Bigger again than frist thought- MRI stated 39mm surgery 41mm lobular, duct and DICS, clear margins and no node involvement so pleased about that bit, they have sent off a sample to America to see if I need chemo, so more waiting but I can relax for Christmas at least!
The waiting is so emotionally draining isnt it Lye X? I just want to think about other things again, but its constanlty on my mind, glad you have your results now though and you can move on with your treatment, my operation was on the 6th Deccember and they initially gave me an appointment for my results on the 29th December but after talking to my BN and saying I couldnt handle the waiting they mannaged to find me an appointment on the 22nd December which is still over 2 weeks wait but its better than nearly 4. I am also expecting radiotherapy and hormone treatment but depended on what results are from my SNB not sure what else, I wish you well with your treament too x
Hi BlueMoonday... I’m 46 and grade 2 Lobular Invasive. I found out a week last Friday. MRI was today ( not fun but as they say totally doable) my plan day is Wednesday. So it’s all pretty quick!! I’m just trying really hard to carry on regardless but I do sometimes feel like I’m going to burst with pent up emotion. It’s all a bit rubbish but it is amazingly treatable and that’s the main thing xx
I am finding distracitng myself with other things have helped, I also got some sleeping tablets from the doctor as I wasnt sleeping, I take one when I need to.
I also find reading through the positive post have helped me to feel calmer. I am trying to eat well too and make sure I go for a short walk each day,I felt better when I was at work though that was a big distraction.
I am still recovering from the surgery I had on the 8th Decemeber, pysically I am okay, emotionally not okay. I go for my resluts this Friday if they are availble then. I am trying my hardest not to think about it but it is hard. I am trying to be positiive and take one day at a time.
I wish you all the best with everything, this site is so helpful for getting information and an insight into how other people are dealing with things,
I am new to this forum and had been reading through some of the posts. I agree the waiting is torture.
Reading some of the threads and knowing that so many of you have gone through this and came out the other side is reassuring.
I was told my tumour was breast cancer last wednesday on the 13th December, 2 days after the mammogram, ultrasound and biopsies taken.
I knew that day i would get bad news as they were concerned. My tumour is quite large, I didnt think much of it over a long period of time as at the last mammogram I was told it was jus cysts..
I was told that there is LN involvement and I am now waiting on an appointment for a CT scan and bone scan.
I got my appointment for the bone scan through today which is the 5th January. I am not sure of anything else at this moment in time as pathology wasnt fully complete at that time. My next appointment is the 3rd january to discuss results and plans but knowing I still wont have all of the information only makes treatment seem so far off.
I know I am one of so many woman in this position currently, and I am trying not to obsess about all of this. Any advice on how to push this to the back of my mind to get through christmas and keep it together at work? x
We’ve all felt the way you do now, I remember the anxiety around all of this & the fear of the diagnosis changing or something unexpected cropping up.
I remember telling myself that if this happened, then it was good that it had been picked up, so that the treatment plan could then be changed to deal with it - easier said than done though!
As ever, the uncertainty when waiting is the worst, hopefully all will be as expected, you will deal with it.
I had an MRI and then had my surgery and SNB last wendesday to remove 39mm of tissue ,it was larger than they first thought, I am geeting anxious about the result as do not want to go through more surgeryor hear thats it spread to my nodes any tips on staying positive?
Hi BLueMonday, sorry to hear of your diagnosis and welcome to our lovely forum. I agree with everything said by our other lovely ladies but just wanted to say hello and let you know you are not alone. I'm 48 and was diagnosed back in March with grade 2 invasive locally advanced BC including local nodes. I'm ER/PR+ HER2- so will eventually be put on hormone blocking medication. I had 8 rounds of chemo then a mastectomy and lymph removal last week and will next have radiotherapy. Like Anniej said, it's all doable. It has it's ups and downs but you pick yourself back up again and get on with it. Best wishes to you and ask any questions you need to. Remember to never suffer in silence and share all concerns with your Breast unit nurses. Xx
Hi Bluemonday, sorry you find yourself here. You will find plenty of support on the forum as we have all been where you are now. I'm afraid it is very much a waiting game , and will be for a while. Waiting for tests, waiting for results , waiting for appointments . I hope you have someone to accompany you on your appointments, as I found two heads were better than one. I sometimes got into a bit of a panic mode and latched onto something instead of listening to the whole picture. I think it is very encouraging that the ductal tumour is grade one, which is the early stage. The lobular,mas you say, is a bit more difficult, which is where the MRI scan works it's magic. BC is so treatable now, whatever stage and grade. My advise would be to take one step at a time, and don't look too far ahead . Once you get results you can move to the next stage. Second guessing what may happen can be quite depressing, I found. Do not Google either, asthere are no stories of hope on there. I'm 70, have had a 23 cm. ductal tumour removed , with LN involvement. I've done my chemo, finished my radiotherapy and I'm taking my aromatise inhibitor every day like a good little girl! I'm not going to kid you and say it's easy, but I will say that it is very doable. Read up on diet and exercise, Blue, and get your weapons ready to fight this battle. We'll be with you every step of the way, and there are some very special big girl knickers we pass around when needed. Good luck. 🍀💐💋
Welcome to the forum. So sorry that you've found yourself here, but you will find lots of support and advice from all the lovely ladies on here.
Waiting for tests and results is the hardest part of the process. Once you have your treatment plan in place, you will start to feel better and have something to focus on. I had to wait about a week for an MRI and then another week for the results. As much as you probably want to get on with it, nothing will change with your BC. Grade 1 means that it is very slow growing. Sometimes lobular is difficult to detect on a mammogram, that is why they will do an MRI just to be sure.
Feeling numb sounds quite normal for what you're dealing with. I certainly walked around in a daze for a couple of weeks.
Please can and chat, and ask questions whenever you want.
Sending you a gentle hug
I have recently been diagnosed with primary breast cancer, I am wating for an appointment for a MRI and then have been told last Friday that after they get the results -they will set up a meeting to discuss treatment- how long do you usually have to wait for a MRI?-I am struggle with all the waiting and not being sure about what they have found, I was told its a mixture of lobular and ductual invasive grade 1. It was found though a routine mamagram but they did mark the area as an area to watch when I had my last mamagram 3 years ago. I have had a bi-opsy and a scan and they said my armpit looked clear. I was told that sometimes lobular can be hard to detect- I am 53 - I am quite numb at the moment-I have found the forum very useful so far-just deparate to start my treatment now.