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Very Worried person

34 REPLIES 34
poppyjasper
Member

Re: Very Worried person

Hi Alison, so sorry to read your bad news. I hope your MRI goes well and there is nothing else going on too. My thoughts are with you

Lynnette xx

skimum
Member

Re: Very Worried person

Hi Alison,
Sorry to hear of your diagnosis, as Mal said we've all been there and know exactly how you're feeling. I also agree with trying not to look to far into the future, one step at a time, one hurdle at a time is far more manageable.
It might not seem like it now but take it from me you will get through this, I'm now 2 1/2 years from diagnosis, treatment behind me (except for arimidex) and feeling well.
You'll find lots of support and information here.
Keep in touch.
Claire x

Sam_BCC
Member

Re: Very Worried person

Hi Alison

I am sorry to read of your diagnosis. As well as the support you are receiving from your fellow forum users you may find BCC's resource pack helpful, it has been designed for those newly diagnosed. The pack is free of charge as are all our publications. If you would like a copy just follow the link below:

http://www.breastcancercare.org.uk//content.php?page_id=7514

I hope you find this helpful.

Kind regards

Sam
BCC Facilitator

maltomlin
Member

Re: Very Worried person

Hi Alison

So so sorry you've had this news. We've all been there and know exactly how you are feeling. For the first couple of months I just felt as though my old life had gone and someone had pressed the pause button. It takes a while to get your head round it but you do.

I was diagnosed in May with grade 3 and 3 out of 24 nodes affected. I had WLE in June and started chemo in July. I've now had 5 out of 8.

The best advice I can give you is to cross one bridge at a time. Don't think about all the what ifs or what could bes. Just deal with the first hurdle and then go on to the next. Your first hurdle is the MRI. Try to keep everything else out of your mind otherwise you scare yourself silly and it seems a very long dark tunnel.

Whatever your treatment plan turns out to be, you'll cope with it. WLE, chemo - neither are anywhere near as bad as you imagine.

I can actually look forward again now. And you will too. The time does pass very quickly - honestly.

Please keep us posted.

Mal

dotchas
Member

Re: Very Worried person

Ali,
Sorry to hear your news,you will be devastated.But at least you know what you are dealing with and can get on and get rid of the b*stard!
My tumours had not been invited and were not welcome to stay!
1.3 cm is very small, so take comfort from that.
I hope the MRI doesn't find anything else,but if theres anything else going on ,its best to find it now.
Big hugs to you,take care

Love
Dot
xx

alison40
Member

Re: Very Worried person

Well it is offical I have breast cancer grade 2 don't know what stage yet have to have MRI because of concern over some swelling, booked in for lumpectomy on the 31 October 2008 with a view to this changing if the MRI shows anything else, hoptfully this won't. From my consultants words he does not think it is anything suspicious but he also said that he could not feel anything last week.

It is ductal cancer. Completely gutted, exhausted, worried the lump is 1.3 cm as confirmed.

Anyone out there need some guidance.

Ali

alison40
Member

Re: Very Worried person

Thanks to everyone for the kind messages just broken down feeling very frightened now and thinking the worst just like nature taught us.

Cant sleep even though have taken 2 sleeping tablets, I know I am not the only one in this position but it feels like it.

Keeping reading the internet not the right thing to do.

Ali xx

tracylouisa
Member

Re: Very Worried person

good luck both of you hope you get the result that you want. best of luck.

Tracy x x

Weetricia1
Member

Re: Very Worried person

Good Luck tomorrow Alison.I hope you get the right result!
Tricia

poppyjasper
Member

Re: Very Worried person

Fingers crossed for both of you x I hope you both get good news

Nixxy23
Member

Re: Very Worried person

Hi Alison

Snap! I have my appt at 10am tomorrow to get the results of my biopsy that I had last Wednesday...I am with you on everything you have said especially the just existing bit

I will have my fingers and toes and even eyes crossed for you!, I hope you get good news

Nicole
xxx

alison40
Member

Re: Very Worried person

Well tomorrow is D day get the results of my biopsy not look forward to it but never mind I hope for the obvious result but am prepared for the worst. The past week has been a nightmare, my breast is all bruised due to the biopsy but that will go away.

Don't know what to expect but I will find out, it was horrible knowing that the my consultants team would be discussing my case whatever has shown up.

Well I will let you all know tomorrw, am looking forward to a very sleepless night thankgod job for sky thats all I can say.

alison40
Member

Re: Very Worried person

I hate the waiting it is as though i am just existing, but trying to keep positive for my girls who I have not told as yet because one of their friends mum died of bc last year, any advice on how to tell them if the news is the worse case scenario. Went to the drs yesterday and he was very surprised that I have not seen a breast nurse who I could talk to. I find this site veery helpful and supportive and will continue with the updates. Husband took me out today for change of scenery and we spent a lovely afternoon down the coast but then back to reality and the mind starts to wander again. It has been the long 3 days, I have been back to work by seem to be working on auto pilot, my GP has offered to sign me off but this is something that I will need after wednesday. Its ironic that my company is doing a fund raising week for mcmillan cancer charity.

I will keep everyone updated.

Many thanks for the support. Sorry for the spelling I have just taken a strong sleeping tablet to get me through the night.

MadMum
Member

Re: Very Worried person

Hi Alison

Sorry to hear that you didn't get the aswer you were hoping for - fingers crossed for Wednesday. Do just keep in mind that you will deal with whatever happens - I know that sounds easy to say, but it is true - we all do just deal with things and the waiting is usually the worst. Take care and keep in touch

Andy

walton
Member

Re: Very Worried person

Hi Allison,Sorry you have ad to come on here.My lump was very small 6mm after WLE,also only grade 1,was dx on 9th July had opp on 23rd July,Just had radiotherapy over a period of 3wks,and a drug called Arimodex over 5yrs.It was all very doable,and I foud the waiting the worst part off it,I'm 51.Now I don't have to go back to hospital for another 6wks,hopefully back at work in the near future.Hope everything goes ok for you xxx

bablicious
Member

Re: Very Worried person

hi allison i had similar experience to you my nipple was inverting very sore and hot however after doc told me it was probably cancer 2 core biopsys later i have been told chronic inflamation not cancer so try not to worry untill results come through easier said than done i know but i will be thinking of you bablicious

SueEllen
Member

Re: Very Worried person

Hi Alison, I'm so sorry about your results today. I really hope next Wednesday's results are more hopeful and they can operate and get rid of it without any spread. I have my appointment tomorrow morning and mine is also an all in one clinic. Every morning I've woken up hoping it's gone but unfortunately it's still there. Good luck to you for next week.

Sam_BCC
Member

Re: Very Worried person

Hi Alison

As Cathy has mentioned above, if you do need additional support and someone to talk to just give the BCC helpline a call. Here you will be able to share your fears and concerns with one of our trained members of staff. The number is free phone 0808 800 6000 and the line is open Monday to Friday 9am to 5pm and Saturdays 9am to 2pm.

I hope this helps.

Kind regards

Sam
BCC Facilitator

skimum
Member

Re: Very Worried person

Hi Alison,
I think Cathy's suggestion of ringing the helpline is a very good one.

The way they usually test for lymph node involvement is to take a sample of them or test one node (the sentinel node) to see if there is any sign of cancer. This is usually done when the lump is removed.

Cathy is right, the biopsy results will give them a good idea of whether there is likely to be any spread to lymph nodes i.e the smaller the lump, and the slower it grows the less likely it is to have spread.

I recommend you take some regular painkillers, the sort you'd normally take for a headache, as it can be very sore after a biopsy.
Take care.
Claire x

ForumMember
Member

Re: Very Worried person

I dont think they know for sure about spread to nodes until they look at the nodes after surgery. However, the grade, stage and type of tumour which the biopsy should show, gives them a good idea whether it is likely to have spread. I didnt even have any of my nodes tested because I had such an early stage, they were pretty sure it hadnt spread. Why dont you ring the nurses on the helpline as they will know about these things?

ForumMember
Member

Re: Very Worried person

Hi Alison

I am so sorry about your news. As Claire says, if the consultant thought it was cancer, then it is likely to be malignant, not benign. However horrible the word cancer sounds to you just now, please don't jump the gun thinking the very worst. Most of us on the forum have had breast cancer, with a varying range of treatments etc. It may not have spread at all, or even if it has, it is still very treatable in most cases. This is the very worst time for you now. The waiting for the results. I can remember that time clearly. I had almost planned my funeral by the time I got the results, only to be told that although I had cancer, it was early and very treatable. Don't go second guessing what type or grade you may have either as that will drive you mad.

Let us know how you get on

Cathy
x

alison40
Member

Re: Very Worried person

How will they know if it has spread to the lymph nodes?

I am pretty sure that nothing showed on the ultra sound if they can see.

Very sore at the moment and again another waiting game.

skimum
Member

Re: Very Worried person

Hi Alison,
Sorry things didn't go quite as you'd hoped.
I don't mean to sound pessimistic but in my experience if the doctor actually said he thinks it's a cancerous (malignant) lump then he must be pretty sure, they don't say that sort of thing without very good reason.
I know what you're feeling right now, your head will be all over the place with all the 'what ifs' but try not to think too far ahead, first you have to get the results of the biopsy to be sure of the diagnosis.
IF the biopsy results show breast cancer then the smaller the lump the more likely it has been discovered early and therefor the less likely it is to have spread to lymph nodes or anywhere else. Treatment will depend on the size, grade, lymph node involvement and several other factors.
To tell you to try not to worry is pointless, you can't help it but you'll find lots of support on here........we know exactly how you're feeling.
Thinking of you.
Claire x

alison40
Member

Re: Very Worried person

Just been to the hospital and have had the works unfortunately ultra sound found a lump 1.3 cm had biopsy and result onf Wednesday. The dr is pretty sure that it is a small cancerous lump, does this mean that it can be malignant or benign or just malignant. I bit disappoint with the consultant, after examination he said cant feel any thing but will send you for a mammogram, and ultra sound, when i look at the card it also requests a biopsy with the works query bbc, infection or cancer. I come out from the consultants office on a high only to be knocked down.

Also is the case even though the lump is small it could still have spread and what are the likely options open regarding treatment.

skimum
Member

Re: Very Worried person

Hi Alison,
Really glad you got an appointment so quickly, and even better that it has a same day results service.......waiting and wondering is the pits.
Please let us know how you got on, I'll be keeping my fingers crossed.
Claire x

Heidi1
Member

Re: Very Worried person

Hi there,

Fingers crossed for you, I'm on lump 4 now, last 3 benign, and last one I had a discharge (though not green) and it was still benign, in the process of getting this one looked at now. There's lots of hope whatever the outcome, hope yours is good news. My son is 4 so I know what you mean about worrying about the little ones, I think its only natural to worry, but dont make yourself worse in the process!!

Heidi x

kharga
Member

Re: Very Worried person

Good luck for tomorrow!

galen
Member

Re: Very Worried person

hi alison
just to say good luck for tommorow
love galen x

Cat
Member

Re: Very Worried person

Alison - best of luck tomorrow. Getting the lump checked out is absolutely the best thing you can do.

alison40
Member

Re: Very Worried person

Thank you everyone for your support. I had a call from the hospital and they have offered me an appointment for tomorrw @ 9.45 and lucky enough this is a clinic where you get the results of any tests same day.

The breast is very painful and getting worse.

Hopefully everything will be okay will update tomorrow after visit.

Alloway
Member

Re: Very Worried person

Hi Alison,

I had this too (years before BC). Sounds like Duct Ecstasia ( a benign thing), not sure of spelling. Sometimes I felt I just had to squeeze to get the stuff out and it was more comfortable after it. Google it and have a read, but your story is so similar to what I experienced. No connection between that and BC.
Good luck at the clinic and let us know how you get on.

Best wishes.

MadMum
Member

Re: Very Worried person

Hi Alison

I'm no expert - in fact this is my first post and I'm looking on this site becuase I have a lump and am waiting to see my GP next week - but I would say that 90% of lumps are benign and, usually, lumps that hurt are NOT cancer - I'm panicking because mine is just a general thickening and no other symptoms, which can be abit more troubelsome, but probably won't be. So you'll probably be absolutely fine and if there is another outcome, at least you're now in the system and on the way to being treated,. Keep positive and try not to let it overwhelm you. I know - I have 2 real littlies - 3 and 2 - so the thought of anything going wrong at this point is absolutely terrifying. But it almost certainly WON'T and anything that does go wrong you will deal with, honest!!!

Take care and chin up

Andy

SueEllen
Member

Re: Very Worried person

Hi Alison, I recently found a lump too and following the referral from my GP on Friday got a call today and am being seen on Thursday. Keep in your mind most lumps are benign, that's what I'm trying to do, but it's damn scary no matter what anyone tells you isn't it? Good luck and hope all goes well for you.

ForumMember
Member

Re: Very Worried person

Hi Alison and welcome to the forums,

You might find it helpful to read the BCC booklet about being referred to a breast clinic. It can be found by following the link below:-

http://www.breastcancercare.org.uk//docs/referral_redesign__final_14_feb_08_0.pdf

Please do call the helpline if you feel it would help to talk things through with someone in confidence, the line is open Mon-Fri 9am-5pm and Sat 9am-2pm on 0808 800 6000.

Best wishes
Lucy

alison40
Member

Very Worried person

I recent found a lump in my breast, it is mishapen, hot and I had a little bit of green discharge, the feeling I keep getting is like the let down reflex feeling when breastfeeding. It is constantly painful. I have been to my drs and they have referred me to the breast clinic as per their protocol. I have been assured that I will be seen within two weeks. As per normal the drs are non commital. I am trying to be open minded but like everything you imagine the worst and think about the children. Please Please help.