This is a very interesting thread. I had MX Two years ago full Lymph Clearance, Chemo and Rads, Then a Second MX a year ago. Itake Tamoxofen now, I worked part time, Breakfast and Lunch, I am a chef, but did not do the evenings. I went back to work In November last year, but found the days too hard going and reduced to 3 days a week. I have just started back "Full Time" This means a 12 to 13 hour day every day 5 days a week, I long for my days off, It is a dillema, Love my job , hate being on the breadline while still working hard ie: doing the 3 days a week, but feel I owe it to myself to NOT get exhausted, one of the hardest things I find is getting a work life balance.
I really feel I only have half the energy I used to have, it is the evening shift that is the killer. How much is too much and I hate the feeling I have that I have a window of health and do not want to waste it working but long for normality.
Sorry for the confusion in this post but really feel torn.
Hmm, I was doing fine, had my weeks of having a sleep each day, or having a rest, or just the occasional morning in bed, and then found myself with more work and no time and thinking I was ok, no longer needing the same rests etc. Well I am feeling it now again and need to figure what I can stop doing as the odd morning in bed sounds really helpful. Trouble is that several months after chemo and looking healthy means that people assume I will have the stamina to handle things and no longer say no.
Thank you for your most interesting reply
.I was beginning to think I was unusual in the length of time it is taking for me to feel more my old self. As you said, no one seems able to say how long it will continue for, but I understand that for some ladies, it never really does go away, although it remains in not as extreme a form as in the first year or so after chemo.
The worst thing is packing too much into a day, then feeling as though someone has removed my 'powerpack' .When that happens, even if the ceiling were to fall in, all I can do is to sit totally still- even speaking when that happens is too much effort- until I get through it- usually after half an hour or so.
I understand what the lady who works in the primary school sector means about returning to work too early, and its negative impact on your energy levels. I do think there is a more general issue here with employers not always being as supportive as they could be with employees returning after cancer treatment- as others have said elsewhere on this board- unless you have direct experience of undergoing cancer treatment, people just do not 'get it'!!
Hi everyone - yes take care and be kind to yourself are the best words of advice - I finished my treatment three years ago this week I realise as I write this. For ages I slept every afternoon, then I didn't need to, but I was able to work part time for two years which really really helped - and you know what- I convelesced ...not a word we use a lot but when I was saying to myself "you should be back on your feet by now" - I used to say no hang on a moment you had two operations includin an MX, chemo which had you in bed off your feet for weeks at a time and then rads and now tamox - chill out girl and rest till your body says it doesn't want to rest any more.
For the past year, so from end of yr 2 post treatment to end year 3 I have had some energy, I now swim 1 k each week, do pilates, walk everywhere and do my allotment - and when i feel I need a rest I rest, still,
chemo brain eventually disappered ...but I think the tamox still has a bit of a drag effect.
Be kind, do what your body tells you it needs, and eventually, at its own speed, your body will come right again - I really think it will.
all the ebst
I too am still struggling with fatigue. I haven't been on the forum for a while but did find it very helpful whilst undergoing chemo and rads. My ops chemo and rads are 17 months behind me but like you have to pace myself because of the fatigue. It is not as bad as it was this time last year (I had to get about in a wheelchair then). I have also given up work. I have to make sure that I really pace myself and know when to stop and not try and keep on going otherwise I will end up in bed. MY GP referred me for an exercise programme and this has really helped. It was for 16 sessions, I have finished this and now go to another class. My onc referred me to a psychological therapist to see if that would help with the fatigue. I was really unsure about this. I am glad I agreed to go however, as I found it really helpful - we discussed everything from when I was first diagnosed and how to pace myself better. I haven't suffered with chemo brain but I did end up in hospital a couple of times with the after effects of the chemo. I too am also grateful that my bc was found and that I am still here but I do get so frustrated when I can't do things or go places. No one seems to be able to tell me how long the fatigue will last or if I will be back to how I was before all this started. Take care and be kind to yourself.
I have put for you below the link to BCC's resource pack ' Moving Forward' and hope you find it helpful.
and also to our Getting fitter, feeling stronger DVD
Take care all,
I finished treatment three years ago, Mx and Chemo, had TRAM flap reconstruction two years ago and nipple recon one year ago. I worked through my treatment (just took time off for opperations etc.) I am a primary school teacher. Last winter I hit a wall and just couldn't go on, due to fatigue. I changed to part time supply teaching and things are a lot better, though I still get very tired. I hope that a couple of years part time work and I will be able to return to working full time. I don't think it helped working through treatment at the start, I think I exausted myself. Like others have said we need to be kind to ourselves our bodies have been through a lot.
I have just registered on this forum today, and was so interested to read your thread about ongoing fatigue.
Chemo and radio for PBC is eighteen months behind me, but my fatigue continues. It is not as relentless as it was when I was undergoing chemo, but nevertheless it still comes and goes regularly, and when it happens, I have no option but to lie down for a short sleep, and even on 'good' days, I have to pace myself very carefully, and can no longer cope with the jam-packed days I had before my diagnosis. A day trip out means I am 'wiped out' the next day, and possibly the day after that, too.
I would love to go on city break abroad somewhere, but I know that I am still not robust enough to be able to enjoy it.
I have recently taken voluntary redundancy from my job as a high school teacher, because my levels of energy are no longer what is needed to cope effectively in the teaching profession. Chemo brain still effects my ability to be as sharp as I was before treatment, which is frustrating for someone in their early fifties, but I have had to accept that I am really not the same person I was before!
However, I am just so grateful to still be here, so this is certainly not a moan. I guess it is a matter of adjusting to a different, quieter life for the present, and hope that the fatigue will eventually go away!