what a dreadful story. Can't believe that you breast care team are giving you such a rough time. Waiting for any op is agonising, but cancer intensifies that.
Had something show up on mammogram in Jan 2015 but despite several attempts could not get a positive biopsy. Had further biopsies at start of this year. My diagnosis was at the end of January - breast cancer in both breasts. My first ops were a month later - two WLEs and one SNB. results showed invasive ducal in one breast (with clear margins) and DCISin other breast (without clear margins). SNB clear. I needed radiotherapy on one side and a mastectomy on the other. The MX was 5 months post diagnosis and I was okay with this as I needed to get the radiotherapy completed on the invasive side first and whilst this was happening could work out whether or not I wanted a recon on the other side.
Have now had my op. Have been lucky that although the DCIS has increased it has not changed to an invasive cancer so the delay has not been a problem for me. But guess this all depends on the type of cancer you have really.
Hope everything works out well for you. X
I'm glad you were able to change your BCN - it makes such a difference having someone you really can talk to doesn't it? My BCN has called me weekly if she's not heard from me - has found out or explained things for me - gone through my histology report with me and given me copies of things to take away to read and digest. She has told me what to expect from the operation and afterwards at home - given info about complementary therapies I will have access to - all sorts of things. All things that we should all be able to ask our BCNs about without fear of ridicule and that includes powdow.
Get onto PALS as soon as you can. There is no reason at all for this BCN to speak to you in the way that she has and to leave you feeling the way she has. PALS may even be able to intervene on your behalf and come up with some more information regarding delays regarding your treatment regime and so on. You have enough to be dealing with - without this BCN adding to your woes. I would ask to change her immediately. Just like in real life not everyone gets on with everyone else - you don't have a rapport with the one person who should be able to allay your fears and answer your questions (in triplicate if needs be!)
I didn't like the first BCN I was allocated and felt that she was evasive and wouldn't answer my questions so when I had another appointment with a consultant I asked to change - it happened no questions asked and I along with my family are a lot happier with our new BCN.