73.2K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Very tired after finishing radiotherapy

53 REPLIES 53
dean2309
Member

Re: Very tired after finishing radiotherapy

Thanks for reply katy felt ok today but not 100 percent still tired im finished with cream as skin is fine now.get panic attacks worried ill never get back to my old self hooefully i will x hope your well today
dean2309
Member

Re: Very tired after finishing radiotherapy

Thanks for reply ive been for acupunture for sweats today hope it works and hope you feel well soon x
riversidedawn
Member

Re: Very tired after finishing radiotherapy

Hi Angela. I'm getting there, three years from diagnosis! Had near enough a year of treatment, followed by a recovery year with some ad hoc casual work (plus 2 puppies!!) Been back to work for a year. Still having to pace myself, plan rest breaks daily and especially on holidays. It's something which will always be niggling I'm the back of your mind matter if looa
dean2309
Member

Re: Very tired after finishing radiotherapy

Same as me i feel weak and low hope your well soon x angela
riversidedawn
Member

Re: Very tired after finishing radiotherapy

I finished rads in July. Had mx sept 14, chemo from nov-april, recon in may! Still absolutely shattered, can't imagine getting back to work. Had first post dx mammogram this week now waiting on results.

I read that it takes the same time to recover as the treatment took - or about a year!
familytree
Member

Re: Very tired after finishing radiotherapy

Your welcome. It's a question I asked myself because I'm that tired it scared me! Hey we've had cancer, we're bound to worry and be a bit paranoid about our health. Here's to getting our energy back! Lol x
Susan Dodds
Member

Re: Very tired after finishing radiotherapy

Thanks Lorna for your reassuring words xx

familytree
Member

Re: Very tired after finishing radiotherapy

Very normal! Still shattered myself and I finished in August. Body still affected, repair happening too then there's just the psychological side now your through treatment....all takes it out of you. Sleep when you can and give yourself a few months to heal and get over it all. Love Lorna x
Susan Dodds
Member

Re: Very tired after finishing radiotherapy

I started taking Tamoxifen on 13th July and had 4 weeks of radiotherapy in August. I felt fine apart from weight gain and night sweats but the last couple of weeks I have felt really tired. Is this normal ? 

familytree
Member

Re: Very tired after finishing radiotherapy

After chemo rads is a doddle honestly. Once you get used to lying back you can relax. I imagine your chemo is still active so would not worry about the gap in between but if you need assurance call this helpline or your bc nurse. Wishing you well Love Lorna x
ellyjane73
Member

Re: Very tired after finishing radiotherapy

I am about to start on 15 sessions over three weeks and after months of chemo, this is the one I'm dreading most, mainly because I am still weak and tired. I have read that after a single mastectomy radiation should have been sooner to be effective so am concerned this won't even work

familytree
Member

Re: Very tired after finishing radiotherapy

Anne I finished 3 weeks ago and felt/feel the same. I agree with the others, its normal I think. It's like going it alone after all the appointments/treatment when we initially thought we might die from this to just coming to the end of treatment, it's like 'what'! the security blanket has gone. everyone thinks great, you're out the other side so you start to put pressure on yourself that you should be feeling so much better. People/family move on so grateful it's over so it's hard to still talk negatively to them when they are relived. We don't want to drag them down again. But I'm sorry, it's far from over! we have looked mortality in the eye and it takes some adjusting to... far more than the outside world allows.

Sending love 

Lorna x

Anz
Member

Re: Very tired after finishing radiotherapy

Started feeling very emotional around session 7 of 15. Felt like bursting into tears on my way out of hospital and cried every night when I had to look at my disfigured breast. Still hate it and cry sometimes. Finished rads 2 weeks ago

Guest user
Not applicable

Re: Very tired after finishing radiotherapy

Hi Ann (and everyone else!)
Sorry you are feeling a little bit down in the dumps!
I believe that is very common to feel quite down at the end of active treatment and can take time to adjust. The last few months have been so busy and appointments etc day after day, I think it maybe only at the finish line that all your emotions and feelings catch up with you and realisation of what you have been through hits you.
I have 4 more sessions of radiotherapy to go and so many people have said to me that's great, all over and done with, you can get back to normal, done and dusted etc etc etc but I know, for me, that is not the case. I know they are being kind but unless you have been there you cannot imagine what it is like. I think we need to give ourselves time to adjust to what has happened to us, recover physically and get our 'heads around it all'. Your BC nurse or the helpline here should be able to put you in touch with a counsellor to talk to if you think that may help. A lady I spoke to, who had BC some years ago, said it was the best thing she did and felt it really helped her move on, in fact she changed many things in her life, for the better, including her career!! I won't hesitate to be put in touch with someone if I feel it may help.
Be kind to yourself, have lots of treats and plan to do something, in the very near future,you always wanted to do and never got round to doing before BC.
Hope you soon feel more positive and energetic and I am sure once your skin heals you will feel much brighter.
Southcoastbeachgirl
Member

Re: Very tired after finishing radiotherapy

Hello again Ann replied earlier to your other post and have now seen this one. Sending you a big cyber hug and thinking of you. I am still in the thick of it but think we spend so much mental & physical energy just getting through each stage of treatment that coming to the end must be quite a strange and vulnerable place. Look after yourself and keep in touch with everyone on here. It really helps to read a friendly post and know that others are rooting for you. we all do our best to get on with life and be positive but sometimes that can feel a lot more difficult. Take care of you. X
Ann_W
Member

Re: Very tired after finishing radiotherapy

Well 15 of 15 rads over and done with yesterday. Handed in my 'Modesty Vest' and was given a tube of Flamazine for my very red and burning right booby told to keep taking codeine and paracetemol for the pain and would get another appointment with Onc in 4 weeks time Thank you & goodbye. I thought they would have had a bit more of a chat with me but no I am finished.
15days treatment, 1550mile total travelling and 5yrs of letrozole to come. I suppose I should feel lucky really but I dont I just feel very very down.
Sorry rant over
Ann W
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi all, just letting you know had my last of fifteen treatments on Wednesday. Relieved it is all done with now and for me it is just Anastrozole for next five years ! The rad treatment was OK once you get into the 'swing' of it . The review was helpful to talk things through and ask questions. My second review which should have been on Monday last, was cancelled due to,"staffing issues" the receptionist said. When I asked if I was going to have one fitted in before I finished , i was asked if I had any problems!! .
As I did not, I told them it would be OK not to have it, as I could tell they were very busy. Lukily I have had little skin problems it has just started today being a bit itchy but other than that the skin is good. Will just keep up with my regime no soap, aqueous twice a day and putting Germolene lightly on sore spots and a very small area under my breast and that seems to work! .
I started to feel,whacked last Thursday and it comes over me in waves If am finding if I pace myself it gets better. I was told the last rad keeps working for two weeks and that I may feel unwell for 4-6 weeks. Trouble is I am looking well and I don't think,people have any idea how rough I am feeling at times. Being positive though, as another stage of the treatment path completed. Been advised to get some 50 factor sun cream as even in a V neck,T shirt might get problems from being outside in sun.
Hope you all doing well,also. Katy.
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi Moonbeam, Jen and Pat. 12 done 3 to go and feel absolutely whacked all of a sudden . Was reasonably fine until yesterday then waves of feeling weak and drained . To-day it's worse and realise probably overdone things as I was feeling reasonably physically well. The whole experience might be the reason though as being reminded everday you have had cancer and some of the cells might still be there and are getting blasted is quite sobering!.
Anyway staying positive and on right side of finishing treatment now and can't wait for normal days without the journey to the oncology unit. However, the care has been very good and staff ( so many different radiographers) are very clever and skilled in what they do.
My skin is doing well on the aqueous cream being applied twice daily. Taking vit c tab plus multivitamin/ mineral and eating lots of fresh veg and fruit so keeping fingers crossed it stays that way. Hope you all doing well . Katy.
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi Trisha, thanks for tips. Feel OK today but was wide awake at 4am but went back about 7 and slept for another two hours!. Been tired today but that is from poor sleep. Anyway 8 down 7 to go! Not bad this pm and had a bit if a giggle with the ' regulars'. Same men and women there each night and we are all becoming 'pals' , sharing notes with each other about how we are all tolerating or not the dreaded 'treatment'. Useful to know that tears are common. Sounds like you did well regarding your skin. More or less doing same routine but using very little soap ( Dove) as could not find baby soap anywhere. Will get some simple soap also if you recommend it . Take care, Katy.
Trisha_51
Member

Re: Very tired after finishing radiotherapy

Hi Katykookabura, I finished rads (15) last Friday and found that I did feel low and tearful during the last week-could have been getting up at "stupid o'clock" or the travelling which got to me as well. I washed with "simple soap" and just used copious amounts of aqueous cream 2 or 3 times a day letting the air get to my boobs as much as possible. At my last session the radiologist said my skin looked amazing and to just carry on whatever it was I'd been doing. So far I'm just looking a little sun kissed and a bit itchy - the radiologist suggested 1 piriton tablet during the day would help and boob is a bit tender, hoping things stay the same but I'm led to believe they may get wose in the next week or so. Good luck with your rads. Pat.
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi Moonbeam and everyone. Well, had my rad review last night and it was useful. Good explanation of what rads I am getting and the diamodes( proper name for those wires they have been putting on my breast during treatment). Seems they do measure strength of dose. Seems I have two beams at a higher strength ,one at a lower dose. Clever stuff! Told the radiographer that I could feel the beam last Friday as it hurt through one of the diamodes. She said she could not disagree that rad treatment sometimes might be felt and felt my fibromyalgia was probably the reason.
Anyway, when I went through after the review for treatment they said I had to have one of the diamodes on again but would take it off when they had tested the dose rather than leave it on for the whole treatment. Sure enough, only on for a couple of minutes then they removed it and then finished the treatment, which was so much better.
Was tearful though there last night and don't really know why. I had another reflexology session earlier in the day which picked up my"ailments" , so maybe that caused it or maybe it was after having a break at the weekend being back at the oncology unit reinforced I have cancer?. Anyway hopefully today it will be better. Has anyone else got low or tearful during rad treatment?.
Started to get tender in breast but skin still OK so now unchanged to soft bra ( sports type) and using the vest tops . Aqueous cream twice a day although the radiographer said that research has shown that if your skin is going to break down it will wether you use cream or not. Hope you all are bearing up ( no pun intended!) .Katy.
Guest user
Not applicable

Re: Very tired after finishing radiotherapy

Thankyou Moonbeam1 for the info - very useful!
Jen x
Guest user
Not applicable

Re: Very tired after finishing radiotherapy

Hi Jenanne
I also had radio to the collar bone area, masectomy and chemo, I finished radio just over three weeks ago now and have not had any problems with either a cough or a sore throat (don't know how soon a cough would show up), I would advise turning your head well away - I believe this is what helped me but I'm not planning another go to find out what happens if I don't turn my head as much... I must admit I fully expected to get a nice sore throat but... Nothing 🙂 I didn't have any radio to the underarm area as all the nodes had been removed. Oh and on a slight side note as your having your collar bone area done put the cream on the top half of your back as well, all the way to the middle, after a few days you'll start to see the area you need to put cream on but I was missing it slightly a first - this is where the radio leaves the body For the collar bone area. The radio to the chest does not go through the body.

Hi Katy, sorry to hear you had rough 'treat' if it helps they only put those nodes on me the once so hopefully you won't need to go through that again, but I would mention it to them on Monday.

Hope everyone has a good weekend, I'm planning some shopping therapy 🙂
Moonbeam
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi Lady Julie welcome to the site. Moonbeam , I have to say I actually had a bit of a rough time tonight whilst having rad treatment. I actually had a sharp pain sensation as they gave me my treatment. They put these wire connectors on my breast ( 4 ) and when they switched on the machine on I could feel it and it was not pleasant. It only lasted a minute to two but made me screw my face up! I have fibromyalgia and I reckon that is why I can feel it. I shall phone nurses and ask them as it was a bit of a shock!!!! More ways than one. I am OK now and at least have week end off to recover.
Lady Julie, I had same surgery and also having 15 rad treatments. Just had number 6 tonight . As Moonbeam says it is amazing how quickly things go by. I was diagnosed Wednesday before Christmas and can' t believe how the time has gone by and the quickness of the treatment plan I have received. But those waiting bits in between are hard. Once you know where you are and what is happening it gets easier but with those wobble moments hitting every so often. I am on anastrozole and seems daunting that has to be for five years! However I am reassured that I shall be checked as necessary . As someone else said somewhere on this site it is like a chronic illness and life goes on around it.
Had two more comments today how well I look and as Moonbeam says you cuss under your breath but somehow keep smiling!! Best wishes and take care everyone. Katy.
Guest user
Not applicable

Re: Very tired after finishing radiotherapy

I start 15 rads on Mon.29th April. Had right m/x end of November, my last TCH chemo yesterday. The lymph node area above the collar bone will be treated and the scar area. I don't know whether the underarm area is blasted also? Has anyone else had similar treatment to me prior to rads? Apparently one S/E of collar bone treatment is a cough - am a bit concerned about chest wall, lung effects.
Jenx
LadyJulie
Member

Re: Very tired after finishing radiotherapy

Hi Moonbeam, Thanks for your lovely response and reassurance, including the bit on Tamoxifen. Sounds like you've had a lot of treatment one way and another - I hope it's all going well for you.
Your 'expletive' really made me laugh. I know exactly how you feel.
Julie
Guest user
Not applicable

Re: Very tired after finishing radiotherapy

Hi Lady Julie,You'll find the rads are the easy bit after everything else we have gone through, they don't take long (10 mins max) and you won't feel a thing, so try not to worry to much, it's amazing how quick those few weeks go once you get started. I had 25 and went red, oh and itchy - that was the worst side effect I got though. Think it was about a week after finishing that my skin started peeling, that's stopped now, not sure if people normally get that on a shorter course? I know if you have 15 the dose is probably a bit higher but if it does happen don't worry just keep putting the cream on, my skin looks much better now, still a bit of a funny colour though 🙂

Your quite in titled to the odd wobble don't think many of us have none, it's very normal 🙂 I've been on the Tamoxifen for over 2 months now and not had any hot flushes that I've noticed (although I do get a bit warm sometimes but normally put that down to the room temp though) so you may be lucky and not get any!

As for looking well, I got people all through chemo telling me how well I looked! I suppose it's better than looking ill but I always felt like saying ...but I feel like #%^* always resisted somehow lol

Hope your treatment goes smoothly for you
Moonbeam
LadyJulie
Member

Re: Very tired after finishing radiotherapy

Hi Ladies,
I am interested in your experience and comments on this thread as am due to start rads soon following a WLE and SNB on 28 Feb. I have an appt with the Onc on Wednesday 10 April which I guess will be just a chat about the procedure, mitigation of potential SEs and how many sessions I will be having which my BC has already said is likely to be 15.
I still cant believe I have (had hopefully) cancer and everything's all happened so quickly since my diagnosis a few weeks ago. I've coped well with the surgery, am now on Tamoxifen - 11 days in and waiting for the hot flushes and pains to kick in! - and thought the rads bit would be ok, simply the next stage to get through. But now my appointment is getting closer, I'm starting to feel anxious.
Like you said Katy, people who are just finding out that I am being treated for BC cannot believe it as they say I look so well and am just getting on with life as normally as I can.
But every now and again, especially when a procedure or result is imminent I start to wobble.........................
Hugs to all
Julie xx
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Thanks Moonbeam this has given me some idea what to expect, though I appreciate everyone is affected differently. Sounds like you have good employers. I am technically retired but now run small business and I am a local councillor up for election on May 2nd!!! However my husband is doing a lot re business which helps even though he has another job and my mates on the council are helping doing alot although I have been out delivering newsletters this week and have some canvassing to do tomorrow.
I have cancelled everything else and will not be doing much next week . One of the radiographers told me very sternly last week I had to slow down! The weird thing with having breast cancer is I have felt OK most of the time as it is the procedures that make you feel poorly. When I looked at what they had done after surgery it really hit me I had cancer . That happened again last week when I had first rad treatment as i had recovered from two ops and felt fine except for odd pain twinge. So this last week has been psychologically tough again and whilst I am getting used to rad treatment my head is all over the place again. Keeping busy does help. Ironically people I know are just finding out (I knew just before Christmas) and they can't believe it as I look so well they say! Hey oh onwards and upwards ! Katykookabura
Guest user
Not applicable

Re: Very tired after finishing radiotherapy

Hi Katykookabura, i've actually finished now, I had 25 with some sort of wax thing on the scar 3 times a week, I did carry on working throughout the radio however I gave myself two weeks off work after to try and recover from everything, still felt tired at the end of the two weeks however due to people losing jobs at work I thought I'd better be seen. They have been great though and whilst I thought I was going back full time (after 9 months of bits here and there) they had already decided that I would start back doing just 5 hours a day for the first two weeks and then 6 hours a day for the 2 weeks after that, then maybe full time. However I've ony just got to the end of week one and am very glad they gave me reduced hours.

Think the tiredness hit me the most about a week after treatment finished so if you are at work at this point you may want to do less hours, it's now 3 weeks after finishing radio and I'm still tired, I can feel fine but then it'll feel like somebody has pulled the power plug and I have no back up battery. So yes it will catch up with you however it doesn't affect everyone the same way, just take it easy and give your body time to recover.

My chest did look rather interesting by the end of treatment, but after three weeks it's looking pretty good all things considered 🙂

Hope the rest of your treatments are in a warmer room!

Moonbeam
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi Moonbeam, useful suggestion regarding gowns. I actually invested no pun intended, in some pretty vests with soft bra supports in them as Chascat suggested. Much easier than stood there fiddling with a bra and keeps you covered until you get on the table then you can slide it up before you get off. Tonight I was glad of it as it was freezing in the treatment room so much so I was shivering and told the radiographer as I was worried I was moving!! My poor breast looks like a battle map with crosses and dots all over it besides two scars!! .
How many treatments have you had ? I feel ok at the moment but been warned to take it easy it we will catch up,with me. Must be hard having to go to work as well. Are they sympathetic about it with you?. Take care, Katykookabura .
Guest user
Not applicable

Re: Very tired after finishing radiotherapy

Hi everyone, just thought I'd let you know that the hospital I was at let me take a gown home while having the radio so I always had one, and that way most of the time they only got to see what they needed, it might be worth asking.

As for the tiredness, really feeling it at the minute, thought I was going to go back to work full time this week but by 2pm I'm just staring at the PC trying to figure out what I'm doing lol hoping it improves quickly 🙂

Take care everyone
Moonbeam
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi Bethany300808, hope you and JCJ don't mind me coming in here? Just you sound really in a bad place just now. Sounds like you have had a tough time too? Certainly a lot of radiotherapy , how is it going? Why don't you call the Breast care nurses on this site on the helpline? . Talking to others does help and what you are feeling is normal. I agree no one really understands how you feel. Some do not know what to say. I had a lot of sympathy and get well cards , etc ,when i first told people, but not heard from many since to see how I am coping even with the rad treatment! . I found this site useful as it seems a lot of us experience similar problems . My husband has been great but again I have to remind him I am not superwoman and he cannot expect everything to run smoothly in houses, etc! I keep forgetting things and get distracted easily. It is a big emotional roller coaster ride and you need to find some release that suits you. I still have a little cry at times but also keep thinking I am getting treatment and so far so good. One step at a time. find out as much as you can, as it helps you gain some control of the situation. it is a awful disease and mentally as physically it takes its toll. Try to be positive , easier said than done I know. Take care, Katykookabura.
Guest user
Not applicable

Re: Very tired after finishing radiotherapy

Dear JCJ ,
Probably got your name wrong let me know if I have. I had a lumpectomy off my left breast and some removed from ny right breast in November 2012 plus they removed some lymph nodes as well. I am on week 2 after having a 15 week radiotherapy session. I read your message and am glad to know it does get better. The emotional rollercoaster I am on is terrible. I stopped councelling before my radiotherapy but need it now. I am 47 married with two teenage children. Nobody seems to understand how I feel my hubby included we are all finding it tough. Just want to be me again and want to be free of cancer. Sue.
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi Patty and all. Second encounter was not so bad. Different raidiographers one male, one female and they were more aware of me being topless and the blue paper sheet was used more quickly . Machine I was told was the same although they did slightly different procedure and used electrodes fixing them around my breast. I was told it was another form of measuring. All over much quicker this time. Did have a fourty min delay though. Advise you to take book and bottle of water with you as I had to wait in an interior waiting area were there wasn't nothing but a loo. Again had sharp pains in breast as I left and drove home. I do have fibromyalgia so that maybe why would be interested to hear if none else has glad these pains immediately after the treatment. I had my reflexology session about three hours before treatment it was good and the therapist picked up al my aches and pains!!! Anyway feel better about it today so wish you well with yours. When does yours start Patty? .
Patty_P
Member

Re: Very tired after finishing radiotherapy

Hi there, I have nothing to offer to you in starting your tretment, but want you to know I will be thinking about you.
I also am very fair and freckled with highly sensitive skin, I will be starting within the next month myself. I am told I have 25 rounds of treatment.Think positive, my experience so far on this journey is attitiude is key! God bless
Sincerely
Patty P
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi all, will mention today why no modesty tops. My sister is an OT and was surprised that I had to strip off without a top or gown at least until I got onto the table. When I got 'marked up' I had a gown so don't know why it was like this,. I did get a bit of blue paper over me once they had measured me and I was left on my own!! I think if it had been all female staff I probably would not have been so self conscious but as Lozzarooney1 says these blokes looking at you why you reveal all was a bit off putting. I suspect because they are doing out all the time they just see you as a measurement exercise!!! . Anyway will wear a vest top today and ask if I can just slide it down once on table or if they have a gown. Trouble is I have had both my knees replaced and the last one was just a year ago so it takes some getting on and off the table so it is not as if I can get up quick escape!! Anyway another day!!
Lozzarooney1
Member

Re: Very tired after finishing radiotherapy

Ooh we were given ordinary hospital gowns or you could use the blue paper sheets they put on the screens to cover your front from screen to table!
Haven't ever seen the modesty tops you describe 😞 good idea tho - especially having 3 YOUNG men staring down at me whilst I'm in the 'pin-up' position!!
Just 3 sessions left - woop woop!! Skin starting to break down though... 😞
hugs to everyone
Lozza x
chascat
Member

Re: Very tired after finishing radiotherapy

They didn't use modesty tops at my hospital, but I used to keep a camisole or vest on until I was on the table and then pull it down, might be an option.

Guest user
Not applicable

Re: Very tired after finishing radiotherapy

Glad it all went straightforward Katy. Did you get a 'modesty' top to wear on the table (flaps come down to just expose the bits needed.. covering your abdomen so you dont feel so exposed). If not ask for one. My rads finished over a week ago and skin is back to normal (got just a bit shiny/red towards the end). I felt needle like pains in the breast too and felt like it had been 'cooked' (which it effectively had) but not unbearable. You will soon be through it all.
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi everyone, had first rad treatment today. Surprised how anxious I got about it .Anyway was well looked after had 3 radiographers measuring me up two men one lady and there was no space for modestly!! Was not quite prepared to bare all then just hop on the machine! Machines were scary but fascinating and it all seems very clever and i just thought how thankful I live in a country where we can get such treatment. Went then and booked reflexology sessions provided by our unit and then went over to the Maggie centre. There are only a few of them in UK but numbers are increasing . Anyone interested google to see if you have one near you and how they were formed. Nice welcome had a cuppa to try and calm myself down and booked in for some sessions they provide also . Well first one over just 14 to go! I know many say you can't feel anything but when I got up from table, dressed then walked back to reception I could feel a sensation in my breast . Had a few sharp pains but all OK now. Amazing what a G&T can do !!.
Kayteeb53
Member

Re: Very tired after finishing radiotherapy

Hi all, I was recommended Xclair cream, you can get it on prescription and its specifically for radiation dermatitis. Tubes are quite small so ask for a couple of tubes. Hope this helps
kay x
Kirstie
Member

Re: Very tired after finishing radiotherapy

Hi everyone
Kateykookabura I finished rads a week ago I am also fair skinned had 15 also on anastrozole. I had to have that booster pad on too and was told it usually followed the worst skin reaction but I have been fine used E45 night and morning.Good Luck tomorrow.
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Hi Chascat,
Sounds like you have been through a tough time. I will just stick to aqueous cream I think then? Just had radiographer on phone to re-arrange time tomorrow as they just realised the machine I was booked for would not be strong enough as I have big boobs!! She said they needed to ensure more even dose could be given?? Anyway, all will be revealed tomorrow( more ways than one!) just want to get started now! Our oncology unit have offered me six pamper sessions for things like facials, massage, reflexology, etc. So taking advantage of those to get me through next four weeks!! Take care.
chascat
Member

Re: Very tired after finishing radiotherapy

I used aquaeous cream, nothing else, I understand if you use Aloe Vera is has to be pure 100%. I didn't really have any side effects at the time, I did feel tired but nothing too bad, I had a 4 year old daughter and my treatment was during the summer holidays last year, I had to look after her every day, take her to the zoo, park etc and I managed, I'm not saying that at times I didn't struggle because I did, I also had chemo prior to rads too, but it was ok. A couple of months after I finished rads my breast swelled up, I had an ultrasound and was told it was odema caused by the radio, can last years apparently, so although one breast is at least one cup size bigger than the other, it's not sore or painful in any way x

Katykookabura
Member

Re: Very tired after finishing radiotherapy

Thanks Chascat reassuring to hear that. Did you use any special creams or just aqueous cream? My daughter has heard ALoe Vera gel is good . Also did you any side effects ?
chascat
Member

Re: Very tired after finishing radiotherapy

Katykookabura, I'm fair skinned and burn easily in the sun, I thought i'd suffer terribly during rads (20) but I didn't. My skin barely changed colour and and I had no soreness whatsoever, you might be fine x

Katykookabura
Member

Re: Very tired after finishing radiotherapy

Grateful for any more tips on how to look after oneself whilst having radiotherapy. Start Tuesday and I am fair skinned with freckles so have to be careful of sun. Having 15 treatments and on Anastrozole also.
Katykookabura
Member

Re: Very tired after finishing radiotherapy

Grateful for any more tips on how to look after oneself whilst having radiotherapy. Start Tuesday and I am fair skinned with freckles so have to be careful of sun. Having 15 treatments and on Anastrozoe also.
Guest user
Not applicable

Re: Very tired after finishing radiotherapy

Thank you all for your input. I was particularly interest in your comment JCJ as I never realised the tamoxifen could make you tired. I am also having anesthetics at least twice a year as I had bladder cancer three years ago and the treatment to keep it at bay didn't agree with me. so I suppose I am too impatient . I will take on board the need to do more walking and hopefully the weather will improve soon.