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What a journey!

18 REPLIES 18
Magical_Moon
Member

Re: What a journey!

MaxyMoo,
Fantastic news, it is a wonderful feeling knowing BC hasn't spread to lymph nodes.
Have a lovely Christmas and enjoy yourself before you start rads in January.
Wishing you all the best in the New Year.
M xxx
Jonamo
Member

Re: What a journey!

Great news for you! You can really enjoy Christmas now!
A x
maxy-moo
Member

Re: What a journey!

Hi All

 

Journey nearly at an end... results from lymph node biopsy was clear - yippee. So the cancer has not spread and I start radiotherapy in January to ensure it  stays away.

 

Have a lovely Christmas everyone, I know I will. Good luck to you all going through treatment.

bobtail61
Member

Re: What a journey!

Hi Maxy-Moo

Went back to work couple of days after SNB, arm just a bit sore. Still a bit numb even after several weeks. Have no date yet for lumpectomy, expecting several months on hormones  to shrink the tumour. Just coming to 1 month, but starting to get a bit anxious wondering if it is going to work.

Wish you luck with your results

Jonamo
Member

Re: What a journey!

The worst feeling....hope it goes well for you. Good Luck.
A x
maxy-moo
Member

Re: What a journey!

Starting to feel nervous now - get results on tuesday from lymph node biopsy x x x
Guest user
Not applicable

Re: What a journey!

Hello, Originally I was told lumpectomy, lymph node check and radiotherapy, like everyone says things change all the time, I had 1 lymph node which contained cancer so Ive just had a full node clearance operation - very different to first operation - alot more pain etc....  awaiting now results and cross fingers will still be radiotheraphy and hormones - we all need good news out of the bad. chins up. xxxx

maxy-moo
Member

Re: What a journey!

Hi Bobtail

 

Try to keep positive, I know its hard when you expect good news and then its not what you expected.  I thought that my radio-therapy would be over for Christmas but now I dont know when it will start until after my results. How are you after SNB, I notice you are back at work - how long did you have off? I am hoping to go back Monday, but have 120 mile round trip to work and back and at the moment my arm is very sore. Do you have a date for lumpectomy yet? love and hugs.

maxy-moo
Member

Re: What a journey!

Thank you for best wishes - SNB done, now a long wait for results.

Dana1
Member

Re: What a journey!

Hi Maxy-moo

Good luck today - you will be fine but will be thinking of you. Xx
maxy-moo
Member

Re: What a journey!

Sat in hospital waiting to go and have sentinal node checked. 5th on list so a long wait ahead x
bobtail61
Member

Re: What a journey!

I am a recent reluctant recruit, and just trying to come to terms with everything. Felt so lucky that it was grade 1, although 40mm. Had SNB and last week had the result that 1 node positive. I had been trying to be very positive,  but this latest news has thrown me into a panic. Have just started letrazole to hopefully shrink the tumour before lumpectomy. Rads & possibly chemo to follow.

I wish everyone all the very best on this journey, feel for you all, waiting for results, and treatments is just awful. I have not been able to get cancer out of my head all weekend, and will be glad to go to work tomorrow to focus on something else.

Very best wishes to you all

minig
Member

Re: What a journey!

Hi Maxy, I was also worried by the word invasive at first until the dr told me it just meant that the cells had the potential to spread but that doesn't mean they have spread. Hope that helps! The waiting is definitely the worst bit. It's much easier when you have your treatment plan. Best of luck! xxx
Magical_Moon
Member

Re: What a journey!

Hello MaxyMoo,

We all feel the same at the beginning of the cancer journey because nothing is definite until you have the necessary biopsies and pathology results. I'm further along the process from you but it isn't long ago since I was waiting for my pathology results with all my fingers crossed.

Good Luck for your next biopsy which I'm assuming is to check the sentinel lymph nodes. Once you know the results you will begin to feel more in control of the situation.

I was one of the lucky ones with Stage 1a cancer. I start my radiotherapy on 3 December for 3 weeks.

Everything has happened so quickly since my diagnosis on 3 October. I am sooooooo grateful for the quality and speed of treatment the NHS has given me.

Wishing you the very best.

M x (Big hug)
maxy-moo
Member

Re: What a journey!

Thank you BF - yes you are right it ia an unfolding story i went from 24mm to 35mm but it has now been removed. At first i couldnt understand how it was invasive if it had been removed. Doing my research i now understand that it can carry through your bloodstream to lymph nodes. I feel veey lucky that they have caught it early and the prognosis is very good. I have fingers crossed that next biopsy on monday is clear and i can get on with rads. What stage are you now? Love and hugs x
poemsgalore
Member

Re: What a journey!

Hi Maxi-moo

 

I'm sorry to hear you are going through this difficult time. I was DX last November. Right from the start I knew it was invasive and that lymph nodes were involved. I had MX and sentinal node biopsy at same time. The lump was 36mm, grade 3, stage 2b. ER/PR positive, HER2 negative. Three lymph nodes removed with one containing cancer cells. Between February and May 2013 I had chemo and I'm now on a hormone tablet every day for at least five years. I'm coming up to my first annual mammogram in December, and I'm getting a bit twitchy, but there's no reason why the results shouldn't be ok.

 

I would encourage you to try and talk with your family - even if it initially upsets them. If you get some brochures about the type of cancer you have, and the treatment you will be having (your BCN should help here) and go through them with your family, it hopefully will reassure them that things aren't as bad as they might seem.

 

I think it's the word 'invasive' that worries people. But usually all this means is that it might be in the lymph nodes, which can be removed. 

 

Sending hugs and best wishes

 

poemsgalore xx

Boxofrogs
Member

Re: What a journey!

Hi MM, Right at the start I was told by BCN that it would be an unfolding story, and it was. Yes it does feel like news just keeps getting worse. This is a very common feeling shared by many women in our situation. The initial scans and biopsies, as good as they are, are not that sophisticated in definitively identifying size and grade etc. My lump went from being 17 mm to 35 mm! You are not alone. There does come a point where the unfolding story comes to a natural end and you and your team will know what you are dealing with and how to treat it, and then it's just a case of gritting your teeth and, in my case, taking all the advice and treatment offered.
Sam_BCC
Member

Re: What a journey!

Hi maxy-moo

 

I’m sorry to read that you are having a pretty tough time at the moment. I’m sure the users of this site will be along to support you soon.

In the meantime maybe you would like to talk to a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.

Best wishes Sam, BCC Facilitator



 

maxy-moo
Member

What a journey!

Breast cancer - i am still struggling to say it! I was originally diagnosed at the end of Sept with DCIS and came to terms with it quite quickly - thinking once it was out - 3 weeks of radio and then enjoy xmas. I thought wrong - results showed invasive cancer and now i am back on 25th november for lymph node biopsy - i am now scared to hear the results as it feels like each stage is getting a little worse. I am trying to keep positive but find it difficult to talk with family afraid to upset them. Would like to talk on rhis site with people at the same point in their journey or those that have come through the other side x love ro all x