So glad your result's came back clear.
Sorry you have lost confidence in your Local Hospital.
Hope all goes well with your reconstruction.
I forgot to even mention recon at my last appt but will ask for it as soon as I have finished Herceptin in March next year.
Hi Curleychris, I have just received my results of mamo. They were all clear. I did not have my mastectomy/implant side scanned. I was told they would scan this every two years. I am still having herceptin and seeing private breast surgeon in Central London next week. I have lost confiudence in my local hospital in terms of care. So have advised my surgeon at local hospital - that i would like him to tandem with the private surgeon.
I hope all is well with you all.
Glad all is going well for you CurlyChris, I was grade 3 with 1 node affected. Rhonda, you must be well pleased, you have had reconstruction etc, and mammograms are clear,, great news. Morwenna, Glad you are doing so well. We have all come quite a way since this time last year. I might have reconstruction if all is well after mammogram. Hope everyone else is ok. Irenee xx
Hi there i was a January jem too but it is only now that I am looking on Breast cancer care.
I completed chemo the end of May and am now just over half way through herceptin.
Not having radiotherapy Was grade 3 and had 1 of 16 nodes positive Right Mx and total clearance of nodes.
Had my Annual checks recently and all good so far. Hope
you are all doing well we have survived a year.
To those due to start in January take heart it ids douable.
Sorry you can't edit your posts, you should be able to, so I have passed this on to our techies for them to have a look at your account.
Hi Joyce, unfortunately I have already attended this course in a hospital in Central London. However, I met some lovely people there from or near my area. I have since met up with them twice for coffee and meeting up again next Friday You will meet like minded people at this course and do not be afraid to discuss meeting up. DM me with your mobile number or contact number if you would like to meet up sometime.
That sounds good Caroline - maybe we could arrange to meet up there? Are you going to the 'Look good, feel great' workshop in November? I live in West London. Joyce
Thanks Yvonne, I appreciate your reply. One of the down sides of being treated at a private hospital was that I didn't meet any other patients. I had my chemo in my own bedroom with my 'guest' and that was it. They offered counselling and massage but that was it. So I have to find people myself - I know that they are out there.... and hopefully I will meet some at The Haven in Fulham.. glad life is treating you well... Joyce x
It's hard when you feel isolated during treatment. Living on the boat meant I couldn't go to any of the support groups etc at the hospital, so I was really thankful to find this forum. I transferred to the February group though when my treatment kept being delayed. The February Valentines saved my life - literally. We now have a private FB group where we can post non BC stuff and some of us are meeting in London on Monday.
Could your BCN put you in touch with another lady with BC in your area, it's so common there must be someone who lives near you.
I started Letrozole, which increased menopause symptoms. I feel I have developed mood swings which are awful, sometimes as I can hear myself being so irrational. I do apologise afterwards and am aware of my behaviour, but it makes me sad as I wasn't like that before. I recently visited the Haven in Fulham, London as I wanted to find a place where I 'belong' and to meet others like me - I have not met one person with breast cancer throughout my treatment. It's a centre for those who have, or have had breast cancer and their families. They offer many diverse services and all aimed at improving our lives physically and mentally. I feel I need something. I can't just go back to my normal life as it doesn't seem to exist anymore as I have changed myself. I hope I don't sound to negative because I don't mean to. I am, by default, a very positive person but I do recognise that I need some help and hopefully the Haven can help me do that. Hugs, Jxx
Hi Ladies, I havent been on here either. I attended a Health Retreat in Cornwall called The Raw Retreat. It was amazing and informative.
Hi Jenny, I'm still here, currently one third thru my radiotherapy and have been taking Letrozole for a few weeks now. Feel very tired in the afternoons (meds/menopause or rads?) but don't nap. Tired but can't sleep at night and wake up in the middle of the night. Occasionally use low dose Zopliclone, which helps, but don't want to take it every night. Other than that I am fine! How about you? I guess many people from our group have returned to the big wide world now. I plan to get back to work late December or early Jan in a phased process. Hope you are doing okay... Joyce x
Thanks Girls - I have a planning session on Monday for my radiotherapy and starting Letrozole. That's about it really... feeling low today, but then I always try and think about others that are so much worse off.. Take care all... Joyce xx
Hi Joyce, nice to hear from you again.
Have you tried claiming Employment Support Allowance? Cancer patients can claim it for 12 months providing you have paid enough NI contributions. It's about £75 for the first 12 weeks and then £106 a week until 12 months. It's not much I agree but better than nothing.
Hello Ladies - I have not been here since my op at the end of July. It was a nightmare! I wish I had had surgery first and then chemo, it would have made a huge difference to my recovery. I ended up in Theatre twice and it was effing painful. Still waiting for an appointment to start 4 weeks radiotherapy. I have a horrible eye tic under my eye and my knee joints feel knackered and painful. But you know, apart from that - I am fine! I had alot of trouble finding this forum again, but I am glad to be back. We are all emerging from this in our own ways. I know this Christmas will be a special time for me and my family - albeit a tighter one. I have not been paid for months now and am not eligible for one penny from state benefits. So, I do feel penalised financially for having cancer, but I can't go back to work until I am fit enough. Hugs to everyone - especially Sandra who has been the backbone of this forum since we all started, stay strong girlie... Joyce x
I do lots of stretching and it does seem to help.
My hands and feet are really bad, especially in the morning. I had a bit of arthritis before chemo but it's much worse now. I've got an appointment with the onc on Thursday so I'm going to mention it to him. I'm hoping he'll sign me off for 6 months, it'll be so nice not to have to think about going back to the hospital till next year.
Hi ! I really do not like this Forum either Yvonne, it's taken me forever to log on and then after replying and previewing my reply I lost it and here I am starting all over again! Ugh!!!! Now I've no idea if this will end up in the right place. I'm sure others may have given up trying to post!
Thank you for your reassuring messages, it is sad how the people you care about react sometimes. I will definitely be doing a certain amount of culling friendships as I also no longer have the energy to keep it up.
Rhonda good luck with the cording and keep up the stretching, you will get there eventually. My physio did alot of stretching along the cord itself and I spent many an evening with my arm above my head. It seemed to work, but she said to me to listen to my body and do what I felt it needed because as you know everyone tells you something different. When radiographers were telling me to do certain exercises x times a day, she said not to but do what I felt was right and sometimes I made the most progress with my arm after doing nothing for a few days but just resting it!
I'm now experiencing alot of joint pain and stiffness especially hands and feet so am hoping it's still ongoing side effects and nothing else, will check it out if it carries on.
Hope you are all having a good week.
Lots of hugs
Hi Jems, Hope the cording issue improves soon Rhonda, and it's great to hear that the physio worked so well Jan. I have also found out who my real friends are after going through this.....and the one thing that got me down was at the beginning some friends and members of the family just said how shocked they were I had cancer and I found it was me comforting them and not the other way round. 😞 My husband and daughters have been my real support. I also have a mammogram coming up shortly...can't believe its nearly a year since that awful visit to the doctors.
Hope the rest of you Jems are moving forward. Irenee
Hi Jan nice to hear from you again, glad you got your arm sorted.
My mother hasn't bothered with me since I was DX, I found people who I'd thought good friends just sank into the background but more casual acquaintances and even total strangers proved to be the biggest help and the kindest.
Before they changed the forum I used to come on regularly and try to help the newbies but I really don't like this new layout as I c ant find anything anymore so I don't bother. I think that a real shame as when I was first dx and all through chemo I had lots of advice and support from women who had come t hrough it themselves.
I hope the moderators read these posts and realise what a big mistake they have made. The forum might now be much more modern but they should realise that the women who need to use it are usually a bit less techie and also coping with chemo brain.
Hope you continue to improve. I'm also TN and have just been put on 6 month review. I'm also really glad I don't have to take tablets for the next 5 of 10 years.