I've just re-read the last posts, and see that I've mistaken the name of the lady with mets in the omentum. This should have been JayneO. My apologies to Jayne and also to Carolyn.
Hi Caroline and others,
I joined BCC some time ago but haven't really posted on here. I too had secondaries in my omentum. These were discovered in March, 2015, 20 years!! after I had Stage 1 breast cancer. It was discovered because I kept being sick etc, etc. Unfortunately it had trapped my bowel and I had to have an ileostomy. I haven't heard of anyone else having to have this for breast cancer, but there must have been someone. I still have the ileostomy. Some months later they discovered I had multiple metastatic bone mets, which were obviously there at the time. I was told I can't be cured, but can be "managed". I had chemo and this had a positive effect on the mets in the omentum. I have denosumab injections every four weeks and take Anastrozole. This seems to be keeping everything on an even keel, as things have remained the same for two years. I'm crossing my fingers that this will last as long as possible as I know things could change at any time. I'm sending positive thoughts to all those with secondaries, and especially to Caroline.
Hugs from Windflower x
I agree with Carolyn there is a process which we all have to go through. We are grieving for the life that we expected to live, all of the hopes and plans that we all make but which has now been pulled out for under our feet. So, it’s very much the bereavement process. You develop a new normal, but it takes time.
These forums are great for emotional support but are also full of useful information.
After cancer has spread from breasts/ lymph system it is then classified as stage four. When the disease is hel at bay or regresses it is know as NED, none idence of disease, which is what I’m working towards, and getting there.
I am new to this forum and it has been helpful, if not a little heartbreaking to read all your messages,
I had breast cancer dx June 2012, surgery, chemo and tamoxifen - yesterday I was told I have cancer cells in some fluid in my abdomen and in my omentum....I am now waiting to go in for a biopsy. I think I'm still in shock...if it's secondary that obv the treatment hasn't worked...it's hard to stay positive 😞
Hi, from what I was told in 2001 when I had my primary....when they remove the primary tumour at the outset and give chemo, rads tetc if appropriate...they hope to have caught the cancer before cells travel round in the bloodstream and lymphatics.
often it seems to work
when it comes back, it is assumed that not all the cells were caught/ removed. ...when i had the recurrence, Isaid.'.I just want all of it out of my body now!' The Onc said, 'Sorry, we cant do that, but it can. Be controlled'
in my. Case, i . Have multiple tiny seeds in my liver, so obviously those cant be removed.i. Did
i hear tho, that occasionally a secondary can be removed or blasted with something, its when there is multiple spread that they say it cant be cured.
however, I think almost anything is possible these days, so im hoping for a cure at some stage, personallyxxc
best wishes, Moijanxx
Hi Sandrajane. I wandered on to this site in the vain hope that somebody had found a magic cure in say Mexico or Germany etc. I had BC 12 years ago and it was recently found in my spine ( had bone scan last Thursday so will get the results next week to see if anywhere else).
I am going to a talk by a friend of mine,who wrote the book "The Cancer Whisperer", this afternoon. I don't expect to find out about a cure however will pass on any snippets. Where are your mets? I hope you are coping ok. Bandit x
Hi Lynn d
Welcome to the discussion forums. I am sure you will find them supportive.
I notice that you have posted in an old thread, there are a number of newer threads, particularly on the subject of bone mets which you may also find helpful to read and chat in.
I agree that the pressure from other people about 'beating it' is horrible. Cancer isn't a war or a competition...its b***y hard enough without being told you have a say in saving yourself.
Thank you for your reply. It is very hard to get your head around. People keep saying you can beat it as though I have a say in the matter.
I will hold my head up - keep strong for my young family and pray that the chemo will work for as long as possible.
No is not a stupid question. First of all Lance Armstrong had testicular cancer which is one cancer which responds very well to treatment..that is why he has been cured...not because he rides a bike or is particularly brave.
Secondary breast cancer, like many other secondary cancers and some primary cancers (e.g. pancreatic cancer) cannot be cured because as yet there are no drugs which are permanently effective. However, there have been many improvements in treatments over the past few years which have extended the lives of many people with secondary breast cancer. (e.g herceptin).
Chemotherapy can work on secondary breast cancer for a while..it can even send it into remission, but sadly the vast majority of people with secondary breast cancer die of the disease though some live for many years while undergoing treatment. Different kinds of chemotherapies work on the cancer cells in different ways, but after a time the cancer cells become resistant and start to grow again and when they are active they can spread to more and more other parts of the body.
Basically the mechanism of cancer spread is not fully understood by researchers and doctors, and treatments are just not permanently effective. One day a cure will be found...that is all our hopes.
My cancer has been deemed incurable as it has spread to my bones(as well as liver and brain) It is because currently they cannot remove the cells from my bones. Also the liver cells are too wide spread they cannot be cut out, as is the cells in my brain.
They can be treated but not fully eradicated hence incurable.
you are not stupid and it is not a dum question. I can't answer it for you but i can understand your fears.
This damn disease is just so unfair and no direspect to anyone but i feel its hard to come to accept especially when you have young children. I too have 3 kids and am of similar age to you and this just sucks.
sorry couldnt be of any further help
I have no answer to your question. I just wanted to give you a big hug and hope that the treatment they give you will allow to spend some quality time with your family.
I know this is a stupid question but i am puzzled. Why, when diagnosed with secondary breast cancer is it not curable. I hear of ladies on this site who are on chemo and it is doing it's job. Why can't that chemo destroy the cancer for good?
I know this is a nstupid question but I've just been diagnosed with a sec. on my spine and have been told it's treatable. Why not curable?
Is breast cancer different. I think of Lance Armstrong the cyclist who had significant cancer spread and now seems to be getting on with his life.
I know some of you ladies reading this will think I am a complete dummy but I'm 38 with 2 lovely children and really struggling to get my head around all this.