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Waiting to see Endocrinologist

7 REPLIES 7
Jacksy
Member

Re: Waiting to see Endocrinologist

Hi Nana,

just wondering how you got on yesterday? ( I think yesterday was the 15th!) 

hoping the cyber attack didn't affect your appointment or their access to blood results etc, and that you got some answers,

thinking of you

Jx

NanaToSix
Member

Re: Waiting to see Endocrinologist

Hi FF, thank you for your reply and support.

Yes, both under and overactive thyroid causes huge problems and affects not only the patient but family, friends, work. Hope your brother is getting the treatment to treat his Graves.

As you say, not long until my appt and hopefully some answers, but still feels light years away . . . !!

Thanks again xx
funnyface
Community Champion

Re: Waiting to see Endocrinologist

Nanatosix, The waiting game is awful. Luckily your appointment isn't too far away. I do know the thyroid if not functianing correctly can cause a host of problems!! My brother had Graves  disease which is an e extremely over active thyroid. It turned him into a monster! He abused his family, lost a ton of weight, was  extremely week and angry, couldn't sleep, eyes buldged, and hands shook. So hang in there, it could very well be the thyroid! FF

NanaToSix
Member

Re: Waiting to see Endocrinologist

Hi Carolyn & Nicky, thank you both for your replies.

Your support and take on things are just what I needed to try to keep it all in perspective whilst waiting for the appt. I don't feel quite as alone now.

Thank you again xx
nicky08
Community Champion

Re: Waiting to see Endocrinologist

Hi nanatosix

Although some of the symptoms you mention are also attributed to signs of brain mets from what I've learnt on here brain mets don't just stay the same in the time frame you've mentioned ie since last Autumn. Again, from what I've read from brain mets ladies, the symptoms get noticeably worse over a relatively short period of time, presumably as any lesions press or affect the area of the brain they are in and pressure builds up. I don't know if this is a comfort for you but hopefully it does mean that your problems are not related to brain mets. However I think we all know what its like to stress about any changes you have had that last a long time and how it can be linked to BC.

Fingers crossed for your upcoming appointment and hope that you can find a treatment that sorts things out with your thyroid. Obviously if the dreaded mets do make an appearance we are here to support you in any way we can.

Nicky x

Carolyn52
Member

Re: Waiting to see Endocrinologist

Hello
Welcome to our friendly forum where you will receive kindness and support from real people.
It's just a case of the waiting game now for you until you get your results etc ..it's going to seem a long wait but try to focus on something else !
In the meantime ..we are all sending hugs and thoughts that things are tickity boo.
Carolyn xxx
Carolyn52
Member

Re: Waiting to see Endocrinologist

Hello nanofdix
NanaToSix
Member

Waiting to see Endocrinologist

Hi all

 

Apologies if this post isn't appropriate for this section but I think I'm inbetween primary and secondary diagnoses just now.

 

It's been a long time since I posted on BCC - 2008, following diagnosis at 46 of Grade 2 IDC ER/PR+ve, HER2-ve, lumpectomy, node -ve, radiotherapy, Zolodex, Tamoxifen for 10 years (into my 9th year now).  TAH BSO in 2010 - endometrial hyperplasia, probably due to Tamoxifen.  Got on with things as you do, dealing with quality of life issues and the many symptoms attributable to bc and menopause.

 

Last autumn I began having vague additional problems - light phobia/sore eyes, then after Christmas fatigue hit like a brick wall, memory loss, couldn't find the words, alternating constipation/diarrhoea, breathlessness when walking on the flat, even less libido (if that's possible), numbness in toes, burning feeling in feet, puffy face/eyes, couldn't stand the cold.  I've recently developed headaches and still have all of the above symptoms.

 

Went to my GP who thought I had a vitamin deficiency so had a raft of blood tests in March.  Seems my thyroid is underactive and it looks like my pituitary gland isn't telling my thyroid to make more T4. GP said it's most probably a pituitary adenoma and referred me to an Endocrinologist, who I see on 15th May.

 

Whilst researching pituitary disorders, metastasis from breast cancer is a differential diagnosis as the pituitary has a hormonal environment and can attract bc cells that escaped initial treatment so now I'm thinking it's a possibility as some of the symptoms I have are also the same for brain mets (but equally some of the the symptoms are the same for menopause, underactive thyroid, Vit B12 & Vit D deficincy)

 

There's not much I can do at the min except wait for the appointment and discuss it with the specialist.  I've not been able to voice this fear with anyone - I don't want to worry husband and family unduly but just  needed to 'put it out there' via this safe and understanding place.

 

Thank you for listening, very much appreciated.

 

NanaToSix