Lankylass, just wrote a long reply and it's gone!!!! I've completed 11 weekly Pax afte3r 3 x FEC, cold capping all the way - what a slog! Hands and nails have held up - I've been moisturising daily. Absolutely shattered, probably worst side effect. Hair, eyebrows and lashes still intact (somehow!). Keep going, it's definately doable and that's with a husband having a knee replacement 5 weeks ago whilst I was still undergoing chemo (total nightmare) - running around after kids and husband, reconstruction in 3 weeks and then 3 weeks of rads....... hopefully hubby will step up, but not convinced.
Number 2 yesterday went ok but was I fed up after the hour long premeds iv! Now I know what the term 'half asleep' means, upper body asleep but legs very much alive and kicking. As the paclitaxel was being iv'd over an hour, I was dozing off with the antihistamines and my legs were thrashing around, I couldn't keep still with restless leg syndrome. And so cold, I was given a blanket. Has anyone else had this probem? Couldn't work out whether it was the steroids and antihistamines fighting each other again, or the paclitaxel.
Am eating like a horse - had four hours sleep last night, up at 4am, had two breakfasts, elevenses, lunch and biscuits every hour, now about to have tea. Am expecting to be in bed asleep all Bank Hol weekend, catching up.
It is very strange having this every week, every Tue picc linecare and bloods, then Wednesday comes round so quickly. Anyway next Wed it will be no 3 and then the rest (9) will be single figures - countdown......and SO much better so far, than the goddam awful FEC!
Hope all you ladies are doing ok and are planning as far as poss to have an enjoyable Bank Hol weekend.
Had the first weekly taxol of 12 today. Some folk seem to have three then a week off, rinse and repeat. However just glad the time will pass quickly if it is every week without a break. The premeds took longer - 20mg dex steroids, phew- was only 8mg for FEC but none to bring home. Had emend capsule and metclopr antisickness and some to take home, piriton antihistamine and an oral omeprazole for tum instead of ranitidine iv as I'm allergic to that. Herceptin jab in thigh first as was monitored for 2hrs while they were doing the other stuff, to check for reaction - will be every month and although it takes 2 mins to put in, and nurse warned me it might hurt etc, it was really a piece of cake comparatively speaking. 6 months of those as I'm on the Persephone trial.
Came home after 5 hrs, had a lovely massage after treatment, crashed out for 2hrs. The steroids and antihistamines are fighting each other so I alternately swing from the chandeliers and eat like a horse, then crash and can't move. Don't suppose I'll find out what the taxol side effects are till all that lot wears off!! Was told to paint nails and slather on the factor 50 sunscreen, if we have a summer that is.
Nice to hear positives about weekly paclitaxel over three weeks instead of three weekly docetaxel, as I've just done 2 FEC and number 3 has been abandoned due to bad s/e, heart probs. Onc says this regime is 'kinder' - well I suppose it's all relative really! And herceptin jab too if the echo comes back ok and I am able to have it at same time as pac.
Hi riversdawn, my oncologist has me down for this after 4×AC. She said its much easier cos the weekly dose is smaller...some times your hair even grows back!
Mine will be alongside herceptin.
Thank you Karen2609 and Nan66. There's so much to read about Taxotere side effects but nothing for Taxol so it's useful to learn your experiences. I appreciate we're all different! Nan66 did you cold cap?
I cold capped with FEC and have done really well so far - went a bit thin after the first dose, nothing lost after no 2 and so far nothing on no 3, although I'm day 13 so any day now!
I've got omeprazole and movicol so will keep going. I've been told I will only be given steroids to take the day before, on the day and day after and that's it, for the first dose anyway.
Thanks for your comments ladies. I hope all continues well for you.
I'm sorry you haven't had any replies to your post yet. This might be something our Helpline could help with. The opening times are 9-5 on weekdays and 10-2 on Saturdays. The number is 0808 800 6000
Very best wishes
I've had 3 FEC cycles and am due to start Paclitaxel next week x 12 weekly cycles. All information seems to talk about side effects based on 3 weekly cycles not weekly and I wondered if anyone out there can share their experiences please?
I'm confused that if infection risk period is day 7-14 and hair loss around day 14 I'll be onto second or third round by then so it sounds like it's a rolling constant thing?
My oncologist said SEs will be minimal, I won't need anti sickness drugs and my hair shouldn't fall out - but that's not what the info leaflet says!