Agree, I think Sharon is brilliant, just want her to know we are not chucking everything on to her. There are wonderful ladies on here, thank you to all for your support. Lol xxxxxx
I did a scan through ALL the Radiotherapy threads on the 'Going Through Treatment' board and pulled together bullet points of all the advice I could find and then asked the other lovely ladies what I had forgotten and they came up with some more advice for me, so you might find that post/thread helpful (it's called What have I forgotten).
Should one of us start a March/April 2015 radiotherapy thread d'you think so we can compare notes as we go along? I think Guigi gets her results on Friday so hopefully she'll be joining us too
So pleased for you Rose, seems like we will be completing our rads all together. I can relate to the tears, cried when my surgeon gave me my 'good news' and that's the first time since this horrible chapter started. Sharon and Eileen, advised of my appt. Today, my bcn rang me, seeing onc. On 11th March. any advice on rads will be greatlly appreciated. Kerp strong my lovely ladies lol xxxxxx
Beryl, the BCN explained rads to me as "freezing the breast tissue in time" so that no further changes will take place (in theory!). She also said that this means that it will remain the same shape throughout my life while the other one will age and droop as I get older. Interesting prospect, as it will probably shrink during rads, and is already considerably smaller following surgery. In about a year's time I'll be offered symmetry surgery, but don't think I'll take up the offer. I've been under the knife enough, am reluctant to disturb healthy tissue plus there will be people who will need the life-saving expertise of the surgeons, rather than what I see currently as a "vanity " op.
Just relieved to get to this stage
Love to all
Hi Beryl, I'm chuffed to hear that you're on the mend now too, must be a huge relief!
Is the reason you don't need rads because you had mastectomy plus implant whereas the rest of us had WLE and therefore still have local breast tissue that needs to be treated?
Some great news all round - well done everyone
it is a great feeling isn't it but always tempered with the thoughts of those who still have a journey to finish.
Still wonder why I am not having rads either??
I can't tell you how relieved I am for you Rose, been thinking about you all day and hoping for the best, just delighted you'll be with us for the radiotherapy too. Well, obviously I'd rather that none of us were here in the first place 🙂 I walked around with a big cheesy grin on my face for days when I got my good news and I'm still delighted even now!
Are you healing OK now? I know it's been much more difficult for you after the second op so I hope it's settled a bit now.
Woohoo to me too! Finally got the all clear! Will be joining you with rads shortly, Sharon,and also took the option on Tamoxifen, at least in the short term, see how it goes.
I have to say I'm more tearful at the good news than I ever was at diagnosis or through treatment so far.
Hope everyone else can soon report the same happy story
Love, Rose xxx
That's brilliant, and don't feel guilty about it being good news. We all had the worst news imaginable and we will all get the good news but at slightly different points. I had the same as you, and I am on Tamoxifen for 10 years. I don't know what my 'score' was for that and I'm quite interested to know, but taking the Tamoxifen was their recommendation as being the best thing I could do to prevent it happening again and that was good enough for me. This drug really seems to be a breakthrough. They told me that it actually searches out cells that are about to split and destroys them. That's amazing isn't it?
So, keep smiling and onwards to rads. A walk in the park!! Use the cream they give you - it works!!
Thanks Rose, I just can't believe how slow your pathology results are! Seems ridiculous that we had surgery on the same day but you're having to wait more than a fortnight longer for results but I guess it will be worth it when you get your good news too *looks at gods of breast cancer in meaningful way*
Well done you!
You're ahead of me now, so it's going to be my turn to come running to you for advice if I ever get as far as radiotherapy!!! Only 19 days till I find out the next step.
Really happy for you
Love, Rose xx
I'm going to have a chat with the medics about Tamoxifen too but as my cancer was highly hormone receptive I'm keen to give hormone therapy a go. My understanding is that if the side effects are too severe I can always stop taking it so I figure it is worth a shot and some of the side effects (hot flushes etc) were things that I was expecting soon anyway as I can't be very far away from a natural menopause given that I'm 50 now.
I'll be very interested to know what you decide when you've spoken to your doctors and I'll let you know what mine say too - every little bit of information helps doesn't it 🙂
Sharon thats great positive news. Its lovely to hear nice news for a change.
Mine was similar to you, im recommended for tamoxifen and anothedrug.g and like you no chemo...yippee!!! But I feel so sorry for all these lovely ladies on here which have to go through it.
How do you feel about taking the hormone tablets? Im not 100% sure about it all. Im going to have a long chat with my oncologist (already comprised a long list of questions!!
Love n hugs lynne xxx
Hi Sunflower, I got some Macom bras (on the recommendation of a member here) and they are wonderful, albeit quite expensive. I'd been wearing Royce bras but the Macom ones are much more comfortable.
Thanks lovely ladies, it's just such a relief as I was dreading the thought of more surgery/chemo (I'm such a wuss!) Now that I have bras that don't hurt and full movement again I feel almost human. Won't be doing cartwheels down the corridor anytime soon, but even being able to take a proper shower feels like a treat
Beryl I'm glad to hear your micropore wounds are healing but it still sounds painful, not to mention a total hassle to have to keep changing the dressings. Do you know how long it will take for your sores to heal?
Kitt I'm fine with the idea of radiotherapy as my brother-in-law is a radiotherapist of some sort (don't really understand precisely what he does) and he has been able to reassure me that it will be OK. I'm also happy to give Tamoxifen a go, although my consultant said it would be totally up to me whether I take it or not but I'm also an 8 for oestrogen & progesterone so I think it is worth it unless the side effects prove to be severe.
Sarah, any news yet on your appointment date?
Cheryl I don't know when my radiotherapy will start but I guess it will be another 2 or 3 weeks as I only had my surgery 10 days ago and I think they like us to heal properly first so we might be travelling that road together.
Judi I hope your chemo is getting a bit more tolerable or does it still feel like you've been in the ring with Tyson?
love to you all
Brilliant news Sharon
Good luck with the rads. Do hopw you keep popping in, just like me, still need the support of ladees who understand.
Hoope your new bras are still comfy.
Today I removed the dressings but the worst sore is still not good, but then again not as bad as it was
Havwa glass of someting to celebrate
Got my post-surgery results today and it's BRILLIANT news, they managed to get the cancer out with the first lot of surgery and there was no spread so all I need now is some radiotherapy and then, if I want it, some hormone therapy (Tamoxifen). WOOHOO! No more surgery!!! No chemo!!!!
So delighted and so aware that I am one of the lucky few who get off lightly so I'm sorry if I sound insensitive to those who are having a much tougher time of it.
Off to shed some happy tears now before I head over to the radiotherapy board to get to grips with that but I'm going to keep popping in here too if that's OK, want to stay in touch with you all