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Waiting.......

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sueinspain
Member

Re: Waiting.......

Hiya ..... I havent been on the forum for a day or so ... trying to wean myself of now I have been given the all clear but for some strange reason I am finding it difficult to do so.
I think its because I felt a "link" between so many people on here it feels like abandonment if I disappear - and I am genuinely interested to see how people are doing and if they are keeping well.
I appreciate your post Zombea and I hope you get your tests etc sorted soon ..
Look after yourself and thanks again
Sue xxxx

ZomBea
Member

Re: Waiting.......

Hi Ladies!
Didn't have net access for a while, how are you all doing???
Sue, so glad you got the all clear 🙂 Really chuffed for you 🙂 All the best hun for the future!

As for me...I AM STILL WAITING FOR ULTRASOUND ETC!!!!!!

Am begining to loose faith now completely

lolly73
Member

Re: Waiting.......

Hi Sue in Spain

Thanks for the weather report! I was so pleased to hear you got the all clear - eventually!!

Best wishes
Lolly

hollymeg
Member

Re: Waiting.......

Hi there everyone, just letting you know i am home (complete with drain)from the hospital. Very emotional and tied but other than that im ok. I now have to sit and wait for the results in about 3 weeks.

Sue and cariad - just wondered have either of you heard anything yet, i do hope your not still waiting to hear news

Luv and hugs to you all Pauline xxx

sueinspain
Member

Re: Waiting.......

Sorry Lolly - forgot to say I am in Estepona which is about 30-40 minutes drive from Benalmadena - by the way I have just arrived at work in Malaga and its glorious! shame its not still the weekend!
Sue

sueinspain
Member

Re: Waiting.......

Hi Lolly
Well today its pretty awful! windy and lots of rain!!! BUT we have just had a week of glorious sunshine in the high 20´s and probably the same again next week. We are in the middle of the season change at the moment so one day its scorching and the next windy or wet! but in the next week or two it will settle down and the HOT HOT HOT days will start... Im sure in 3 weeks time it will be lovely!
Hope you enjoy your holiday when you get here ...
Sue xxxxxxxxxxx

lolly73
Member

Re: Waiting.......

Hi Sueinspain

Just reading about where you live and wondered where in Spain you are? I am going to Benalmadena in 3.5 weeks and was wondering how the weather is there at the moment?!!

Thanks!

cariad
Member

Re: Waiting.......

Hi All,

Pauline don't worry about the why. It is probably due to a cancellation. Fill a bowl with hot water and vics and cover your head with a towel and take in the vapours. That's my only suggestion - sorry although I don't take medication for anything....can't take tablets...adult capol for me! ha ha!

I am absolutely fuming at the moment. Come home this evening to find a letter from the Hospital. They have cancelled my appointment and rearranged it for another day. Who the hell do the NHS think they are??! I am stunned as to why they could not have phoned me and asked me if it was convienent (which it is not) instead of just sending me a letter and assuming it was fine. I now have to try and re-arrange my day off, my partners day off and I have just had to tell my parents not to bother coming up - they were going to drive 140 miles to be with me at my appointment. More waiting for me and I was under a week to go!!!! My partner has left a message for the Doctor......he is not happy either!

Arggggghhhhhhhhhhhh!!! Was supposed to be going away tonight but all I want to do right now is drink a big bottle of wine! Not a happy bunny!!

Hope you all have a great weekend.

Cx

hollymeg
Member

Re: Waiting.......

hi ladies, just letting you know they have just brought my mastectamy forward from thursday 30th to tuesday 28th. i am relieved it will be over soon, but i forgot to ask why. just telling myself its caus they have a cancellation. but guess wot i am starting with a head cold, got pre med on monday, need to get rid of it by then or they will perspone the op, HELP LADIES all suggestions greatfully recieved.

sue at least i have an appointment, i cant believe how long you are having to wait for your results, its disgusting. words cant describe how you must be feeling. i had to wait 6 days and i was crawling the wall then. lets hope its monday when you find out. thinking of you, sue lots of huggs xx

love to you all from pauline xxxx

sueinspain
Member

Re: Waiting.......

Hi C ....sorry to hear you are feeling low, and I agree with the need of a holiday! I am lucky in that I live in an apartment where my terrace looks directly onto the beach with a view of Morocco and Gibraltar ... sand, sea ... lovely - but at the end of the day I still get up every day at 6.30 go to work, get back around 9.30 pm, do my washing ironing cooking just like everyone else ... so the location is lost on me sometimes!! and at the moment I could live on the moon and probably wouldnt even notice. I need to get back to my "real life" and when this is all over I will make every effort to do that !

I hope you have a good weekend and manage to chill out a little - if I dont speak to you before I hope your appointment goes well.

Take care
Sue xxx

cariad
Member

Re: Waiting.......

Sue - I cannot believe they are making you wait even longer. Have you written in to complain yourself? I am happy to lend my services to your tactical force group if required 😉

I agree that going through this has an impact on your sense of humour. Mine is now def. not intact....if fact I have become incredibly sarcastic!! I am usually such a nice, happy person!!

Got 3 days to go until my appointment. All of a sudden I have become really anxious! Feeling a little low at the moment. Woke up on Saturday with 22 little marks on my legs...don't know what they are and not had any since. I also have little blisters on my lip line and the most annoyingly sore cracked lips....

......I need a holiday!!

Cx

sueinspain
Member

Re: Waiting.......

Thanks Sandra - I am sharpening my biro at the moment whilst sitting at my work desk ready to poke him in the eye with it when I finally see him!!

It is time for me to re-find my huge sense of humour in order to get through another week of this!

I may take you up on the offer of a tactical force group we can send in from the UK to steal my results of his desk!

Sue x

sandra44
Member

Re: Waiting.......

omg Sue, I soooooooooo feel for you. Just give us the address and a few of us will come over and hijack the hosp for you and make them hand over your results,what is wrong with these people !!!!! They are clearly bonkers ! You must def win the prize for waiting the longest time for results, not a very good prize to win I know. I know it is bad enough waiting any length of time for results but you deserve a medal, or even better,what you do deserve is the most fantastic set of results . Keeping fingers crossed for you. Good luck !

Sandra x

sueinspain
Member

Re: Waiting.......

Arrrrrrrrrrrrrrrrrrrrrgh! Just had a telephone call from the Consultants secretary in response to my complaint yesterday - they have NO appointments at the moment ! WTF ! but will try to call me with one next week - she said they had the results but she cant give them to me cos she´s not a Doctor .... so more waiting .... Im so upset about this now.
Suex

ZomBea
Member

Re: Waiting.......

I totally agree Sue and to be honest I also am developing bags the size of binliners, I agree it's the damn stress of it all!
Disgusting, like you say it "could" be cancer, not like it's a bloody wart that needs freezing is it, makes you feel very bloody unimportant and tbh it's making me feel like a bloody second class citizen! Totally with you on that hunni!

sueinspain
Member

Re: Waiting.......

Hi Lizzie .... lol you should see me! I always thought I looked pretty good for 46 ! but in the past five weeks Ive developed bigger bags under my yes, spots (yuk!) and dry skin .... and Im bloody positive its all stress / worry related !
I know many people have waited for results etc - and it is most definitely one of the hardest things - but I cannot find any other posts where people have waited this long for biopsy results ?!?!?! I think its absolutely disgusting ... at the end of the day these results tell me if I have cancer or if I dont - so its not like its a trivial matter like getting the results on whether my hair dye is gonna give me rash!
sorry for bring flippant! Im trying to stay on the humour side of life .. and forgive me if your fingers are going numb!! I´ll let you know when you can uncross them and get the blood flow back...

As always many thanks for your support
Sue xxx

LizzyM
Member

Re: Waiting.......

Hi all,
Sue, fingers are STILL crossed for you! - Getting a bit of cramp now, after all this time!

Lizzy M XX

ZomBea
Member

Re: Waiting.......

Well I hope they come through for you today Sue hun and I hope they are good results! Keep your chin up hun or at least try to 🙂
Keep us posted hun and good luck with all xxx

sueinspain
Member

Re: Waiting.......

Well, I did manage to speak to a receptionist at the hospital who also thought it was disgusting that I was still waiting - spoke to her yesterday afternoon and she has sent a note to the Consultant and his secretary asking one of them to contact me - hopefully today! not sure if it will happen or not will have to wait and see. I did plan on going to the hospital myself yesterday but when I phoned I found out the breast clinic closed at 5pm so I couldnt get there in time after work.
Hope you all have a good weekend ..... keep smiling when you can and take care.
Sue xx

ZomBea
Member

Re: Waiting.......

And Sue lol noone will be glad to see you off here, well only for the right reasons of course that being the all clear 🙂 Fingers crossed. Rant as much as you like, you have every damn right, cannot believe you are still being messed about, disgusting!

ZomBea
Member

Re: Waiting.......

Hi Ladies!

Thanks for all the advice etc, still bloody waiting, am going to call them again today then try PALS etc!

Took a few days out to myself to try and calm head down. Got extremely drunk the other night and burst into tears 😕 Guess the waiting just put me on overload! Blew a gasket lol never mind got it out of my system for now lol!

Ali- great news am so pleased for you 🙂 Hope you had a couple of few to celebrate and destress from the whole ordeal 🙂

hollymeg
Member

Re: Waiting.......

CONGRATULATIONS ALI its about time we had something to celebrate on here. Now this nightmare is all over, you can go now and enjoy the rest of your life, but remember, don't be like me, after one scare 18 months ago i was too frightened to check myself. so when the real thing came along i actually don't know how long its been there. check yourself every month so if you have another scare at least you wont be worried its been there a long time.
Lots of luv pauline xxxx

debs
Member

Re: Waiting.......

Ali fantastic news so pleased for you!

Sue, i feel for you waiting 2 weeks was bad enough hope you get them soon!
love debs xxx

sueinspain
Member

Re: Waiting.......

Hi C

Sadly not! well in so much as they told him what they told me yesterday afternoon - "I should be pleased they havent called because it probably means all is ok"! The lady I managed to get through to just told me to call her back if no one has rung me by Friday. Ridiculous situation - and to be honest when I finally get the news (hopefully good news) I still feel this waiting issue is something I want to tackle them about - and hope that I can get some support from other people here to get the hospital to change its policy, so that anyone else in the future doesnt have to go through the agonies and uncertainties - I know they have to prioritise but even so I am sure it doesnt take 5 weeks to get the results to everyone irrespective of whether they are good or bad. It had made me feel very strongly about how this additional stress could affect the health of some people.

Trust me C I will be on here in giant capital letters when I finally get some answers! Im sure some people will be glad to get me off here Ive been hanging around moaning for so long!

Thanks and take care
Sue xxxx

cariad
Member

Re: Waiting.......

Sue did your husband have any luck with the Hospital?

Cx

cariad
Member

Re: Waiting.......

Ali - that is fantastic news and am so relived and glad to hear that you are okay. No excuses not to buy that top now 😉 Hope you have a fantastic summer.

Linda - I feel exactly the same way with this forum. So many brave ladies coping with their own problems but still they take time out to comfort others. Very inspirational.

Hugs to all.

Cx

sueinspain
Member

Re: Waiting.......

Brilliant news Ali ...... thanks for letting us know.

Best of luck in the future.
Take care - Sue xxxx

lindyd
Member

Re: Waiting.......

Brilliant news Ali - relief did not go any where to explaining how I felt so know just how your feeling - I too can not thank all the other ladies on here enough they have been a glimmer of light in my darkness they have been brilliant - made me feel very humble coming on here to let people know my results - so many people suffering and dealing with their own problems but still caring - if wishes and prayers were cures then there would be no more suffering - (((hugs))) for everyone who needs one just now - take care Linda x

ali41
Member

Re: Waiting.......

Hi ladies, i got the ALL CLEAR, i have never been so releaved i had a momagram a scan and a biopsy taken, i have a thickening on my right breast and a swelling in some of my glands, the doctor also seemed to think i there had been a cyst t but because of the time it had taken for me to get to see them it had burst which had been the cause of all the burning id had, she told me i would still probably have quite a bit of pain over the next few weeks and if i had any blood from my nipple to get straight back in touch with my doctor to get fast tracked back to see them.
I would like to thank all of you for you help over these very scarey past few weeks and i will continue to come into the forum to see how everyone gets on, and also for the new ladies who come in to find and escape and sum where to rant and rave untill the waitting is over, once again thank you all
Ali xx

hollymeg
Member

Re: Waiting.......

hi ladies came on to see how ali has gone on but there is no news, hope it is because she is out celebrating.

hope you are all ok

luv pauline x x x

cariad
Member

Re: Waiting.......

Always has to be the Rose wine for me 🙂

I am sure everything will be fine and hope you get your answers soon.

Cx

rhapsodyangel
Member

Re: Waiting.......

Ali - thinking of you and hope that it was good news today...

Sue - so sorry that they are still making you wait so long...:(

Bea - agree with the others - get back to your gp and see if they can help - also have you heard of the PALS system in hospitals? They are patient liasons to help when patients are having problems - you could try giving them a ring and see if them chasing up the appointment - quoting the relevant government time recommendations will help...

Theresa x

sueinspain
Member

Re: Waiting.......

Hi C ..... the question indeed !!! It was probably "do you want red or white wine with that"...... ??????? lol

I have my husband on the case now chasing our own GP in an effort to get an answer sooner rather than later. I can get on the internet at work (as you can see!!!!) but making such personal telephone calls is more difficult except at lunchtimes . which I have already done today.

Cheers, bottoms up , salute etc etc etc etc

Sue xxxx

cariad
Member

Re: Waiting.......

Sue - don't apologise. You have each and every right to be fuming. I would be if my Hospital kept me waiting that long for test results. I can't believe they keep fobbing you off like that. They are your test results and you have every right to know what they are. Have you spoken to your GP again?

I really hope that you get your results back soon along with the good news you are hoping for.

Chin up, deep breathes and a large glass of wine.....ah wine makes everything better. It is the answer....but I have forgotten the question!

Cx

sueinspain
Member

Re: Waiting.......

Hiya .... they dont seem to understand just how bloo** stressful this waiting can be for people Im sure! Dont want to go on yet again!! BUT I have just called the hospital again myself (5th call in the past week) as I have now waited almost 5 weeks for the results of my biopsy after mammogram and ultrasound. They have told me to call at the end of the week if they dont call me! and that I should be relieved because not calling me before now means its probably good news!! WHAAAAAAAAAAAT! It probably is good news - and of course I will jump for joy when they finally tell me this - but until someone does I cant keep functioning on the "its probably good news" theory .... some days I can and some days I cant - it drives me insane ... plus even if it "good news" the lump is still there and I would like to know what happens next if anything ...

Sorry I went off on one again!
Sympathise with you Bea ..... try to keep smiling
Sue xxx

cariad
Member

Re: Waiting.......

"When they have an opening" OMG I would have been furious with them if they told me that. A friend (who is a nurse) sent me this quote from Government Legislation:

"...everyone with suspected cancer will be able to see a specialist within two weeks of their GP deciding that they need to be seen urgently and requesting an appointment. These arrangements were guaranteed for everyone with suspected breast cancer from April 1999."

I am not in any way suggesting that you have anything nasty hiding in there but it seems that your hospital are not really taking this as a matter of priority. If your GP has suggested that a referral is needed then it should happen quicker. I know this changes depending where in the country you live but a couple of weeks is ridicilous.

I would speak to your GP again (quoting the above if necessary) to see if they can do anything to speed the process up.

Good Luck

Cx

ZomBea
Member

Re: Waiting.......

Just called hospital to see if an appointment has been made (me being impatient), got told an appointment hasn't been made for me and to expect one IN THE NEXT COUPLE OF WEEKS when they have an opening! Feeling pretty miffed about this to be honest. I understand there are waiting lists etc but I was under the impression that these things need dealing with as a priority 😕

Hope all you ladies are having a decent say, fingers crossed for those awaiting results today 🙂

ZomBea
Member

Re: Waiting.......

Ali - All the luck in the world for today, am sure I speak for everyone when saying fingers, toes and anything else crossable crossed 🙂

cariad
Member

Re: Waiting.......

Ali - Good Luck for today. Hope everything goes well. Let us know how you get on.

Pauline - Hope you have a good day at work.

Linda - Fantastic news on getting the all clear.

Thank you for the waiting times. I have 8 days to go until my inital appointment with the hospital. Bit of a mix of emotions at the moment. Hope it all goes quickly as I don't think I can cope with more waiting for test results!

Big hugs to all.

Cx

sueinspain
Member

Re: Waiting.......

Good luck Ali today .... fingers crossed for you.
Linda - fantastic to hear you got the all clear! brilliant news ....

Have a good day today everyone.
Sue xxxx

lindyd
Member

Re: Waiting.......

good luck hun - hope you get good news (((hugs))) x

debs
Member

Re: Waiting.......

Ali, the waiting is horrible, good luck for today! Whatever the results you are now on the road to sorting it! I found it all easier to deal with once I knew.
Pauline, hope work isn't too bad, but i know what you mean about tea ans sympathy! i just visited work and got a bit overwhelmed! love Debs xxx

ali41
Member

Re: Waiting.......

Well todays the day, ive hardley had any sleep and my head is all over, it seems like ive waited ages for today to finaly find ot what is going on, and as of yet i havent cryed , but i do feel extreamly sick and scared. My mobile hasnt stopped since last night family and frineds wishing me luck but for some reason i dont feel very lucky or positive at the moment and my 1.30 appointment seems like months away.
Well ladies i would litk to thank you for all your kind words of support yo have gave me over the past 7 weeks and i know what ever the results today i will continue to come on here either for bc advice or to try and help others who are playing the waitting game, fingers crossed
Ali xx

ZomBea
Member

Re: Waiting.......

Pauline hun *big hugs* wish I could give you one for real 😞

I know what you mean hun, although i'm not diagnosed I can understand a little of how rapidly your emotional state could change! I too am sat here and I wonder what is this thing if it is doing to me while I am waiting, like sitting on a ticking bomb I liken it too. And again, even though I am undiagnosed I was walking around the supermarket today and just looking at people, they all seemed errmmmm foreign to me for some reason, I dunno, maybe am loosing marbles. I guess what i'm trying to say is even though I may or may not have "it" I can appreciate if only a little of what you are feeling hun.

We are all here for you 🙂 I think you did the right thing by getting some rest, sometimes your mind goes into a kind of panic mode, guarded and on total information and issue overload. Don't blame yourself hun, you have so much on your mind, there is only so much anyone can take hun.

Am thinking of you, I hope you manage to get a good rest (I cannot sleep)and I hope you feel a bit better in the morning. Keep writing, it helps balance your mind if only a little and gets things of your chest doesn't it. Plus the people here aren't alien to the situation if you get me, kind of gets to feel like that, well for me anyway. I hope you manage with work ok, I can see how frustrating it must be in that situation. Come on here and rant it all out of your system after work if needs be 🙂

If you need to put a smile on your face just think of dozey Bea up all night looking like i've been dragged through a hedge with mismatching pyjamas on...really attractive 🙂

Wish you all the luck in the world :)and remember we all here for whatever 🙂

hollymeg
Member

Re: Waiting.......

Just shows you think you are coping then wam!!!! I havn't stopped crying all day and fell out with everyone around me. I took myself to bed for half hours kip and felt much better. I think a lot of it is even though i know my op is on 30th April and it hadn't gone to my lymph nodes, i am still worrying what the BC is doing while we sit here waiting, you know what i mean ladies.
I am also due back to work tomorrow after 2 weeks off and have to face everyone. I don't know how i will cope with alll the tea and simpathy.

Good luck to all of you with appointments tomorrow, or chasing appointments.

oh just remembered i was also told it was 31 days target for NHS so why do some ladies wait 7, 8, 9 weeks

Lets hope tomorrow brings good news for lots of ladies sat out there worrying themselves silly

Luv Pauline xxxx

ZomBea
Member

Re: Waiting.......

Hi!

Thanks for mentioning that about treatment being given within 4 weeks of diagnosis, very handy to know 🙂

Yes, it would seem there is a huge difference within the NHS, between hospitals etc. I was lucky to be given an appointment quickly etc but the waiting between etc is a killer.

I hope all goes well for you with your appointment and treatment 🙂

Love
Bea xx

dianeg
Member

Re: Waiting.......

Hi everyone,

The worst part is the waiting and I must be extremely lucky where I live. Surely NHS waiting times should be the same across the country but evidently they are not.

I had a routine mammogram on the 18th February followed by biopsy, result, appointment with local breast cancer consultant and admission to hospital for a lumpectomy and node sampling on the 2nd April - 6 weeks from beginning to end. Tomorrow I see my consultant again for results and arrangements for radiotheraphy etc.

Incidentally I was told by my consultant that under NHS guidelines any treatment has to be carried out within 4 weeks of a diagnosis.

Good luck to all those waiting for appointments and I hope they arrive sooner rather than later.

Diane

ZomBea
Member

Re: Waiting.......

Ali...All the luck in the world for tomorrow hun! Fingers and everything else crossed for you 🙂 I'll be thinking of you 🙂

Hi Pauline 🙂
To be honest am a little confused with the whole process. Had my appointment and a breast exam Thursday. The consultant said it was hard to give a prognosis without a scan. Handed in my ultrasound scan (as i'm under 35) appointment order sheet at reception and am awaiting one being sent out, hope it'll be in post tomorrow. He wanted to see me again straight after so when I get this I have to call the hospital to arrange to see him following the scan.

I haven't been offered a biopsy although he indicated on the diagram a lump around 3 cm embedded. Probably should have asked more questions but being my first time and not knowing what to expect I didn't really think to ask what he thought as I thought he'll just say can't confirm anything without further tests. Wish I had now.

So i'm not really sure although I am suspicious of him using the word prognosis, it's usually quite clear what they mean by that but maybe he was just using loose terminology. Am quite confused really!

Am hanging in there, had terrible night Friday, was trying to stay really positive and felt quite chirpy for a few hours...then crash and burn...was in tears all night. Not felt too bad yesterday and today so am holding up ok for now and will try and enjoy the sun etc 🙂

Thanks so much for asking 🙂 really means a lot to me all the support from the ladies on this site 🙂 I shall keep you posted as and when I know anything!

Have a great Sunday ladies, hope all is peaceful for you all today 🙂

debs
Member

Re: Waiting.......

Hope you don't mind me posting, but all the men boob comments made me laugh! My OH said he isn't a boob man! Hope you all get results you want!
Linda what fabulous news!
Pauline, I too have lovely bras! I read on here about Asda sports bras for £4 I bought 2 and they are as the person who posted said very comfy! Didn't want to spend a lot as hopefully will get back into decent ones! I went up a size to cope with bit of swelling!

Enjoy the sun all, and I have to agree with Susanne this site is a life saver! love Debs xxxxx

hollymeg
Member

Re: Waiting.......

Cariad and sue, not forgot you two. How you both doing? Hope your relaxing with a good wine, i am.

Role on 30th of april, lets get this rough, scary ride started, mind you it actually started today when i went to be mesured in M & S for a hidious bra ( must say lady was lovely ). Won't be stripping of in front of OH in that, he will run a mile:(

Keep your chin up all of you on here, keep talking on here. It keeps you sane, i know ( my OH would argue i have never been sane)

Luv to you all Pauline xxx