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Wait time for appointment

10 REPLIES 10
Atat
Member

Re: Wait time for appointment

Well, turned out that referral had gone missing!! In the end I had a 4 month wait to see the specialist in my area. Fortunately I was able to see someone in another county which meant I had a compression sleeve for my flight. Getting the right treatment since being diagnosed with BC has been a constant struggle.
Atat
Member

Re: Wait time for appointment

Thanks for this
Rattles
Member

Re: Wait time for appointment

Hi Atat,

 

I paid to see someone whilst I waited for NHS referral. Google Cancerkin, they are a London charity providing treatment. LSN produce leaflet of practitioners. I know its rubbish to have to pay and not right but my view was that I was the only one losing out by waiting. Macmillan may also be able to sign post you bas they have a service, just started near me.

 

Rattles, x

 

 

 

 

Atat
Member

Re: Wait time for appointment

Should have added that I live in a large county in the east of England and there is only 1 lymph nurse who is based 50 miles away. Guess where I live!!!
Atat
Member

Re: Wait time for appointment

Have tried that, but it's been a complete waste of time. She says they have no influence over them.
Atat
booksandwine
Member

Re: Wait time for appointment

Atat
Dam that's not good if you have the energy call your bc nurse to get it speeded up if not get someone else to call

I would hVe thought if an issue you'd wait two weeks at most

Best to you
Atat
Member

Re: Wait time for appointment

Apparent they are few and far between!!
JaneLinda
Member

Re: Wait time for appointment

Yes, in the arm that I had the Chemo, not the arm that my nodes were removed from surprisingly, so I am still having blood tests etc in the arm that may have lymphodema. My GP said chemotherapy can cause lymphodema. I'm wanting to see a lymphodema nurse to get advice on what to do.
Atat
Member

Re: Wait time for appointment

I doubt it somehow. Where do you have it in your arm
JaneLinda
Member

Re: Wait time for appointment

HI, I was referred last June and am still waiting for an appointment! Hope yours will be quicker! Best wishes.
Atat
Member

Wait time for appointment

Hi
How long do folk have to wait for lymphodema clinic appt?
I've been told it will be weeks, months. What is one supposed to do in meantime?