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Waiting for results worried sick

34 REPLIES 34
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Re: Waiting for results worried sick

Hi,
Don't know if I'm doing this right, its my first time on this site .....is anybody out there HER2+ & ER+?
I have grade 1 cancer, have had lumpectomy with clear margins, but cancer cells were found in the sentinel node, therefore all lymph nodes need to be removed. I'm very worried about the HER2+ because I belive its aggressive?
Is anybody else in the same situation?
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Re: Waiting for results worried sick

Yay! I've been soo worried about you!
Will let you know how I get on... PM me your e-mail if you want to stay in touch off the board 🙂
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Re: Waiting for results worried sick

Brilliant news! 🙂
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Re: Waiting for results worried sick

So after a horrendous day of waiting I finally got my results at six o'clock, i heard the wonderful word benign!!! I have fibrosclerosis adenosis, whatever that is! I just want to say what a wonderful page this is, it has helped me through all my worries, you ladies are all lovely, courageous people and I wish you all the best of luck!
Cath46 I will be popping back to check on your progress, fingers and toes crossed for you 🙂
Best wishes Suz xxx
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Re: Waiting for results worried sick

Thanks Cath, pretty sure I won't be getting much sleep tonight! 😞 I will post as soon as I know anything! Hope you're ok xxx
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Re: Waiting for results worried sick

I'll be thinking of you tomorrow + checking on here loads... everything crossed for good news... xxx
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Re: Waiting for results worried sick

Hi Ann,

Welcome to the BCC discussion forums where I am sure other forum users will be along soon to give you some much needed support. In the meantime if you would like to talk to someone in person then our helpline team are just a free phone call away, 0808 800 6000, lines are open now and until 5pm today (Mon-Fri 9-5 and Sat 10-2). They're here to support you through this.

Take care,

Jo, Facilitator

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Re: Waiting for results worried sick

I had wide excision and a sentinal node biopsy on the 6th and am still awaiting results and I dont think I can take much more of this waiting its really getting me down. After the op I wasnt too sore but now the one for the node biopsy is really sore and tender I'm taking codeine phosphate but not doing much good apart from makng me constipated. How long should it be before the pain eases off
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Re: Waiting for results worried sick

Cath,Glad you've got your appointment through, don't know about you but always think things feel worse at night, I can cope during the day but as soon as night draws in I start to crumble and my mind goes into overdrive! 😞 always here if u need to chat! Take care xxx
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Re: Waiting for results worried sick

Glad you've found some distractions 🙂 I've been awake since 4 this morning coz I'm worried as I'm convinced my lump has grown 😞 Roll on Weds when I can speak to the experts about it again!
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Re: Waiting for results worried sick

Hi Cath I'm not too sore got a lovely bruise though, was feeling a bit down but my friend soon dragged me out of it lol! How are you? Hope you are doing ok xxx
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Re: Waiting for results worried sick

How are you feeling today Suz? Hopefully less sore now... take care xx
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Re: Waiting for results worried sick

One hurdle out the way! At least you know have a better idea of what you are dealing with. With lots of displacement activity, the week will pass quickly. Keep at it!
Best wishes,
MM x
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Re: Waiting for results worried sick

At least that's over + done with, and tiny has to be good!
More waiting sucks though, keep your chin up hun xx
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Re: Waiting for results worried sick

Back from hospital, had a core biopsy, not a very nice experience! Got to wait til a week on Friday for results, more waiting :(! Apparently it's a very tiny lump, so I'm hopeful that if its anything bad it can be dealt with easily!! Xx
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Re: Waiting for results worried sick

Will have my fingers virtually crossed for you at 2.30 (I'll be cycling home then so better not cross them for real!)
I'm feeling tired and edgy and desperately wanting to get the whole thing over and done with but am not thinking about it all the time thankfully - my 9 year old daughter keeps me smiling 🙂
Thinking of you + sending positive vibes xx
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Re: Waiting for results worried sick

Thankyou Cath, appointments at 2.30pm, keep wishing this was all a bad dream! How are you feeling today?
will report back later xxx
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Re: Waiting for results worried sick

Thinking of you today Suz, what time is your appointment? PS I've found out C1 just means 'inadequate sample', its nothing to worry about 🙂
Let me know when you're back! xx
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Re: Waiting for results worried sick

I'd tell them everything, you never know what might be helpful. x
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Re: Waiting for results worried sick

Yes tell them if you think you can feel lumps
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Re: Waiting for results worried sick

Got my appointment through for this Thursday (14th) getting nervous and now I think I can feel tiny lumps in my armpit! 😞 should I mention this at the appointment? TIA XX
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Re: Waiting for results worried sick

Hi Suz71,
I have not had this classification myself, but I believe it means that they had an inadequate sample and therefore could not determine one way or the other. I would give the BCN a call and ask for clarification. It won't be a problem and they won't want you to live with unnecessary anxiety.
Never be afraid to ask for more information - the only stupid question is the unasked one (so they say!).
I hope you get a new appointment soon. Even if the results are not what you want, just remember that you are in the best place for treatment, and they don't hang about. I had three weeks from first mammogram to operation, (although I do believe this was filling a cancellation!)
Best wishes,
MM
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Re: Waiting for results worried sick

It is awful waiting for results - unfortunately it is something we all end up having to do and it very easy to let your imagination run away with you. Its good advice to keep busy - preferably doing things that absorb your mind. often the time in the "waiting room" can be extended by inconclusive results, which is a pain and prolongs the agony! It is no good saying don't worry because you will, but try not to let it consume your every waking moment. I am in the waiting room myself at the moment after several years, so I do know how you feel xx

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Re: Waiting for results worried sick

Hey, I didnt think of it like that, that's made me feel a bit more positive 🙂 it's such a roller coaster, fingers crossed we both get good results! Xx
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Re: Waiting for results worried sick

No, that's awful! 😞 I hope they can fit you in soon... I keep telling myself that if it was likely to be bad they'd see you sooner, so hopefully the fact that we're having to wait is a good thing 🙂 xx
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Re: Waiting for results worried sick

Hi cath46, it is definitely the waiting that's the most horrible, I was supposed to be seeing the specialist on Monday but that's now cancelled and I've to wait for another biopsy appointment! I'm so worried its just awful! Hope all is ok with your results! Best wishes xx
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Re: Waiting for results worried sick

Just had a call from bcn saying my results have come back as inconclusive and is classed as C1! so have to now wait for core biopsy! Does this mean its probably cancer? I'm even more scared now! Anyone else had this? 😞 x
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Re: Waiting for results worried sick

Just wanted to say I'm in a similar situation to you (details in Waiting for Wednesday if you're interested) and wanted to let you know I'm hating the wait for information too - they tell you so little and tell you to wait, it's sooo hard!
Fingers crossed everything turns out well for you xx
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Re: Waiting for results worried sick

Just had a call from bcn saying my results have come back as inconclusive and is classed as C1! so have to now wait for core biopsy! Does this mean its probably cancer? I'm even more scared now! Anyone else had this? 😞 x
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Re: Waiting for results worried sick

Thanks MM, it's like a rollercoaster, one min I'm positive and the next I'm thinking all sorts! Although it's awful for us all its nice to we are all in the same boat!
thanks for your support xx
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Re: Waiting for results worried sick

Hi Suz71,
The waiting is very difficult to deal with. Until you have a definitive diagnosis, it is hard to feel anything other than in limbo.
The best advice I read on this forum was to keep busy, preferably doing things you like, and to give yourself a goal the achieve before the deadline. It helps to prevent your imagination running riot and the worry demons from moving in. However, I know this very hard to do, and friends and family help too, I don't think I have drunk as much coffee as I have in the last month!
Be kind to yourself, and remember that you have already taken the first step to get help and are well palced to deal with whatever the outcome is.
Best wishes,
MM
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Re: Waiting for results worried sick

Thank you janey, it is the wait that's the worst, I already had to wait 2 weeks for the breast clinic appointment, which I know isn't too long but it is when you're worried! I'm trying to stay positive xx
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Re: Waiting for results worried sick

The waiting is definitely the hardest part and it doesn't matter how many times people tell you not to worry you still will, there are however several benign conditions that it could be, you just never know until you get those official results.
Good luck and fingers crossed its nothing, janey xx
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Re: Waiting for results worried sick

hello Sues71


This must be a very difficult time for you. I’m sure other users will be along to support you soon.


In the meantime, maybe you would like to talk things through with a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.


Best wishes


June, moderator


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Waiting for results worried sick

I was referred to breast clinic by GP due to breast pain and lumpiness! Went to the appointment yesterday, had a mammogram and ultra sound, the mammogram showed nothing but the ultra sound did, surprisingly it was nothing to do with the lumps I had felt, it was just found by chance. Then had needle aspiration as they thought it was a cyst but it didn't go away after draining it, so they're sending the fluid to the lab! I have to wait til 11th march for results! I'm so worried, it can only be cancer now, can't it?? 😞