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Waiting!

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Re: Waiting!

Results Day!

Bigger again than frist thought- MRI stated 39mm surgery 41mm lobular, duct and DICS, clear margins and no node involvement so pleased about that bit, they have sent off a sample to America to see if I need chemo, so more waiting but I can relax for Christmas at least!

 

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Re: Waiting!

thank you Rosie H for your reply, hope your planning day went okay and things are moving on for you x

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Re: Waiting!

The waiting is so emotionally draining isnt it Lye X?  I just want to think about other things again, but its constanlty on my mind, glad you have your results now though and you can move on with your treatment, my operation was on the 6th Deccember and they initially gave me an appointment for my results on the 29th December but after talking to my BN and saying I couldnt handle the waiting they mannaged to find me an appointment on the 22nd December which is still over 2 weeks  wait but its better than nearly 4. I am also expecting radiotherapy and hormone treatment but depended on what results are from my SNB not sure what else, I wish you well with your treament too x

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Re: Waiting!

I am also fed up of waiting. I found a lump but the mammogram was inconclusive so I had ultrasound and biopsy on same day. Two weeks later I was told it was grade 3 invasive duct cancer and ER+ but needed an MRI to see if it was confined to one breast. I got my BC nurse to chase up the MRI unit after a couple of days and they offered me a cancellation that afternoon. MRI was loud and seemed endless. Got the results a week later and then had wle and snb the following week on 7 December. Today I went back for my results. Lump removed with clear margins and very small amount of cancer cells in lymph node. I am now being transferred to Oncology team so I still have to wait to find out my treatment although radiotherapy and hormone therapy are pretty definite. All this waiting is the worst part. I want to get it over with. I am also 53. I wish you well.
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Re: Waiting!

Hi BlueMoonday...  I’m 46 and grade 2 Lobular Invasive. I found out a week last Friday. MRI was today ( not fun but as they say totally doable) my plan day is Wednesday. So it’s all pretty quick!! I’m just trying really hard to carry on regardless but I do sometimes feel like I’m going to burst with pent up emotion. It’s all a bit rubbish but it is amazingly treatable and that’s the main thing xx

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Re: Waiting!

Hi Dennet,
Sorry you’re joining us, but there’s fab support from everyone here.

What you’re feeling is common to most of us here, but it sounds like you are dealing with it as positively as you can. It’s really about doing what you need to for you.
Thankfully, although it doesn’t feel like it, it has been picked up so that it can be treated & nothing is going to change between now & starting treatment.

It can help not to think to far ahead, just focus on the next appointment & avoid googling, there is a time & place for google, but at this stage it just tends to feed the anxiety monster.

As far as work is concerned, it depends how you feel. Once I told key people who had to know for employment reasons, I was quite happy for it to be common knowledge, although this is not right for everyone. I had enough sick leave, so I took it, others prefer the distraction.

Do what you feel you need to, to get through & it is normal to have wobbly days, so go with the flow if it happens, rather than trying to fight it.
ann x

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Re: Waiting!

hi Denet

 

I am finding distracitng myself with other things have helped, I also got some sleeping tablets from the doctor as I wasnt sleeping, I take one when I need to.

 

I also find reading through the positive post have helped me to feel calmer. I am trying to eat well too and make sure I go for a short walk each day,I felt better when I was at work though that was a big distraction.

 

I am still recovering from the surgery I had on the 8th Decemeber, pysically I am okay, emotionally not okay. I go for my resluts this Friday if they are availble then. I am trying my hardest not to think about it but it is hard. I am trying to be positiive and take one day at a time.

 

I wish you all the best with everything, this site is so helpful for getting information and an insight into how other people are dealing with things,

 

xx

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Re: Waiting!

Hi Blue

I am new to this forum and had been reading through some of the posts. I agree the waiting is torture.

 

Reading some of the threads and knowing that so many of you have gone through this and came out the other side is reassuring.

 

I was told my tumour was breast cancer last wednesday on the 13th December, 2 days after the mammogram, ultrasound and biopsies taken. 

I knew that day i would get bad news as they were concerned. My tumour is quite large, I didnt think much of it over a long period of time as at the last mammogram I was told it was jus cysts..

 

I was told that there is LN involvement and I am now waiting on an appointment for a CT scan and bone scan.

 

I got my appointment for the bone scan through today which is the 5th January. I am not sure of anything else at this moment in time as pathology wasnt fully complete at that time. My next appointment is the 3rd january to discuss results and plans but knowing I still wont have all of the information only makes treatment seem so far off. 

 

I know I am one of so many woman in this position currently, and I am trying not to obsess about all of this. Any advice on how to push this to the back of my mind to get through christmas and keep it together at work? x

 

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Re: Waiting!

Hi bluemonday,

We’ve all felt the way you do now, I remember the anxiety around all of this & the fear of the diagnosis changing or something unexpected cropping up.

I remember telling myself that if this happened, then it was good that it had been picked up, so that the treatment plan could then be changed to deal with it - easier said than done though!

As ever, the uncertainty when waiting is the worst, hopefully all will be as expected, you will deal with it. 

ann x

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Re: Waiting!

hi

 

I  had an MRI and then had my surgery and SNB last wendesday to remove 39mm of tissue ,it was larger than they first thought, I am geeting anxious about the result as do not want to go through more surgeryor hear thats it spread to my nodes any tips on staying positive?

 

 

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Re: Waiting!

thank you for your best wishes, I hope you have a speedy recovery. xx

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Re: Waiting!

Hi BLueMonday, sorry to hear of your diagnosis and welcome to our lovely forum. I agree with everything said by our other lovely ladies but just wanted to say hello and let you know you are not alone. I'm 48 and was diagnosed back in March with grade 2 invasive locally advanced BC including local nodes. I'm ER/PR+ HER2- so will eventually be put on hormone blocking medication. I had 8 rounds of chemo then a mastectomy and lymph removal last week and will next have radiotherapy. Like Anniej said, it's all doable. It has it's ups and downs but you pick yourself back up again and get on with it. Best wishes to you and ask any questions you need to. Remember to never suffer in silence and share all concerns with your Breast unit nurses. Xx

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Re: Waiting!

hi ann, thank you for your reply-I will try staying posiitve xx

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Re: Waiting!

thank you for your reply and advice-its all very helpful xx

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Re: Waiting!

Hi Bm,
I was diagnosed in Feb last year following 2nd screening mammo. As my first mammo was clear, it turned out to be an early diagnosis, as below.
I had a wide local excision - day surgery, followed by radiotherapy approx 2 months later. As it was er+ (oestrogen positive), I am now on tamoxifen for 10 years.
From biopsy it was initially grade 1, then went to grade 2 on the final results, but this did not change the treatment plan. I was back to normal within a few months.
Wise words from Annie, just take it a stage at a time, I found it helpful not to think beyond the next appointment or overthink it. Your team will tell you what you need to know.
ann x
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Re: Waiting!

Hi Bluemonday,  sorry you find yourself here. You will find plenty of support on the forum as we have all been where you are now. I'm afraid it is very much a waiting game , and will be for a while. Waiting for tests, waiting for results , waiting for appointments . I hope you have someone to accompany you on your appointments, as I found two heads were better than one. I sometimes got into a bit of a panic mode and latched onto something instead of listening to the whole picture. I think it is very encouraging that the ductal tumour is grade one, which is the early stage. The lobular,mas you say, is a bit more difficult, which is where the MRI  scan works it's magic. BC is so treatable now,  whatever stage and grade. My advise would be to take one step at a time, and don't look too far ahead . Once you get results you can move to the next stage. Second guessing what may happen can be quite depressing, I found. Do not Google either, asthere are no stories of hope on there. I'm 70, have had a 23 cm. ductal tumour removed , with LN involvement. I've done my chemo, finished my radiotherapy and I'm taking my aromatise inhibitor every day like a good little girl! I'm not going to kid you and say it's easy, but I will say that it is very doable. Read up on diet and exercise, Blue, and get your weapons ready to fight this battle. We'll be with you every step of the way, and there are some very special big girl knickers we pass around when needed. Good luck. 🍀💐💋

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Re: Waiting!

thank you for your kind words xx

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Re: Waiting!

The waiting is definitely the worst bit - I am sure all the people here would agree with that.

Take care and be kind to yourself.

xxx

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Re: Waiting!

thank you for your reply, yes you are right I know its better to have the MRI then they can give me the correct treatment, how long ago did you start your treatment, what did you have? xx
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Re: Waiting!

Hi Bluemonday
Your situation is similar to mine when diagnosed. Mine was detected on second mammo. Following biopsy I also had a mixed picture-lobular/ductal. The mri was done within the week, to make sure there wasn’t any more lobular present.
I did find it stressful waiting for the mri, but now I’m out the other side, I was very glad it was done, as I was confident that everything was done to get the correct diagnosis & treatment plan for me. As it turned out, nothing further was found & the final results after surgery came back as ductal bc.
What you’re feeling is quite normal, but it does get better when treatment starts & you know where you are with it all.
Do come back & chat ask anything you feel you need to.
ann x
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Re: Waiting!

thank you for your reply, I agree the waiting part is hard, its useful to know about the MRI waiting times.

 

xx

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Re: Waiting!

Hi

Welcome to the forum. So sorry that you've found yourself here, but you will find lots of support and advice from all the lovely ladies on here.

Waiting for tests and results is the hardest part of the process. Once you have your treatment plan in place, you will start to feel better and have something to focus on. I had to wait about a week for an MRI and then another week for the results. As much as you probably want to get on with it, nothing will change with your BC. Grade 1 means that it is very slow growing. Sometimes lobular is difficult to detect on a mammogram, that is why they will do an MRI just to be sure.

Feeling numb sounds quite normal for what you're dealing with. I certainly walked around in a daze for a couple of weeks.

Please can and chat, and ask questions whenever you want.

Sending you a gentle hug

Sue xx

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Waiting!

Hello Everyone

 

I have recently been diagnosed with primary breast cancer, I am wating for an appointment for a MRI and then have been told last Friday that after they get the results -they will set up a meeting to discuss treatment- how long do you usually have to wait for a MRI?-I am struggle with all the waiting and not being sure about what they have found, I was told its a mixture of lobular and ductual invasive grade 1. It was found though a routine mamagram but they did mark the area as an area to watch when I had my last mamagram 3 years ago. I have had a bi-opsy and a scan and they said my armpit looked clear. I was told that sometimes lobular can be hard to detect- I am 53 - I am quite numb at the moment-I have found the forum very useful so far-just deparate to start my treatment now.