Sorry to hear about your latest diagnosis Jan. Like you say it's a double whammy and probably something you could've done without 😞
I am doing the Race for Life in Ipswich on June 15th, walking/running 5k to try and raise funds for Cancer Research. I'm going to try and run rather than walk but considering I ended up in hospital with an infection after my first week of training a couple of weeks ago, I may have to take it a bit easier!! I know you have all probably been inundated with donation requests before and since diagnosis but if any of you would like to give to the cause that is so close to all our hearts then please pm me and I will forward you the link. Any donation, however small will be greatly appreciated.
Hope you are all keeping well and getting over the fatigue from all the treatment.
Haven't been on here for ages but it's good to catch up with all your posts. My hair is also coming through in an interesting way - I look like I've seen a ghost when I get up in the morning as it sticks straight up! I'm very tempted to cut it off again, but am curious as to what it will do next as it's curling and is a completely different colour. This year has been full on so far, had a scare also and it was also scar tissue which was a relief and at least I have been thoroughly checked over. However I was diagnosed with Systemic Sclerosis in January which was a double whammy. Obviously this is something that was probably underlying before BC but given the timing of the symptoms which came on as soon as I finished chemo & radio, I'm sure it was triggered by treatment, although noone will confirm that. It's something I guess I'll have to live with but am hoping that symptoms will improve with time rather than the reverse. Worst thing for me is the constant fatigue which I'm struggling to keep at bay and also not knowing whether something that's happening in my body is as a result of treatment, early menopause or the sclerosis. Maybe it's best not to know sometimes!! Hope you are all keeping well and big hugs to you all. Janxx
Happy Easter to all January Jem's. Haven't been on here for a while. Hope all are keeping well. I see my Surgeon next Thursday so will talk about recon. Also completed Herceptin so feel things are improving.
Hi everyone....How nice to hear from you Joyce, but sorry that you are suffering a bit mentally. I know what you mean about hair like a privet hedge and the floppy boob. lol. Just come back from a mammogram today. I was surprised I was sent for one as at Christmas I was told not to go back for a year. I too have a weight problem but I have been dieting and have lost a few pounds. I think the anti-depressant tablets I were on made me put on weight. Sorry to hear you had a bad time when you had your breast reduction...I am in good health at the moment so I do worry about putting myself through the whole reconstruction thing.
Good luck with your job and I think it's wise to get counselling....I know I should have done when I was having treatment. Hope all you other ladies keep going in the right direction and wishing you all a very Happy Easter. Irenee xxx
Hello Ladies, just thought I would check in too as it's been some time. I am doing okay physically apart from still lumpy on reconstructed boob, joint pains, still 1.5 stone overweight, hair looks like a privet hedge, libido almost completely disappeared thanks to Letrozole and still have trouble sleeping sometimes and when I look in the mirror I see someone 20 years older, so mentally, as you can tell, I am not great. I will seek counselling as I have had a couple of panic attacks and still get scared sometimes that cancer will come back... somewhere.... On a positive note, I am back to work on the 1st May and am atleast aware that I have issues that need talking though.
I am really glad that things are going generally okay for you ladies. I have one DD floppy boob and a pert C which was created like a breast reduction and it looks and feels nice, but I am years away from having the other one reduced to match, just can't face it as I had such a hard time (had to go into Theatre twice in 14 hours, due to a large Haematoma).
Keep smiling all you lovely ladies and keep well and happy! Joyce xx
Hi Sarah, the last few were pretty rough. The nails, runny nose, fatigue and feeling generally rotten. Disturbed sleep as well.
Hi Irene, My implant has gone wonky. Its moved alot. The fatigue is pretty awful. Hopefully this will now cease given Iv had my last Herceptin. I hope you ladies are all doing great.
Hi Caroline...glad you have finished with the Herceptin .... you can start to build up some strength now hopefully. What happened with the implant?....Know what you mean about being breast free....It would solve a few problems. Hope everyone is ok. Hugs Irenee xx
Dear Ladies, I hope you are all doing well. I have just had my last Herceptin - its been really difficult since my 14th infusion. Lots of side effects and fatigue. I am now moving on to thinking what my breasts and what surgery I will have. Iv had an implant that did not work. So Im thinking going with no breasts.
Hi Morwenna, I too am dithering about what type of reconstruction to have...I will have to have them both done as I am so lopsided...just want it all to be over and done with...but then I think will I regret having it done as some women are not happy with their reconstructions. Anyway going to put it to the back of my mind until May. Hugs Irenee xxxx
Hi everyone...Great to hear form you Yvonne....so pleased you are doing well. It's been ages since you posted. The holiday sounded fab. Rhonda, hope you got to wear your swimsuit and show off your figure.
I have to go for a mammogram soon (just routine) and next week my daughter has a mammogram. Hopefully after mine I can have my reconstruction. Enjoy the sunshine girls and keep well. Irenee xx
I haven't been here for ages as I really don't like the new site but as I keep getting copies of your posts I thought I'd better reply.
I'm doing REALLY well, got totally discharged by the oncologist yesterday so I don't have any more check-ups apart from the annual mammo
I've suffered a lot with periferal neoropathy in my hands and feet, to the extent that I couldn't hold a cup or a knife and fork or walk very far. My lovely BCN referred me for a course of acupuncture which has had amazing results. I'd always thought of acupuncture as "mumbo jumbo" but have definitely changed my opinion. While I'll probably have PN to a certain degree for a few more years I can now use my hands again, in fact I'm crocheting like mad again, and my feet are tolerable.
Take care & stay well,
Hi Sarah....Nice to know you are doing fine. You are near the end of treatment and have a job you love (so envious of that one)..always wanted work not to be a drag. Enjoy your holidays. Hugs Irenee xxx
Have a great time Rhonda. Let us know how you got on when you come back. You made me laugh about your reconstruction booby...think of us when you are downing those cocktails. Hugs Irenee xxxx
Hi Rhonda, How great to hear from you and I am so pleased things turned out well after that awful scare. I can imagine how you felt. I am envious that you have curls...mine has a slight wave but I keep it short....it's so much easier to deal with. I haven't had reconstruction yet as my husband has been poorly. He has had a gastric ulcer and has been in hospital but is doing fine now. I have an appointment in April to discuss reconstruction. All in all I am feeling well and happy...so pleased all is well for you and wishing all the other Jems health and happiness. Irenee xxx
Hi ladies, thank you for the supportive posts. Im feeling much better now. Its week no 2 so side effects are starting to abate.
I can only echo what Rhonda and Sarah have said Caroline.....hope you feel better soon. Wishing you all a happy and healthy 2014. xxxx Irenee
Hope all you lovely ladies are moving on.
Herceptin no 14 on Friday past was pretty hard. Im pooped and just weary. Also fell on to the road yesterday - felt really weak. Hubby and a local picked me up. Feeling better today - had walk in countryside. Laying on the sofa now. Sleepy but cant sleep. This bloody treatment is so **bleep**. RANT OVER.
Here is a link to the thread Morwenna mentioned about starting chemo in Jan 2014.
With best wishes
My husband complained of the pictures
'Haunted Houses'...the nurse declared
On the walls of my Breast Clinic
I used to gaze at them in despair.
Now a year on I felt much stronger,
But old fears within me burned
I gripped my husbands hand tightly
What if the cancers returned?
My turn now and the nurse smiled politely
And once more I face my fear.....
A ray of sun fell on those haunted houses
'You're fine...we will see you next year!'
Hi all, I am hoping to go for reconstruction in January if all is well with mammogram. I am also triple neg. so I am not on follow up treatment. Well done for your group getiing a gold in the singing contest Morwenna. One of my friends has recently been dx in her other breast after having a mx 7 years ago, We can only live each day to the full no one knows what is round the corner. Irenee xx
Good to see that others are getting good news re mammograms scary time for us all following a BC diagnosis.
How many have had reconstruction from the January jem's?
I hope and pray we all continue to recover and gain strength from each other.