I have forwarded your post onto the Secondary Services team so they can reply.
Hi BCC people. This thread is specifically about the Sutton Marsden.
If it is relevant, please give us further information, or provide a link!
Sutton, South London-new Living with Secondary Breast Cancer Breast service
Breast Cancer Care are launching a new Living with Secondary Breast Cancer service in Sutton, South London in January and will be launching the new service with an Overview Day on Thursday 22 January 2015
It's a full day of information and support and chance to meet up and chat with others with a diagnosis of secondary breast cancer. It's an opportunity to hear from expert speakers on the Medical Management of Secondary Breast Cancer, managing the symptoms of Cancer Related Fatigue and the chance to try tips and techniques for Relaxation. It's also an opportunity to find out more about Breast Cancer Care's services.It's completely free to attend and all refreshments and lunch are provided.
The following monthly meetings will then take place on the fourth Thursday of every month from 11am in a central location.
If you'd like to book a place or would like more information about the Overview Day or the ongoing monthly meetings in Sutton then you can contact us on 0345 077 1893 or email firstname.lastname@example.org
Hi Lucy... "coffee shop"? Which Marsden are you treated at?
well thats good news isnt it! long may you stay on tamoxifen/zoladex! it seems to be working for you. how do you feel about getting scanned every 6 months. they must be really happy with your progress. I am ok. A little down i suppose. on fifth cycle of cape so feeling tired. im not due bk to the marsden till 16th dec and not scanned till first week in Jan so im going to try and enjoy xmas. Where do you travel from again?
Hi "Stillhere" - wow, 20 years, that makes my 8 years seem quite a short time! Well done if I may say so... sorry, I don't know your history, if it was a very late recurrence I am so sorry.
The onc who prescribed my pyridoxine in 2011 I think has left the hospital. She told me that it works for some people but not everyone - maybe it's the "placebo effect" but I'm feeling a bit better in myself this week. It's a long story as to how I got it this time, I don't want to go into details just now, on this public forum.
Broccoli and asparagus are NOT "alternative" treatments, they are good nutritious healthy foods! (tho I've not heard of any possible cancer-related benefit for asparagus - and it gives our wee a strange smell - so does the hormonal treatment Faslodex). Helpful for 5-a-day anyway. We eat a lot of fruit and veg, grow some ourselves.
Re your suggestion of a meet-up, I don't really do meet-ups these days, but if others are interested, how about the pre-Christmas event on 9 December?
It's intended as a fundraiser but it's OK to just go along, hubby & I did that a few years ago and were glad we did.
Essiac tea - hmmm, - as with any alternative/complementary treatment, (a) ALWAYS ask your oncs / bcn, (b) do some googling - the Cancer Research UK site has a helpful article, specifically mentioning essiac tea
Some people do appear to benefit from these additions to the diet- but I would hope they are having conventional treatment too (this is what's meant by "complementary")
My background - before I retired I worked on a science and technology database for the food manufacturing industry. But a good oncologist should be open-minded. I'm on capecitabine, and a megadose of vitamin B6 (pyridoxine) is sometimes prescribed to reduce the side effects (hand-foot syndrome). I've had to plead for this 2nd time around, but I've got it now - OK I could have bought it off the shelf at Holland & Barrett, but I'm happier getting it on prescription, cheaper too!
lucy - i am one week into cycle 4 of cape. i had a scan two week ago after cycle three and it showed a big reduction in lesions. hoping that the next scan shows even more! i dont think i'll get another one until cycle 6 maybe or just before. good luck with your next scan. i also travel two hours from the south east coast. the shops and restaurants are really nice around there. might treat myself one day! x
Mrs blue - do you go privately or nhs? i am going privately. its pretty well organised so not to much hanging around. so you have been dealing with mets for six years? thats very inspiring! long may it last!
Hi girls, I'm another Sutton Marsden patient, since 2006 (bc/bone mets, + liver mets dx 2009). Had lots of treatments, chemo and hormonal - now on capecitabine 2nd time around - and the team are excellent. Specialist BCN for us mets ladies, too. Tues afternoon clinic getting busier, we've had some long waits, but this week I was seen 20 minutes early! (looong wait for chemo tablets in pharmacy though). I have PET scans when needed.
PM me if you like
i am a newbie on the forums but thought i would join in. i am at the marsden. i live on the south east coast so it is quite a trek in but hopefully worth it! i also have liver mets and am using cape at the moment. its already shrunk my lesions after 3 cycles so im pleased with that at the moment .
stillhere- its good to see that even though you have been through sooo much that you are still here!
its really encouraging the length of time you have been on cape! long may it last!