I am waiting for results of a mamogram, ultrasound and biopsy. I've been so worried by it all. I did a whole post yeasterday but when I pressed post the whole thing dissapeared.
However, today the hospital called and gave me an appointment for next Thursday, so another whole week to wait. If they have my results already but aren't seeing me for another week, do you think I can take that as a good sign that there is nothing sinister going on?
I had breast cancer last year, with a lumpectomy, chemotherapy and radiotherapy. This finished in December and I was relieved that it was all over! I have been waiting for my first mammogram since treatment, which I had two weeks ago. Just before my mammogram I noticed another lump in the same breast as I had the cancer in. I mentioned this at the mammogram appointment. It is now 15 days since my mammogram and I have heard nothing. People keep telling me that it is a good sign that it is taking so long for the results to come back, but I am concerned about the lump. Has anyone else had a similar experience?
Thanks to all of you x
Lumpectomy & rads is the plan plus the anti-oestrogen meds (not really discussed this yet).
Very pleased that its grade 1 & appears no lymph node involvement. However, they will do the sentinel biopsy when they do the lumpectomy to check.
Still waiting for PR & HER2 results.
Feeling much better now I have the diagnosis and a plan
Hi ladies & thanks for your good wishes. Got results and I have a grade 1 tumour. She described it as very smalll early breast cancer. Meet surgeon on Fri & op is 2 weeks today! Everything happening so fast, but can't fault them. Not quite all path results back yet, but def oestrogen positive, so will have drugs! 10 years apparently. Also will have radiotherapy. Not really sunk in yet, so feeling better now that I know what's what & what's happening x
Read this on another thread here today.
Great sounding Test available on NHS from Jan 2015 that shows if you actually would benefit from chemo. Ask your consultant/radiographer/oncologist about whether you qualify (this is on the site though)
The Oncotype DX® Breast Cancer test is a multigene diagnostic test that determines the individual risk of cancer recurrence in early-stage invasive breast cancer and identifies patients with minimal, if any, likelihood of benefit, and patients with substantial likelihood of benefit from chemotherapy. The Oncotype DX® test reveals the underlying tumour biology to help guide treatment decisions.
The Oncotype DX® breast cancer test is a diagnostic test performed after your original breast cancer surgery. Like other laboratory tests, it must be ordered by an authorised healthcare provider (i.e. your breast cancer surgeon or oncologist). You may use the checklist below to help determine if you are a potential candidate for the Oncotype DX breast cancer test
You may be a candidate for the Oncotype DX breast cancer test if you are medically eligible for chemotherapy and:
Great website.. clear but covers pretty much what you need to know...
(Sorry, been away a few days and now I can't stop posting!)
I'm going to book into a spa hotel for a day/night with my best mate before chemo to spoil myself rotten! Why the heck not, ladies!
I know what you mean! My radiographer was a lovely lady, nice and calm, explained everything but didn't freak me out (was obvious the lumps were cancerous though... ugly scraggy things!)
Spoke to consultant afterwards and told him the radiographer has said they looked bad, and her left the room to speak to her privately cos notes had not come through to him.
He came back in and stated 'oh yes, the readiographer is really VERY concerned. It does look serious' ... CHEERS doc... did you think I was taking it all too lightly or something?
He says that and packs me off for a 2 week wait in hell!
Honestly, you'd think they'd be the kings and queens of sensitivity wouldn't you? Nope!
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With best wishes
Tag.. just saw your post.. ignore mine.
HOW annoying is that!
Did they not give you a reason for the results delay? (Not being tested in Winchester are they? Took 2 weeks from biopsy in Basingstoke because they send them off to Winchester now!)
I didn't have bloods taken til after results.
Need a chest X Ray (to hopefully rule out spead to my lungs as I have double breast cancer I guess)
Also.. I produced a 'questions to ask' word doc that I took to my results appt... was really useful (compiled from a couple of the cancer websites)
Covers pretty much all angles and meant I did not leave saying 'Oh I wish I'd asked that!'
If you'd like a copy I can email it to you to print and take with you.
Let me know. PM me.
I truly hope you get the all clear, but it is good to read up a little and be prepared (not too much though, I was too stressed and got quite tired during the wait so did not have the mental energy to spend on google! Plus there is just too much info out there and you can get in a total state reading stuff that probably does not even bear relevance to you)
Janie... don't freak out if your lump swells or if you get pains/twinges in your breasts/armpits after the biopsies (9!! Poor you. I had 4 and my boobs looked like a tie dye T Shirt!)
This is totally normal and almost everyone experiences it (my radiographer failed to tell me that so I was totally panicked by it! Consultant reassured me on Tuesday)
Taglaloon - give them a ring tomorrow to ask if your results are back, if they are you can then make appt with consult to speed it all up hopefully.
Everything crossed for you Taglagoon - the waiting is awful! Worth discussing the HRT with the consultant I think if you have concerns. Hope you get your results very soon xx
Morning ladies. I've just entered the waiting room & it all feels like a bit of a whirlwind! First mammogram last week, recalled and went for assessment yesterday and ended up having a biopsy with 9 samples taken from right breast. Results on 29th. I left with the impression that they think the changes are malignant, so feel that I have almost resigned myself to the fact that I have breast cancer. Didn't sleep too well last night & sitting here with a bruised and aching breast! It's all been a bit of a shock as I have been totally asymptomatic. So lovely to feel that I'm not alone and that my fears and feelings are normal - thank you all for sharing your experiences, it's really helping.
OK, so after 2 weeks waiting in limbo, I got my results tonight...
Left breast has Grade 3 invasive lobular, HER2 positive, Oestrogen/Progesterone receptive
Right breast has Grade 2 invasive lobular, HER2 neg, Oes/Prog receptive
So, I am off for 5 months (6 cycles) of chemo, 12 months of Herceptin via IV, 10 YEARS of oral Tamoxifen! (10 years? Hot flushes and sweats?)
After chemo I'll have double mastectomy, and reconstruction (just in time for Christmas! Boobs of a 20 year old please 🙂
No Radiation therapy though (in my case the consultant does not advise it as I am 'young' (49) and having a bilateral mastectomy, poss risk to lungs/heart, although techniques now are far more accurate (no Proton Beam treatments at Basingstoke!;)
(NB: I found a great article on this for anyone worried about traditional Radiotherapy - it has moved on MASSIVELY, far more accurate: http://www.breastcancer.org/research-news/20131209 )
Although 'on paper' this may not look good news, I am actually OK with it, as I know the plan now, and we can get going beating this.
The waiting is definitely the worst.. surprised myself how calm I was today and still feel.
REALLY helped that I took in my Questionnaire and asked him a gazillion questions... he loved that.. no really, he did.. said it made his job easier!
(I can share it if anyone wants it.. PM me with your email addresss.)
If anyone lives near Fleet in Hampshire and fancies meeting up for coffee/chat/mutual support, let me know. My friends and family are wonderful, but it has really helped me to talk to people on here going through/who have gone through what I am experiencing.
Virtual hug x
my first set of biopsies were no good as dispite bending the needle the biopsy bod only picked up breast tissue. my consultant then did another biopsy and got into the mass.
ok so you know thereis a grade 2 cancer in the right. i was diagnosed with invasive lobular grade in the right. i had a full masectomy and the sentinel nodes taken for further biopsy. it was ok.... honest..my next treatment plan was supposed to be radio and hormone. this was reviewed by the team and chang to chemo, radio and hormone.
with hindsight i wish they had waited to have the complete picture.
our consultant seems sensible to wait for a plan.