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Urgent referral? Worried sick

24 REPLIES 24
Lola65
Member

Re: Urgent referral? Worried sick

Hi Netballnut,

Good luck for tomorrow.

One thing I couldn't have done without is a copy of the pathology report on the biopsy. Your nurse may go through this with you, but I felt far more in control of my situation by taking it home and going through it in fine detail - over and over until I understood every word. I know some people are happier to bury their heads, but I honestly felt it helped me enormously.

xxx
poemsgalore
Member

Re: Urgent referral? Worried sick

Axila is the armpit, you said your lump was on the edge of you breast, close to the armpit. As for questions, ask anything that is worrying you. Will you need surgery, and if so what type of surgery might you need. If surgery is necessary, they might do a sentinal node biopsy (snb) which will be done while you are under the anaesthetic so you won't feel anything. I won't go into detail about these things until you get your results and know what you are dealing with. Small steps. Good luck for tomorrow.

Big Hugs
pg xxx
Netballnut
Member

Re: Urgent referral? Worried sick

Thank you pg, my husband is coming with me. What questions do I need to ask? I'm really worried that they still won't be able to tell me anything! Am I right in thinking that sometimes people have more than one biopsy? My mammogram is completely clear but my little lump is being classed as an axilla breast lump x
poemsgalore
Member

Re: Urgent referral? Worried sick

Hi Netballnut

Definitely DO NOT Google.
I think you will certainly be given some answers on Wednesday, so very good luck for then. I was lucky in that when I went for mammo, scan and biopsy, the doc doing biopsy said she wasn't happy with the way one of the nodes looked and biopsied that too, so I knew then I had cancer. When I went for results, they assigned me a Breast Care Nurse who took us into a side room afterwards to explain more simply what the doc had said, and I was given a box of booklets and leaflets to bring home with me. Doc also discussed any future surgery with me at that meeting, I didn't have to give an immediate answer but knew what I wanted to do anyway so told him. Write a list of questions down that you would like to ask the doc or nurse, and make sure you have someone with you in case you forget anything that you were told.
Again, good luck and big hugs.
pg xx
Netballnut
Member

Re: Urgent referral? Worried sick

Apologies everyone, I have been trying to post for a few days but not sure what to say!! I had the core biopsy taken last Wednesday and I am going back this Wednesday for results (I really hope we get some answers this week). I am feeling remarkably calm, not sure that this feeling will stay with me until Wednesday. What are the chances that we will still be left with no definitive answers? I have been stupidly been trying to find out what large nuclei in cells might be, I have given up "googling" and have decided to take each day one at a time.
This forum has been a life line, thank you x
poemsgalore
Member

Re: Urgent referral? Worried sick

Hi Netballnut

The waiting around can drive you nuts. I know it's hard, but try not to worry too much. Just take each day as it comes. I found the waiting easier to bear if I counted each one off, and told myself 'only 7 days to go' then 'only 6 days' etc. As Mary Grace said, try and fill your time with things you enjoy doing, anything that takes your mind off your situation, even if only for a few hours at a time.

Hoping for a good outcome for you, hugs
pg xxx
Netballnut
Member

Re: Urgent referral? Worried sick

Well we are still left in the great unknown!! FNA results showed abnormal cells, large nuclei. Have to have core biopsy next Wednesday and have an appointment the following Wednesday to get results. I am going out of my mind.
Mary_grace
Member

Re: Urgent referral? Worried sick

Hi Netballnut, I have had both outcomes, a biopsy of a lump which turned out to be fibrous thickening and nothing to worry about and a biopsy of a lump which turned out to be a (very small) cancer). Both times I wasn't given much indication of what they expected, just that it needed a biopsy and I wouldn't know until the results, so I wouldn't say you can read either way that it is good or bad news from whether they said or did anything. Sometimes people are warned that they think it IS something or even that it is unlikely to be something, but neither may turn out to be the case.
This waiting part stinks, and it is only natural to start trying to anticipate what they might find based on how they behaved today but the best thing, if at all possible, is to keep yourself busy doing things you enjoy with the people you love and try not to think about it more than you have to.

Sending hugs xx

Cheryl17
Member

Re: Urgent referral? Worried sick

Sorry netballnut, the waiting is the worst. When I had my biopsies, ultra and FNA I had to return 4 days later,theytold me I was not to worry, but no more info. I was diagnosed with multi site DCIS and have jjust had Mx and recon. On my return for the results they were very knowledgable and helpful and a detailed diagnosis and next stage treatment plan all ready to go and things moved quickly. try and chill until Wednesday fingers crossed for good news xxxxxxx big hugs Cheryl xxx
cornishgirl
Member

Re: Urgent referral? Worried sick

Hi Netballnut, so sorry you couldnt get any definate answers today ,like Lola65 above says they should normaly give you an idea if they think something may look suspicious or not, however without the path result of the FNA they cant realy give you a definate answer .It is the pits waiting but good that it is only for 2 days, (know that proberly seems like a lifetime right now so massive big hugs (((((0))))) to you) did they give you any idea of what they though ? Try to keep busy if you can and do some nice things to try and help keep your mind occupied till wednesday, not easy i know. Keeping everything crossed that all will come back ok , the waiting and not knowing is realy the worst bit.
Deep breaths, Linda x
Lola65
Member

Re: Urgent referral? Worried sick

Hi Netballnut,
I'm very surprised the consultant didn't tell you what her thoughts are after the mammogram and ultrasound - they are supposed to, even if it is "worrying" as mine called it. They can't say what the FNA results are until the pathologist has looked at the samples under the microscope. When you go on Wednesday you must ask, and also insist on a copy of the lab report. You can then take this home and go through it with a fine tooth comb, and if you don't understand some of the jargon and abbreviations, someone on here may help, but your nurse will definitely help.

The waiting is the worst xxx
Netballnut
Member

Re: Urgent referral? Worried sick

Well, still none the wiser!!? Consultant and nurse were both lovely. Had an ultra sound, a FNA and a mammogram. Have to go back on Wednesday for results, two more sleepless nights.
Can anyone shed any light on what I might be told on Wednesday?
Thanks everyone for your messages, they really do help x
Cheryl17
Member

Re: Urgent referral? Worried sick

Good luck for tomorrow netballNut. I will be thinking of you xxxxxxxxxx
Mary_grace
Member

Re: Urgent referral? Worried sick

Oh dear, I remember that horrible worry so clearly. Having tests and waiting for results really is the pits 😞 Thinking about you and have everything crossed for It to be one of the 9/10 which are benign. I had a number of cysts which were pea shaped lumps exactly as you describe and are benign.

Unfortunately down the line I also had breast cancer, but can I just say that the odds really are more towards the former, and, even if it does turn out to be something, if it is pea shaped, you have caught it early and early diagnosis makes breast cancer very treatable. I felt as though the bottom had fallen out of my world when I was diagnosed, as you say, it is easy to panic and fear the worst, but a day surgery and some radiotherapy later, two years down the line, I am fine and getting on with my life happily.
Got everything crossed xx

Netballnut
Member

Re: Urgent referral? Worried sick

Thanks ladies, I am really really struggling to hold it together today, keep bursting into tears, so not my normal self. My poor husband must think I've gone mad.
Will post again tomorrow to keep you wondeful people updated, thanks again xxx
Dzyre
Member

Re: Urgent referral? Worried sick

Good luck thoughts and prayers are with you
Love
Sandra
xxx
poemsgalore
Member

Re: Urgent referral? Worried sick

Hi Netballnut,
Very good luck for tomorrow, hoping for a good result for you.
Hugs pg xxx
cornishgirl
Member

Re: Urgent referral? Worried sick

Good luck for tomorrow Netballut, thinking of you and keeping everything crossed for a good result.
Linda x
Netballnut
Member

Re: Urgent referral? Worried sick

Thank you for your responses. I am trying so hard to carry on as "normal". It's reassuring to know that I'm not being neurotic. I just wish I could stop shaking. It's good to know what tests maybe carried out on Monday (only two more sleepless nights), not sure that my hospital does tests on same day as a receptionist I spoke to seems to think my initial consultation won't be very long???
Going to try and enjoy my weekend with my beautiful children, thanks again for your encouraging words. This forum allows me to breathe properly whilst I'm emerged in it xxx
RoadRunner
Member

Re: Urgent referral? Worried sick

Don't worry about it being an urgent referral - that is standard practice. You are supposed to be seen within two weeks. It doesn't mean you have cancer. Only 1 in 10 lumps turn out to be cancerous.

cornishgirl
Member

Re: Urgent referral? Worried sick

Hi Netballnut, So sorry you have this worry but good to hear that you have a quick appoinment at the breast clinic for monday,the waiting is always the worst bit as everyone will tell you but please try and remember that 9 out of 10 lumps are benign thankfully and are not cancer so try not worry to much just yet (easier said than done though i know) .
Like all the other ladies above have said ,when you get to the breast clinic you will usealy have a triple assessment, this is normaly a Mammo,Ultrasound and if nessessary a biopsy. Am not sure if your hospital is a one stop clinic but if so you will normaly get your results the same day.
When i was first Dx in 2007 i was given a 4 hr appointment at the breast clinic, where i was taken straight for some mammogram views, followed by an ultrasound and then a FNA (fine needle biopsy} this was followed by a Core Biopsy , i was given a local anasetic for the core biopsies so didnt feel a thing . after this i was asked to wait in the waiting room for 45 minutes for my results . About 30 mins later i was called in to see the breast consultant and BCN where i was given my results ,unfortunately for me i was told that i had grade 3 breast cancer, the rest of the results ,type,size (although they gave me an approx size) hormone status ,her2 status ect cant be accurately told to you untill after surgery with the final path report.
If your hospital is also a one stop clinic which quite a few are nowadays you will normaly get your result the same day and not have to wait or go back later for them the following week as some ladies do. Luckily after Dx things moved very quickly for me and i had my surgery 5 days later ,so while a huge shock it was very quick and at least i didnt have the extra worry of waiting for my results to come back.

BCC have a publicaton "Your breast clinic appointment" which you might find helfull so ive put the link below for you,hope it helps

http://www2.breastcancercare.org.uk/publications/worried-about-breast-cancer/referral-breast-clinic-bcc70

Good luck with your appointment on Monday, hoepfully you wont be needing to join us on here ,but if you do there are lots of wondefull ladies on BCC to give you lots of help and support along the way.
Keeping everything crossed for you ,please let us know how you get on.
Big Hugs, Linda x
Lola65
Member

Re: Urgent referral? Worried sick

Hi Netballnut,
You will find all the staff at the breast clinic are wonderful.They are all specially trained and will look after you. I imagine you will get what they call the "triple assessment". This is a mammogram (X-Ray) to see if they can see the lump, plus an ultrasound scan as described by Poemsgalore, and maybe a biopsy on the lump itself and/or on the armpit nodes with a local anaesthetic.

None of these are painful at all, and the staff will answer any questions you have. You should be told the size of the lump, and whether it is "worrying" or "nothing". If it is "worrying" they will do all they can to explain why etc. They won't be able to tell you if it is an invasive tumour or not - only a biopsy result can tell you that for certain and you will have to wait about a week for any biopsy results. If the scan shows abnormalities in the armpit nodes, they will tell you and will do a separate biopsy -again painless.

Please do take your husband with you. You will need his support, and he should be included in any of this. It is so easy for us to forget our men, but it's their problem almost as much as ours. Also, he may have questions of his own to ask, and 4 ears are better than 2 for listening to what is being said to you - and remembering afterwards!

Good luck - it may be nothing at all. Deep breaths and keep busy. Let us know how you get on. xxxxx
Cheryl17
Member

Re: Urgent referral? Worried sick

Hi there, what an excellent account by poemsgalore, my experince was very similar with the exception of thE biopsy. I didn't,t have a lump my mammogram showed small white dots, they called them calcifications. My biopsies were taken whilst my boob was in the mammogram machine. Thepinching of the machine was a little uncomfortable mainly due to the time, approximately 30 mins but Local anaesthetic given and then the biopsiestaken, about 10 that did not hurt. The following day I was a little bruised and took paracetamol. The radiologist, doctor and staff were all very pleasant and really explained at each stage what they were doing and why. They were very reassuring. Mine did turn out to be multi site DCIS and resulted in a mastectomy anreconstruction 13 days ago. Please, please do not worry, I know that is easier said then done, remember that a lot of lumps turn out to be harmless and if your lump turns out to be something more sinister then you are in the right place. Don't be tempted to google there are a lot of websites that are either out of date or just contain wronginformation, the ladies on this forum are fantastic and will give you realinformation. I will check back next week for your update in the meantime please feel free to bombard us with any questions that you think about. Hugs being sent to you xxxxxx
poemsgalore
Member

Re: Urgent referral? Worried sick

Hi Netballnut

So sorry you are having a worrying time right now. Not knowing is agony. I can only tell you my experience. A nurse practioner examined me manually first, both breasts, although only one had a lump in it. We had a little chat about my other health problems and what meds I was taking. I found it easier to type out a list, as there are so many I usually forget a couple of them. Then I had a mammogram,again both breasts. Then a doctor took me to an examining room and scanned the affected breast, it's the same kind of scan they give pregnant women. I could see the screen all the time. While having the scan, the doctor did a biopsy. I had a local anaesthetic before doing it, so it didn't hurt. Then she saw a suspicious looking node, so biopsied that too. The anaesthetic stung for a second, but the biopsy didn't hurt. The nurse put dressings on where the biopsy had been taken from and I went home. I didn't have any pain after biopsy, but if I had I would have taken paracetemol to relieve it. A week later I went back for my results. Of course if you have a mammagram and scan, they might say you don't need a biopsy as it might be harmless. But if it proves to be bc, be assured that not only will the staff look after you well, there will be plenty of support on here for you.
Good luck for next Monday.
pg xx
Netballnut
Member

Urgent referral? Worried sick

Found a pea sized lump on the edge of my right breast, on the edge of my armpit (doctor referred to it as axillary breast tissue). Have an appointment for next Monday at breast clinic, I am absolutely petrified. I am finding myself unable to sleep, unable to eat basically a wreck!!! I think it's fantastic that I have an urgent referral only a week between seeing my gp and seeing a specialist but I am also finding this slightly daunting. Can anyone advise me what to expect at this initial consultation? My husband is coming with me as I am in such a state of panic (I am normally very level headed but I am really struggling to keep things in some sort of perspective). Any feed back would be greatly appreciated.