Patient and Advice Liason service PALS sorry, realised that i didnt write this in early post x
just seem email when you reply, hence this little messge... take care
Had poor treatment in hospital, some years ago, following a reconstruction, as first one had capsulated. The staff were, in a word, sloppy, and as a staff nurse myself in the hospital, could see how poor the care was. So, what I did, was write to PALS, and bullet point all concerns. I did d this, and at same time did praise some aspects of my care...you must complain,even if this is to prevent it happening again. In my case, my letter went to ward manager, and reply was not satisfactory, according to PALS, so they took it further. Outcome was brilliant, and the surgeon actually stopped using that particular ward.Let us know how you do......not easy to do, as you are feeling wobbly, probably.
In this area, we get superb treatment and respect. All letters are copied to GP and patient, clinic will take phone calls anytime and phone back, we can ask for appts to talk things through at any time, and GPS work well with clinic.
Even so there can be glitches - I was given some inaccurate information about recon which took 2 years to sort out. The factors that made this easier to handle were
1. I had made full notes immediately after every appt
2. I gave my GP copies of my letters to the clinic to scan in for my records
3. I asked my GP to read my letters before I posted them to make sure I had not been offensive in any way
I am now nearly 4 years on, and know the support from the clinic is still there if needed.
So why are clinics/hospitals so different???? I think it may be due to scale, smaller hospitals/dedicated clinics seem to do a better more personal job than ward's in huge hospitals. It seems the problems are NOT the actual care, rather the management standards. Just a thought.
ive had a few problems too
gp mis diagnosed - the fatty lump was actually worth looking at - i then had mx and anc. i cant help thinking that if i had gone to the clinic that 8 months earlier i might not have had 12 nodes affected. she's very nice to me now though.
when i was getting ultrasound, the nurse pointed out all the cancer! before anyone else had spoken to me about it! shock isnt the word. then the surgeon broke the news to me again, then the bc nurse rang me and told me again!!!
the bc nurse gave me no warning for op - i had 30 seconds to decide delayed or immediate recon. the bc nurse never answered one message left either, or told anyone else anything when she was away.
they lost my notes before pre op, no one knew what op i was having - including me!
they lost my notes twice in oncology - but the nurse said this was ok, they would just turn up in someone elses notes eventually!!
now getting rads, they did my discharge appointment last week with 10 rads to go? dont know how that works, and theres no follw on appointment, just a 1 year examination by someone but they dont know who.
angry isnt the word!