Hi I agree with you the the hardest thing about all of this is the waiting. I waited 2 weeks after my biopsies for results but then only a week and a bit for my op. I am now waiting another 2 weeks for the results from the op and praying that they will be good. I think I am so relieved that the op was okay so I am trying to stay in the day and not jump ahead. Also since this diagnosis EVERYTHING I read and see seems to be about BC! Or is it just me? I hope your wait is not much l9nger xx
Hi Ali 49. Hope everything goes well with your op tomorrow. The actual op is nothing to worry about and it's all over in the one day. I had no pain at all after mine and you are well looked after by everyone involved in the procedure.
i had my WLE in June and just started the first of 15 lots of radiotherapy on Thursday. I think what has annoyed me is that the first doctor at the hospital told me all the better facts about DCIS i.e it is not life threatening, is pre- cancerous, is non invasive and has a very good prognosis. What she omitted to say was even after it was removed it could return as DCIS or invasive ductal cancer and there were grades of low, intermediate and high which affected your risk of recurrence. After the WLE the consultant, who I had rarely met and who didn't perform the op, said " we got it in time" and handed me a short report with high grade DCIS on it but offered no explanation at all as to what high grade meant. I then was left to find out all about it myself.
What I'm trying to say is when the initial DCIS diagnosis was given to me I wish I had been given all the facts about this condition and not left to find them out for myself. I am grateful that my diagnosis was not worse and I realise that at the back of everyone's mind is the thought of recurrence but you just have not to stress about it and get on with life.
Best wishes for tomorrow and hope to hear all has gone well.
Does anyone who has had a WLE followed by radiotherapy for high grade DCIS think they might have opted for a mastectomy if they had known the recurrence risk was as high as 15% ( some reports say as high as 19% ) half of which could be invasive whereas with a mastectomy the risk of recurrence is as low as 2%? I know a WLE is given when the DCIS is small and is not widespread and the mastectomy has to be given for various other reasons and might be refused if the surgeon doesn't think it's necessary in your case. I think I would have preferred to have the different grades of DCIS explained to me and their prognosis when initially diagnosed instead of being led to believe DCIS was nothing much to worry about.