Thanks for the replies. I had my appointment with the surgeon today and he was lovely. Is happy to do a bilateral masectomy 🙂 Wants me to see someone to discuss beforehand but said there was no point fixing the cancer if I can't live my life afterwards to the full. Was very understanding and also said that I could change my mind at any moment if I so wished. Surgery booked for the 10th November with full axillary clearance also. Phew.....x
I had a similar situation, although I didn't have cancer in my nodes and I could feel a lump. The similarity lies in the fact that when I first went with my lump, they couldn't see it on mammo, and a fine needle aspiration proved negative. I was already being monitored for BC due to family history, and I went on to have another 3 clear yearly mammos before it finally appeared on the 4th. By the time they agreed with me that there was something there, it had grown into a 3.7cm lobular cancer. My immediate response was that I wanted a double mastectomy. They managed to talk me down to a WLE, and because of the size of my cancer, I had chemo and rads. The problem then was that I had absolutely no faith in the screening programme and just couldn't move forward. After my final rads session, I broke down and the radiology nurse sat me down and listened to my predicament. She got in touch with my surgical team and I ended up having an elective double mastectomy with immediate DIEP recon last December, which was roughly 14 months after treatment. I wish that I had stuck to my guns and had the surgery before I had further treatment but I'm glad that my surgeon agreed to treat my brain as well as my cancer. My advice is to go in and be very honest about how you feel and explain how it will impact you for the rest of your life. I don't think about cancer anything like as much as I did prior to my mastectomy, and I have absolutely no regrets about having it done. You may be required to have a psychiatric consultation prior to them agreeing to surgery (seems standard practice in some NHS trusts), but if you feel this is the right option for you my advice is to stick to your guns.
Whichever surgical procedure you choose, I wish you health and happiness for the future.
Take care, Ann X X
I am having my last neo-adjuvant chemo on friday and have my appt to see the surgeon on the 14th. I didn't find a lump in my breast - I felt a lump in my armpit which turned out t be my lymph node 😞 My doctor and consultant couldn't feel the breast lump and my mammogram was clear. It wasn't until they did an ultrasound that they found the lump. The biospy came back as grade 3 invasive carcinoma. I am 44.
It freaked me out that the first I knew of cancer was when I felt it already in my lymph node and for that reason from the start of this I felt that I would want a masectomy and that they should take both of them as I felt I can't trust my breasts anymore (if that makes sense).....
I sadi this to my consultant right at the beginning and he just smiled at me - now the appt is coming up I am starting to worry that he will argue that they want to do a lumpectomy.... I have read that there is no statistical advantage to a masectomy rather than a lumpectomy so am I wanting more invasive surgery for no reason? I just don;t think I will be able to trust any monitoring afterwards of my breasts if I keep them....
Anyone been in a similar situation?