71719members
376213posts
cancel
Showing results for 
Search instead for 
Did you mean: 

What a carry on!!!!

5 REPLIES 5
Julie22
Member

Re: What a carry on!!!!

Hi Jo

I am glad I've been of some help. I'm usually pretty useless, ha ha.

Sorry that your bc nurse isn't much use. I have to say mine were great, both the ones at my local hospital, where coindentally I work as well, so that always helps, but also the bc nurse at the RVI, where I had all my reconstruction was fab. She also did my nipple tattooing as well, and she was great. They made my nipples out of my original areola, and then tattooed the area around them to create a new areola, if that makes sense. Apparently the cancer can be in the nipple through the milk ducts, but not actually in the areola, so they said, so apparently that is how they reused that to make new nipples. Before I had the tattooing done, they always used to remind me of jelly tots, ha, ha. No bl***y sensation though. Still you can't have everything.

Keep me informed of your progress and let me know how you get on though.

Julie x

ForumMember
Member

Re: What a carry on!!!!

Hi Julie
Thanks again for your words of wisdom, Im going to ask tomorrow at plastics about softie because my BC nurse is as much use as a chocolate fireguard she never answers my calls or calls me back whenI leave a message. You have put my mind at rest about my little niggles and I appreciate that, I think i will be ok with prosthesis because I am heavy all over so a bit more wont be that noticable lol, Ive got 1 great looking boob now, it hasnt looked this good since before the kids came along, just have to wait for expander to go back in now and see what the results look like at the end. I told my other half I might get a stick on nipple and he can play target practice with it lol. So glad everything was ok with your liver.

Thanks again hun

Take care

Jo xx

Julie22
Member

Re: What a carry on!!!!

Hi Jo

I got softies given to me by the Breast Care Nurse at the hospital where I had my implants taken out, and the my further recon done. Ask your Breast Care Nurse and get her to point you in the right direction. They should give you them at the hospital, but ask her. My prosthesis I got through the Breast Care Nurse at my local hospital, where I went for my reviews. The Breast Surgeon was from my local hospital, the plastic surgeon was from a hospital 10 miles away, but they did the surgery together initially and then I had all my plastics at the hospital 10 miles away in Newcastle. The prosthesis was yuk. Think I only wore it a couple of times. When I was poorly and recovering I was very thin, went down to 7 and a half stone at one point, when the breasts came off, and constantly being sick etc with antibiotics etc. Augmentin made my really sick and nauseous, so was quite thin, and my chest bones were quite prominent, so the prosthesis just seemed at the time heavy and uncomfortable in my bra. They tried different sizes, but I found the softie better for me, however, obviously everyone is different, and what suits one won't necessarily suit another.

The scarring does itch like mad, but I think that is actually the healing process. When anything is healing it does tend to itch, but obviously keep an eye on it. Always watch out for any signs of infection. You normally feel unwell, feverish, and the area can go red. I know mine was very itchy, wanted to scratch and scratch, but did settle eventually. My implants still feel tight a bit now. Unfortunately they're never going to feel like your original breast. It's an absolute pain, as you know, going from a decent size natural breast to having recon, but it's like anything, you get used to it eventually. I had a cracking pair before, and I'll never feel 100% happy with these, but at the end of the day there are so many worse off than me. I had a scare a few months ago when they found some patches on my liver, had a terrifying 3 weeks until an MRI showed them to be a cyst and a hemangioma, and one of the ladies on the secondaries site saw me through it all with words of encouragement etc. So at the end of the day, boobs aren't brilliant, but no one could tell, and I'm still here to tell the tale, that's the way I look at it.

I am surprised they didn't give you any other treatment, but all hospitals are different. I didn't have any chemo or rads, but they thought as it wasn't in nodes and having such radical surgery that I didn't need it. I take the Tamoxifen every day, but don't have any problems with it as some people seem to.

Anyway best of luck. Just take each day as it comes, and I know it's hard, but be patient, you will get there eventually.

Lots of Love

Julie xx

ForumMember
Member

Re: What a carry on!!!!

Hi Julie
Wow what a performance u had too!! Thanks for replying it just all gets a bit much, no-one is forward at giving answers to anything i ask makes me think theyre trying to cover something up lol. The scarring is itching like mad and my reduced good boob sometimes feels tight as does my non boob side lol. But yeah its the constant dressing changes and my body dosnt like the dressings they use, I keep getting a reaction to them but they tried them all now so will have to put up with it. Im lucky having no other treatment not even tamoxifen just yearly screenings for 5 years. Im fed up with stuffing my bra with cottonwool im a big woman (so need loads lol) and cant always get a good shape who would it be that gives me a softie or prosthesis do u know??

Take care

Jo xx

Julie22
Member

Re: What a carry on!!!!

Hi
I had a very similar experience over 3 years ago. Had bilateral mastectomies followed by immediate recon, but then 3 days after being discharged froms hospital (I was in hospital for five days) developed an infection in the left side, was dizzy, sickly, felt as if I had flu, at one point felt as if I couldn't breathe properly when I was lying down, plus was bleeding very heavily from the site of the nipple. Horrendous. Anyway, admitted to our local A & E department, then whisked up to the specialist ward in another hospital, where I had to have the implants out after 3 days. They tried intravenous antibiotics at first, but still didn't make a difference, then they scanned it, and there was a massive infection as well as a haematoma. So my newly prized boobs had to go. I had nicknamed them pinky and perky, so was devastated at the time. I also lost a patch of skin about the size of a 50p piece at the time when the implant came out, they thought a skin graft might be necessary, but luckily it wasn't. Skin healed in time. I then had to wait for everything to heal over a few months. Then I had expanders put in the gradually built up over another few months. I would go every 4 weeks and have the fluid injected, and see them gradually increase, it felt a bit like Christmas every time they increased a bit. Had my final op in December 05, had the expanders exchanged for silicone implants. They look great in a bra, you'd never know, but because I've put a few pounds on since it was initially done, I was just under 8 st, when it happened and now about 8 st 12, I have got some slight creasing at the top, but you can't see it in a lower cut top. The plastic surgeon is talking of injecting some fat into the creased areas if I want to try and fill it out, but I'll see how I feel. At the minute in two minds.

When my initial infection happened I had to go back and forward to the dressings clinic for weeks and weeks until everything healed. It was a long haul, and it was so sore at times, but you'll get there, just hold in there. I just bought the stiff sort of bra's that more or less stand up on their own, had some pretty ones from Next, put my softies in, just wore plain round necked t-shirts, and no one was any the wiser.. The bras I wore were underwired, so they used to tell me off whenever I went to the plastics clinic, but I always made sure they were comfortable and plenty of room, so they weren't rubbing. I was given a prosthesis for one of the sides, where I had the infection, because that obviously took longer to be reconstructed again, but I couldn't stand it. It was heavy, I didn't like the way it looked, and it made me sweat. Plus they have a slight nipple shape on, and the nipple was always at a different angle to my nipple on the other side ha, ha. I found the softies put in a decent more solid bra were much better.

It wasn't in any of my nodes, didn't have chemo or rads, and am on Tamoxifen for 5 years.

It's a long haul sometimes with reconstruction. They don't always warn you of the things that can go wrong, and it can be very depressing, but you'll get there eventually I'm sure. When I was in hospital having the implants removed, I was in a bed opposite a lovely lady, who was in having a mastectomy, but no reconstruction. She was in her 60s and didn't want to put herself through it. She had seen me come in vomiting, and so ill, with the curtain around the bed for 3 days, and she was amazed when I said I was going to have them redone and put myself through it all again, but you have to be determined that you will get there eventually. And I did, and you will, so hang on in there.

P.S. You whinge all the like. I think you're b****y well entitled.

Julie x

ForumMember
Member

What a carry on!!!!

Hi
I had a mastectomy on the 10 may and recon on good side and was sent home 23 hours later!!! Had complication whereby the expander they installed got infected and i had to be readmitted to hospital 6 days later for surgery to remove expander and wash out of infected area they got 150ml of infection out plus what was already in the drain!! Was then in hospital for a week on antibiotics. Now having to go to dressing clinic regularly for a huge blood blister on good side which turned nasty. Not heard or seen anything from BC nurse tho left her lots of messages, after all this the good news is that they got all the DCIS (143mm high grade) with clear margins and negative on the lymph nodes so no more treatment required!!! apart from will have to go back for implant at some stage and blood blister shows no sign of clearing up how does this happen?? getting really fed up with all the visits to the dressing clinic and no real answers from any one when will i get a softee or prosthesis ??

Any advice pleeeeeese
sorry to whinge

Joxx