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Waiting for results

25 REPLIES 25
Grace22
Member

Re: Waiting for results

Hi Taylor85. Glad to hear you got your MRI. I have been told that they think I am stage in also and I'm scheduled for my operation next Friday for removal. Telling your kids is so daunting isn't it? I have to daughter age 9 and she seems to have taken it in her stride. I'm expecting a few wobbles though along the way though. One of the BC nurses at my hospital was previously a health visitor so we have arranged a couple of appointment for my daughter to go speak to her just to check that she OK. She a sensitive girl and a bit of a thinker so glad that this is available to us. I must say though like yourself I felt better for telling her. I haven't had my HER2 results yet either, they did say I could call and they would tell me if I wanted before next Friday. How are you bearing up? Some days it feels like this is happening to someone else..😔.
Sending hugs to everyone.
Xx
Taylor85
Member

Re: Waiting for results

Hello everyone. Grace22 how are you getting on? I had my follow up today after MRI and more bloods and mammogram. Consultant has said he cannot be 100% sure until it's removed but it looks as though it is stage 1. They are not entirely convinced by my lymph nodes so I'm getting another ultrasound and probably biopsy tomorrow. Still awaiting my HER2 test result which will determine whether it's chemo before surgery or the other way around. Will also be having radiotherapy.
We told my children on Friday and it was by far the hardest thing to do but made a huge difference and I felt lighter for it after. They seem to be coping ok although my eldest has a wobble every now and again and they are both very affectionate at the moment. Hope everyone else is holding up ok.
WMJ
Member

Re: Waiting for results

Hi Grace, sorry to hear about your results yesterday. My thoughts are with you today and I hope your treatment goes well. Everything appears to be happening very quickly for you which is positive. I go for the results of my biopsy on Monday afternoon. My symptoms are similar to yours an indent/ dimple and lump in my right breast.  Sending you my best wishes.

Grace22
Member

Re: Waiting for results

Hi Taylor85,

Would love to keep in touch with you and hopefully we can support each other through our treatment. I was ok when I got the results, calm when telling immediate family but tonight I've been a bit overwhelmed with it all. Tried to read some of the books my BC nurse gave me but had to leave them for now. I hope that you can get some answers next week after your MRI.

Sending hugs,
Lesley
Taylor85
Member

Re: Waiting for results

Sorry to hear your news Grace22, it sounds as if your treatment plan is well underway. I think once you know exactly the plan e.g dates etc you can come to terms with t all a little more, or so I hope. I still have a couple of tests to go before I will know exactly what is to come and I'm pretty anxious that they will find more or it will be worse when they do the MRI next week. My follow up appointment cannot come quick enough, to know that stage etc.
Again I'm so sorry to hear your news but perhaps seeing as we've been diagnosed within 24 hours of each other we can keep in touch and help each other through this?
Jobey68
Member

Re: Waiting for results

Hi Grace, I'm sorry you didn't get better news today but you have come to the right place to get help and support as between us here we've dealt with pretty much everything! I got off pretty lightly with a grade 1 stage1 diagnosis and had Radiotheraphy and now take tamoxifen all of which was and is fine, As Sue says the full picture is only known for sure once it's been removed and tested but you can only go with what you know so until your told different then don't fret too much about what might be, the op is pretty straight forward and in many cases your out the same day, just try and take things a day at a time , it's all doable and you will be amazed at how well you cope! Xx jo 

Sue H-S
Community Champion

Re: Waiting for results

Hi again Grace22,

That sounds very wise - and yes, everything will happen very quickly now. Treatment is so good today and the guidlines ae very strict, which is a great benefit to us.

One of the sections you may wish to explore with regards to publications, especially as you are going onto Tamoxifen, is the area with the publications for younger women.It may be of help, so you can make relevant decisions you may have to make, in good time.

Hugs

Sue xx 

Grace22
Member

Re: Waiting for results

Thanks for your reply sue. I have been told that I will be having a lumpectomy on the 11th and also that I will begin taking tamoxifen. Everything seems to be happening so quickly. Thanks for the link to the publications, I will have a look. I am the type of person who likes to have all the information but i am trying to stay away from Google and be guided by the doctors and take things a week at a time. Xx
Sue H-S
Community Champion

Re: Waiting for results

Hi Grace22,

I am so sorry to read that you, too - have not received the result you have hoped for. But I am so glad to read about your initial biopsy results. It is good that they are going to remove it, before deciding on the actual treatment path - as the tissues removed during the operation will be thoroughly tested in pathology before the final diagnosis is confirmed. At a guess they may do a lumpectomy and often, when the lymphnodes come back as clear and depending on the type and actual size, chemo may be avoided.

I do hope this is the case with you.

it is quite possible that you may go onto a hormone prohibiting drug post your active treatment. So you may already wish to ask specific questions about that, especially if you are considering having more children. I am sure your breast care nurse can help and advise on this subject.

Yes, you get a lot of information and much is challenging to take in. Please feel free to ask any questions you may have and we shall answer them to the best of our ability or point you into the right direction to find proper answers. Googling anything is really not a good idea - not because of wanting to hide anything - more that much of the information is out of date, from different countries than our own, or written in a dramatic mannner without solid scientific background - to make money from a product or service.

There are many publications available on the main site of Breastcancercare which are also downloadable.

They should be able to answer most questions you have. So when you come to it - just browse around to see what is there - https://www.breastcancercare.org.uk/information-support/publications

I am glad you like your breast care nurse. She should be your central point of contact throughout all of this - and will always be there to answer questions, offer support and help sort some of the more practical things, should you require them. She has access to your multidisciplinary treatment team, so can help with anything concerning your diagnosis.

HUGE hugs

Sue xx

Grace22
Member

Re: Waiting for results

Hi everyone, back from my appointment from hospital. Been confirmed as stage 1hormone + BC with lump measuring just under 2cm. Scheduled in for surgery on the 11th Nov in which they will remove the lump and and biopsy of lymph nodes and then will have a clearer picture of treatment from then on in. Have been told I will be getting radiation but not sure about chemo yet a still waiting on another test result to come back. Looks like I am going to be here on this forum for another while yet. Was surprisingly calm getting my results but so much information to take. BC nurse seems lovely and she also gave me a couple of story books for my little girl to help explain to her what going on. Xx
Sue H-S
Community Champion

Re: Waiting for results

                               was is will be.jpg

 

Taylor85
Member

Re: Waiting for results

Thanks- this forum has been brilliant the last few days and I fully intend to take advantage of speaking with those who have gone through a similar experience.
WMJ
Member

Re: Waiting for results

HI Taylor, I am so sorry it wasn't better news for you today. I am sending you my very best wishes & a big hug. Be kind to yourself and try to live in the now. Although I know it easier said than done especially when you have young children. Have you ever looked at mindfulness? There is lots of information on the Internet. My husband swears by headspace, again lots of information available. Maybe something you can look at once your children are back at school. Anything I am sure will be a welcome diversion at the moment. Keep in touch with us all, you are in our thoughts and remember there are a lot of people here willing to support you. 

Taylor85
Member

Re: Waiting for results

Thanks for all the info everyone. It's been a hard day but I do feel better for knowing. I will have a look at those threads - all very helpful info, thanks.
Grace22 sending you loads of luck and well wishes for tomorrow, please let us know how you get on. It's true- the waiting is the worst!
Sue H-S
Community Champion

Re: Waiting for results

Hi Taylor,

A HUGE HUG - I am so sorry that your results turned out that way. I have to echo  Jobey68's words.

You may wish to explore the forum, once the first discussions have been had - there are threads for surgery and also the monthly chemo threads. Mind you, that is a little while off. You might also like to explore and/or post on the Just Diagnosed thread. There is so much support of women, who are at the same stage as you at the moment. It sometimes helps so much, just to let things out, as we try so hard to put a face on for those around us. You do not have to be brave or a warrior. 

As you have two young children, you may also find this area of help - https://forum.breastcancercare.org.uk/t5/Younger-women-and-families/bd-p/4449

Hugs

Sue xx

Jobey68
Member

Re: Waiting for results

Hi Taylor, I'm sorry it wasn't better news for you today, you will find from here on things move pretty quick and you don't really have time to think straight! Ask questions at every turn is my advice, if you don't understand something then get them to explain again, I think most of us here will agree that the not knowing is the worst and although it's not what you wanted to hear today having an answer and knowing the way forward is better than limbo land, breast cancer is so treatable for the majority of us and although it may seem an impossible task right now you will cope Xx Jo 

Grace22
Member

Re: Waiting for results

Hi taylor85. I'm really sorry to hear of your results today. Thinking of you and sending big hugs. I am worried about my possible result tomorrow but know that the only way forward is to face it head on. Xx
Taylor85
Member

Re: Waiting for results

Hi- got my results this morning and sadly wasn't the news I was hoping for. It's grade 3 cancer. Had a monogram today and having follow up blood tests and MRI is on Monday. Will know more next Thursday after my follow up appointment but the initial plan looks like op to remove it then chemo. Not ideal but at least now I know and can deal with it. Good luck to Grace22- please don't feel doscouraged by my outcome as I'm sure it's not that way for everyone xxx
Sue H-S
Community Champion

Re: Waiting for results

Hi Taylor85

hoping all goes well today - keeping my fingers crossed.

Also for you Grace 22.

Let us know how you get on - we are here to help and support.

Huge Hugs

Sue xx

WMJ
Member

Re: Waiting for results

Hi Taylor & Grace,

I too am in the same position. I had a biopsy Monday and go back the hospital next Monday for the results. It is amazing how quickly your whole focus changes after seeing the GP and discovering you further investigations. It has only been a week since that process started but feels like an eternity. I find the early mornings the worst time, as everything is magnified and your mind plays tricks upon you, as you lie awake in bed in the dark, hence why I am up and on here now! I have been reassured by what Jill responded to me with, '3/4 of biopsies are non malignant'. You may have read her response but please keep it in mind and use this site for reassurance and support.  I am not  googling anything to do with lumps, biopsies or bc.  I wish you both all the best with your results.

Moijan
Member

Re: Waiting for results

Hi Taylor and Grace,

 

good luck with those results xx

 

its the not knowing, that's so scary isnt it?. Once you know either way, you can deal with it.

 

do let us know how it goes...thinking of you

 

Moijanxx

Taylor85
Member

Re: Waiting for results

It's horrendous and my thoughts are with you Grace22. I haven't even contemplated what I would tell my kids. My husband is convinced it will all be ok and I'm trying to stay positive but there's always a niggling feeling in the back of my mind and I most definitely have moments when I just break down and cry- one about an hour ago in fact. Just need to let it out when nobody is watching. Wishing you all the best for Thursday. I'm counting down the hours til my appointment
Grace22
Member

Re: Waiting for results

Hi taylor85, the waiting is awful isn't it? I am at the same stage in the process as yourself and get my results on Thursday. Like yourself I went to the hospital thinking that I would be sent on my way after a check from the doc. I am 39 with a 9yr old daughter, really don't know what I'm going to.tell her if my results aren't good. Will keep my fingers crossed for you tomorrow.
Taylor85
Member

Re: Waiting for results

Hi Sue, thanks so much for your reply. It's nice to be able to vent a little. I've already had core biopsies done on both the lumps so results appointment is in the morning. I've absolutely been on a rollercoaster this last week and a bit and at time my mind has gotten totally carried away. However you are right, a bridge cannot be crossed until it is met and I need to remember that.
I didn't sleep well at all last night and doubt I will tonight to be honest...absolutely dreading tomorrow but on the other hand at least if it is a horrible result I will know and then begin to deal with it all.
Thanks again for your support
Sue H-S
Community Champion

Re: Waiting for results

Hi Taylor85,

I am so glad you have found us - it is a great place for asking questions, although very few of us are 'medical' people. There is so much support on this forum for you, no matter what the outcome is going to be.

You are very wise not to Google - as many reports are so out of date and can, for some, be very scary. When anxious one does not always read things properly or check then out. 

There are many publication on the main site, which can give you the answers you may be looking for. I keep my fingers crossed that you will not have to.

Unfortunately I cannot help with regards to ultrasound ratings and I hope someone sees this post, who can. The only thing I know, that if there is any doubt whatsoever they may call you back for a biopsy. Although it sounds scary - the biopsy may still come back clear. Which, I am sure, would be a great relief to you.

The next couple of weeks you may be very anxious with your feelings playing 'roller coaster' - most of us have gone through that. It is challenging to have to wait. Sometimes the mind wants to race ahead - what if...etc. - however, you can only cross a bridge, when you have actually arrived at it. I hope you find many distractions, especially with your children during the wait.

Keeping my fingers very firmly crossed for you.

Hugs

Sue x

Taylor85
Member

Waiting for results

Hi everyone, I found a lump in my right breast on 14/10. Took myself straight off to the GP who referred me to our local breast clinic. I'm 31 with no family history so I honestly thought I would go and the consultant who who merrily send me on my way. Not quite the case- he said he wasn't sure so sent me to ultrasound. At the ultrasound they found another lump (although more likely just a cyst) and a reactive lymph node. They took core biopsies on both and I have my results appointment on Wednesday morning. I'm not normally an anxious person but the wait is killing me. I've got two children age 9 and 7 and of course it's half term this week so trying to keep as busy as possible so I don't just sit and stare into space!
Have to say our local Breast clinic was fab when I was there last week and it was all run very swiftly but it's obviously so tense in there.
My question is does abound else have any knowledge/experience of the ultrasound ratings? I got a copy of the letter sent to the GP which specifies how they rated the two lumps.
Any info greatly received- trying my best to stay clear of google as that can be scary!