Wait time for WLE

[Rosemaryanne]

Hi! How's everyone doing? I'm booked in for 22nd Dec, can't wait to get it done. Apparently my lumps are in an awkward place so will need a "nip and tuck" (not my words) but since the naughty breast is the bigger one, I should end up more even than before. How good is that?!  I've been signed off work so tomorrow I get to see my 4-year-old grand-daughters sing in their nursery nativity play. Feeling very happy, hope everyone else is doing well. Rose xx

[maggie59]

Hi Rose

That is really annoying. Some of the appointment cards I have had have come through days after the event! You will probably get a letter tomorrow!

Fortunately I have known about the appointments through chasing by phone.

You would think in this age of technology that there would be a quicker, less unpredictable way than relying on the post, often second class!

Sorry you have to wait longer..

Maggie x

[Rosemaryanne]

Well, my wait just got longer. I had a message on the answerphone when I got in from work last night asking me to call my consultant's secretary. They were checking why I didn't turn up for my appointment yesterday morning. Thing is, I'd had no letter or call to tell me an appointment had been made, Booked in for next Tuesday instead. I am beyond frustrated now!

[Katherine62]

Hi Rosemaryanne

i think it is 'government targets' that cancer treatment must be within 31 days of diagnosis..... most of us seem to get a shorter date than that, so maybe they told you that just as standard advice.... hopefully you'll get an earlier date than that. Waiting is the worst, once you get started you'll feel so much better, promise

And yes, no-one here thinks anyone whines, even when we've got a LOT to whine about. We all know what it's like so go ahead and express yourself any old way!

hugs

Jane

[Jaqrl]

Hugs to you rosemaryanne, you're not whining at all.
Xx

[Rosemaryanne]

All best wishes for those who are undergoing surgery over the next couple of weeks. Hopefully my next post will be my own surgery date. I feel a bit left out and overlooked at the moment, my wait seems so long. Sorry for whining.

[Balli-Boo]

Thats great news. I think th 31 day is the standard maximum wait time. I think I read that somewhere in last couple of days. Good Luck.x

[Jaqrl]

Got date today, so sorry about whinging yesterday! 11th dec so feeling very lucky that it's not too long a wait. I have to say , been impressed with my nhs trust so far, hope it continues.

[Rosemaryanne]

Wise words, thank you. Like Jaqrl, patience is not one of my strengths, but I'm trying! Rose x

[Seabreeze]

Ladies,
I understand your feelings re limbo...if it helps at all try not to worry about not being able to commit to every social function....any reasonable person will understand, whether you've told them its a medical appointment, a referral, an op, (treatable) breast cancer or breast cancer. Personally I told all my closish friends by email or text just so I felt I had breathing space plus a bit of understanding re the journey ahead. I appreciate everyone is different but for me, a few months down the line, I know it was the right approach for me.
Hope you are all keeping it together most of the time, and able to talk to those close to you. We are all much stronger than we think!
X seabreeze

[Rosemaryanne]

Hi. That is JUST how I feel! Got an event planned for 6th Dec which should be safe, but I worry that those who don't know think I'm being funny with them with all the "maybe's" I'm having to come up with. Plus Christmas Day itself- if the op is, as loosely predicted, on 23rd Dec, it's not going to be easy. I have twin 4 year old grand-daughters, and I shall hate missing out on grandma cuddles. I love getting mixed up in messy play with them, they won't understand why I have to hold back. But that would be the same whenever the op takes place, I suppose. I agree- the diagnosis is a fact and I'm dealing with that, but it would be so much easier if I could make definite plans around it. Being "in limbo" is proving the most stressful bit. Rose xx

[Jaqrl]

Thanks all for replies, just looks I just have to find some patience ( not my strong point). It's the not being able to plan that's driving mad more than the diagnosis if I'm honest, Decembers calender fills up fast as it .
Positive vibes to you all xx

[Rosemaryanne]

Seems like my local hospital isn't as quick or as informative as some.Three weeks from biopsies to diagnosis, another week for MRI - admittedly a week sooner than I was told it would be. Hopefully I'll get a surgery date soon. I heard from another woman in the area that it will be at least two weeks after my next appointment. I'm assuming there are others who are in more urgent need, which I'm happy to accept.Doesn't stop me from getting a wee bit impatient though. Target date of 23rd Dec is almost another 4 weeks, which at the moment feels like an eternity. Too much thinking time. But we have to stay positive and I am so grateful it was picked up early. Reading some of the stories on here makes me feel very lucky, and I wish you all the very best and a healthy start to 2015 xx

[Seabreeze]

Hi Jaqrl,
I was diagnosed in late spring and had a 4 week minus 2 days wait for op. They told me the date for the op immediately after they told me about my diagnosis.
Hope things go as well as possible for you Rosemaryanne, and Deedee. Ballyboo - hope your results are good.
Seabreeze (post op and post radio)

[Balli-Boo]

Hi

diagnosed 29.10.2014. Grade 2 and ductal invasive.

I was told at the same time that surgery appt was 12.11.2014.

I had a Wire guided local excision and sentinel node biopsy. 

My follow up appt is Friday so will know more then. 

[Jaqrl]

Thanks, I was hoping to get this done before christmas, maybe not then, did you have to wait long before you were given the date?

[Rosemaryanne]

Hi Jaqri. I was diagnosed on 18th Nov, and was told the target date for surgery is 23rd Dec. However they told me there would be a 2 week wait for the MRI and that came through within one week, so that may have brought it forward. Hopefully will get more definite information next week. So yes, a month+ seems about right xx

[deedee540]

Hi Jaqri and welcome. I was diagnosed with invasive lobular cancer on November 14th and having my WLE (or mastectomy depending on mri results which i get back tomorrow ) on December 4th which makes a wait of 20 days for me. Love and hugs to all, Dee

[Lucy_BCC]

Hi jaqrl, welcome to the BCC forums
Along with the shared support and experiences you will find here from your fellow users, our helpliners are on hand with further practical and emotional support. Lines are open 9-5 weekdays and 10-2 Saturdays on 0808 800 6000 so please feel free to call

Here's a link to further information and support ideas from BCC which I hope you will find helpful:

https://www.breastcancercare.org.uk/diagnosis

Take care
Lucy BCC

[Jaqrl]

Hi ladies ( and gents, don't want to be stereotypical!), diagnosed on Monday, invasive ductal. Been told up to 31 day wait for surgery. Just wondering on average how long people wait after diagnosis.
Stay strong everyone.