Hello , great to get a reply from you i thought there was nonoe out there
This is my third type of chemo attempt for origionally breast which now seems to like my pleura,bones and now scull and Dura in the brain
The tablets are by no means an easy optiion i had a very shivery and wierd night the firstdose i took and did feel quite sick
i now take ondansatron and dexamethasone an hour before i take them and that seems more comfortable
I have had no constipation but eat one prune a day goodness knows if it is helping but i am not constipated
They have absolutly drained me , no energy at all and now have had my dose increased but bloods have stayed good and they are happy to continue. There are reports of jaw pain on these tablets but i have so much pain around ear so not sure if i have had any or if or if it is scull mets
Not sure how ill i feel on them as i have so much else going on with breathlessness from pleural mets and deafness fron scull mets invading inner ear and balance loss but still coping looking after myself on my own with good old Tesco delivering goodies weekly and a cleaner
Where abouts are you i am in Exeter and have all my treatment at the RD and E Wonford sorry if it took a while to reply to you i have had intermittant internet but Virgin have sorted it now
