasn't anything of great sentimental value and we were well insured, all barring one silver dish that hadn't been down as named and was worth £4000. It was really big old and heavy. A bit like me.!!!
I was surprised how calm I felt. But at least I have less to polish. Every now and then I find something else that they must have taken D...m them. Christmas family photos helped with the claim because they showed what had been taken as did EBay for pricing!!! The house is like a Fort Knox now. Alarms, locks, chains and cameras.
Cackles, hope you are now in dreamland. I'm impressed to hear you've been cleaning silver, that is an awful job! I have very little now as got rid of most of it when we moved to an apartment about 9yrs ago, we now live a minimalistic lifestyle.......so easy! I kept only sentimental silver but it's in a cupboard.....out of sight out of mind. Our life is so easy now, no gardening so no backache, all wooden floors .......no hoovering, all modern fittings making daily cleaning a doddle. When we decided to downsize we were a tad apprehensive but we love the easy life now and wouldn't go back to our old house. I'm rambling and going off topic, sorry, just putting my thoughts in writing.
I do feel quite a lot better but still can't flipping sleep! I wish I could sleep like my OH who manages around 8hrs every night - I'm lucky if I get five. Soon I'll try some shuteye. I've been trawling ebay and Amazon, ordered some DKNY pyjamas from Amazon, they are same as a pair I have but different colour, I paid £55 for first pair (very comfortable) on sale at Amazon for £28........so a bargain I couldn't resist! As I was living in PJ's during chemo I bought loads of pairs, some from Primark which were very cheap and warm but I didn't find them comfy in bed....also got some in M&S but they weren't very warm, the DKNY ones are perfect. I really must stop trawling online shopping sites though as it's so easy to get carried away. I'm digressing again!
How awful to have been burgled, that's never happened to us apart from my younger daughter's bike being stolen from the garage, I'd have felt violated had my house been burgled. It's a big problem nowadays. A friend of ours was burgled and murdered a number of years ago.........so tragic, his wife and dau were tied up, very traumatic! The Police still haven't found the gang responsible, but they do seem to be closing in. I hope they nail them as his wife and dau deserve closure.
OK enough of my ramblings I'm going to try and sleep now.
I hope no-one turns up here tonight/morning, you all deserve to be having the sweetest of dreams.
Night night all.
Just wanted to add my best wishes for your daughter's appointment.
As she has mental health issues are there any support strategies offered for her to contact? Or is it just a case of 'get on with it?'
I use mental health services in my area except there are none!
And I'm too depressed to fight the system usually.....
So was immediately concerned for your daughter.
Do hope she can cope with this process. I know she has a great family network to help her but sometimes an independent listener can help so much.
Big hugs to you as you struggle on and to your daughter.
Allanaa, some people have problems from day one. I took Femars the original tablet for three months with absolutely no problems. Then after chemo and since December I had really bad knee and foot joint aches and stiffness. I had been put on the generic cheaper brand of Leterazole by Tena. I know it is the same drug as the Femara. . My knowledge as a cancer nurse specialist tells me there is no difference other than the non important base ingredients. I tell people all the time generic medication is the same as the original brand. BUT since I found an old packet of Femara and used that again this month as an experiment ( I remembered the lack of problems pre chemo) I am nearly pain and stiffness free. If doesn't make sense. It could be a coincidence, so I will take the Letrazole by Tena again when this months pack of the original is finished. If the discomfort comes back I have the problem of medical staff saying it should be the same and thinking to themselves I am imagining things.
So after that long and no doubt boring ramble ....the answer is hopefully you will be fine. Many ladies have few if any problems. Those that do of course post it on the Forums, and those that are ok do not because they have no need to..
Thanks ladies, not so worried now.
Ive just finished herceptin rather than chemo as that was last year, and herc doesnt affect blood count.
I have become attached to the line though, I understand where Cackles is coming from. I have very good veins but just stubbornly refused anyone accessing them, The doctor laughed at me when I told him I wont have chemo if i'm forced to have cannulas!
; But what is cheering me up is that this year, I'll be able to wear tops again which dont sit on my neck to hide the line.
I've just finished work (6pm-midnight) and I'm having a cuppa and I've cleaned out the hamster, I am almost becoming as nocturnal as she is.
Lulu, choccies always seem to end up on the rear, whether we eat them or sit on them 🙂
Best wishes to all the nocturnal readers, lurkers and posters
love Truddles xxx
sorry but no sure tips I just love horses and everyting connected with it. Have to settle for watching it on the tv for now (if the darn thing would work) as I am not able/allowed to ride for a while to come.
Does anybody has any idea if you get side effects from Femara how long it would take for them to appear? I have been on them for nearly a week now and nothing so far. Hope it will stay that way as I have enough bother with my still open wound. Earliest start for Rads will be April now for me. One step ahead and 2 back at present.
Alanaa and Cat xxx
Hello Lulu I am stalking you again. I totally agree with you re the Hickman removal it would be such a pain to need fluids or drugs just after it was taken out.
Trundles it might be worth asking if you can keep it for a few more weeks. Mine was removed four weeks after the last Tax and bloods were checked first to see if it was ok even then to do so. As I said before it really was a doddle. Even although they make a little nick it only needs a steristrip or two. I felt quite vulnerable without it, daft old bat that I am.
Lulu you really deserved the pink stuff ( lips being licked and throat like a desert) I would love your diuretics. My bendroflurazide is useless or perhaps I am in the renal dept or it could be the fluid is from over indulgence and I have a fatty liver. Not to fret every drop was fun!!
Majesty reading and not posting ....is that allowed ? I think not you lazy b......put fingers to keyboard!!!
Lulu it must be hard to worry about your daughter's reaction tomorrow or is it today. She is so lucky to have such an upbeat knowledgable Mum. Make sure you check your rear end before the appointment.!
Libby snap ..it must be the sun. I even cleaned the silver my most hated job . We were burgled a few years ago and one of my reactions was relief because I was going to clean the bits and pieces that day but hadn't. I hope the gut problems have gone for good....did you loose weight!
Alanaa have you got any good tips from the horses mouth!!
It is good to see Twinkle is sleeping for once.
Afraid I am not able to sleep once again so put another log on the fire and browsing the site as my satellite dish has got a problem and I don't fancy looking at a blank screen. Hopefully they will manage to fix it before Cheltenham starts in 2 weeks. I was supposed to go this year as a treat from my kids, but alas it is not ment to be. Well just have to aim at next year with a bit of luck.
Hope you all will get to sleep soon
Love Alanaa and Fat Cat xx
I've not been sleeping at all well, my tummy upset kept me up for most of the past few nights but as I felt so washed out I couldn't summon the enthusiasm to post. Today I've felt better and even done some energetic housework (dirty word), but it's knac*ered me so hope I sleep well tonight. We'll see!
It's been gorgeous weather, I've had the door open and all windows - so lovely to have fresh air enter the house. I'm feeling optimism in the air, wonderful.
Lulu, good for you celebrating with a glass of pink and choccies, I had to laugh at you sitting on a choc - waste of a choccie though! I do hope your daughter finds her genetic appointment OK, that she's not too upset. When will she have the brca test? It must be very worrying for her and you, the sooner she's tested the better, and hopefully she hasn't inherited it and can then be free of the worry.
Sleep well everyone, wishing you all pleasant dreams.
Hugs, Libby x
Maj it very weird because that is the main part of my job.... Completely different when the shoe is on the other foot and even worse when it's your 20 yr old daughter with learning disability and mental health problems.
Hope it makes sense to her.
Im up again. Have been having a few good nights but this last week up late most nights. Read all posts but have not been posting.
Lulu just want to say hope it goes well for your daughter. My friend is in the same position and is really worried for her daughter who is going soon to speak to those in the know.
Trundles I posted earlier today and my post was zapped into cyber space and I was so skunnered (Scottish word for peed off) I couldn't be assed rewriting it.
Anyway I'm getting my Hickman out on tues.... Was told that I would get local anaesthetic and then an incision and bit of digging about to get the cuff out.... I'm presuming it wouldnt be any worse than getting it put in.
What I am surprised is you getting your line out so soon after your last chemo.... Your still at risk of infection and neutropenia seprpsis for the next three weeks so having it removed so soon could mean any admission would require cannulation.... My onc said no removal until three weeks after last chemo just in case.
I know some units put lines in prior to chemo but if you had it put in for dodgy veins it might be better to hang on to it for another two to three weeks.
Btw mine was put in under local and although it wasn't fun it was ok-ish I just la-la-la-ed my way through it much to the amusement of he team looking after me.
Clare i just missed you as went to bed at 5.... As for the elephant legs iv been having that problem too.... But no special bed only a few pillows to rest my feet on at the other end to help drain the fluid.... and restarted my water tablet.... Managed to go from 10st 7 at the weekend to 9st 12 this morning.... Did this in reverse just before Christmas when I had to stop taking diuretics.... Doesn't help that I over done it at the weekend... Onward and upwards xxx
Today was my not having chemo today day... So been on pink fizz... And after eights but got a bit tipsy and sat on one which melted all over my bum and looks like I pooped my self.... Only smells and tastes nicer... (not that I have eaten poo!)
My daughter had genetic appt tomorrow she's pretty anxious but they aren't gonna take bloods just chat other aout her risk of inheriting my brca 2 gene and what that means to her.
Sleep well sleepless friends
Love lulu xxx
Truddles they had to catch me first but it was a doddle. really and truely no pain at all. Not even any sensation. Just the sting of the local. I really got to love the thing like you . I almost hated to see it go....mad mad mad woman!!
Hi I'm interrupting this thread with a daytime entry, so I do apologise!!
Cackles, I am also cowardly custard when it comes to cannulas, hence Ive had a Hickman line since Jan 2011, But final treatment yesterday, I'm booked in to have it removed next tuesday, And I'm so nervous about it!
Can anyone tell me what its like having them removed, I dont think I was so bad having it put in (under local) because I was in shock still from everything being thrown at me. The nurse told me they just pull it out like a wound drain, (yuk)
Please reassure me!! 😞
Lulu you must have unearthed it as soon as I decided to shut down the I-Pad and my body!! I am sure I was still roaming at three. There was a programme on Radio Four yesterday afternoon when I was driving back from Mothers. It was about the increase in the use of sleeping pills. The learned doctor waffled on about GPs overprescribing these and the type if people that took them. He was advocating they were no longer given out because it was proven people that took them died younger. Not once did he mention people with diseases like Breast Cancer newly diagnosed and undergoing treatment etc. as cause of this result. It reminded me of my G.Ps reluctant prescription of one packet.
Twinkie the learned Rev is so correct. I too now remember the FEC Flop about day three plus backache fom the injections. Brave you giving them to yourself. My husband attacked me with them. I had become a needle phobic after my first cannulation (four people tried very hard and failed) and resulting Hickman without sedation just local.I used to let students learn on my veins....but no longer. Cowardly custard that is me!
Woke early & after shuffling to the toilet and sorting out the various tablets that I need to take before & after breakfast though I'd just have a quick peak on here! I see you're awake Clare. Hope you managed some zzzz during the night!
Hopefully you are back in La La land and fast asleep again...........I think I may try in a while but am catching up on the postings b4 hand.
Some of the pain people are living through sounds a nightmare, I was in that place when first diagnosed but so thankful it has all but gone now after radiotherapy and massage. To have elephant legs and back pain too, not sure I would be so happy go lucky at this time, Sending hugs and luv to all who are at that place now, thinking of you x
Catch u up mayb on a few minutes 🐵
Wonder where this thread had gotten buried.... Thought I'd unearth it again seeing as I'm doing the u all night thing.
Think I slept too much yesterday so now having an awake night to make up for it.
Hello to any other night owls out there