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Worried for future

8 REPLIES 8
breastbuddy
Member

Re: Worried for future

Hi Josieb, i'v only just found this website told to me by my counsellor, so firstly if you want counselling, talk to your GP, they can refer you.


sorry to hear your story,sounds as if you have been really through it.

 

I have written my story,hoping for it to be published in Macmiilan's newsletter, intending to help others with this awful disease.

 

I'm a bit older then you 70 last birthday, diagnosed firstly in 1990, it was in both breasts, i was 47, had chemo & radiopherapy, no op,  Then in 2002 it came back in one breast, this time quite aggressive & fast growing, i decided to have a double mastectomy with re-construction straight away, more chemo, then nothing more till nearly 3 years ago, i could'nt believe it ! i had just moved to dorset and was starting a new life, needless to say, they started me on a hormone drug called Letrazol which i hated, weight gain, knocking me for six, then after 2 years on this drug begging my consultant to let me have Tomoxifen as i had been given this drug in 1990 when i was first diagnosed and took it for 7 years, the consultant told me i would have to be on it for the rest of my life.

 

I feel very lucky to still be alive, my friends say i'm Indestructable, i like to think so,  I know its a bugger of an illness, but PLEASE, dont give up the fight, I'm writing this for all you ladies out there, Where there's life, there's hope.

 

I'm happy to send My Story to anyone who wants it.

 

Take Care

Breastbuddy xx

 

 

 

josieb
Member

Re: Worried for future

Thank you for the advice and taking the time to reply x

josieb
Member

Re: Worried for future

Thank you ,I'm attending physio but it is still very painful and disabling ,I've also seen my doctor, broke down in tears with a few friends and booked a holiday

josieb
Member

Re: Worried for future

Hi, I have had a lot of surgery and also put a lump I found down to scar tissue , I was getting pain under my arm but thought that May have been lymph oedema or nerve damage .i went on a routine visit to the oncologist and she asked me about the lump and if it felt any different ,she gave me the choice about having an ultrasound which then went onto a biopsy , my advice to you is to get it checked out ,I left it for months thinking I was being paranoid ,please go and good luck xx

rozita
Member

Re: Worried for future

Hi Josie I hope you have had some help with your concerns. Can I ask how you discovered your reoccurance in scar tissue I have noticed a small pea sized lump in mine but didn't know if it was just that scar tissue Thanks rozita x

Jo1
Member

Re: Worried for future

Hi Josieb, so sorry to hear how things are for you just now. This awful illness has been with you for so long that it must feel as though you'll be stuck as you are forever. All our stories are different, but we can all understand to a certain extent how you're feeling. I'm on my second breast cancer too, but I'm retired, so had none of your fears and uncertainties about future emploment, which must be a really big and scary situation that will fill your mind.

 

Just a couple of thoughts: the BCC helpline ladies are wonderful - I spoke to only one, but a number of ladies on the forum have mentioned what a great help they were to them too. Mine helped me to clearly think about what I wanted to do about mastectomy, as my mind was full of it all the time, but I was going round in circles. She was warm, understanding and friendly as well as very knowledgeable. I had a mastectomy on June 12th but I relaxed as soon as I'd thought things out following the helpline call, did the pro and con list as suggested by the helpline lady - how come I couldn't think of something I'd normally do in other situations on my own?? I guess we're so screwed up with the whole shock of breast cancer (again!) that we aren't our normal selves.

 

Secondly, I had a tough time going through the terminal illness of my dear sister in law at the same time as breast cancer this time around. I saw a specialised cancer physio last week for the first time, and she was wonderful, and after only one session I'm feeling more comfortable physically. But she also told me about the other services that are available, and has put me forward for psychological support, which I think is an excellent idea; talkng to somebody away from my family, who is trained to listen etc might be a very positive move for me - and I thought maybe there's something like that available in your area. The breast care nurses at our hospital have been excellent, but although they knew I was finding the illness of my dear SIL very hard to deal with at the same time as breast cancer, none of them mentioned the psychological help available. I expect speaking to a bc nurse could help you find psychological support too - I think of it as a crutch that supports for the time it's needed. It might help or not, but you have nothing to lose. I have no idea of time scales, so in the meantime, maybe you could explore relaxation classes, easy yoga, my third thoughts for you - again, that's something I'm wondering about myself.

 

I'll be thinking of you, Josie, and I'm sure lots of other ladies will be too.

 

Take care, Jo x

songbird68
Member

Re: Worried for future

Hi Josieb, I can't give you any advice, but I'm really sorry you are going through this all again. I hope you have some idea about your shoulder now? It sounded very painful, sorry if that is an understatement.

Sending you big hugs and all the best wishes in the world

x x x

Lucy_BCC
Member

Re: Worried for future

Hi josieb
It sounds as though you have a lot on your plate at the moment, along with support you will find here our helpliners are on hand with practical and emotional support, it may help to call and talk things through. Lines are open weekdays 9-5 and Saturdays 10-2 on 0808 800 6000

Take care
Lucy BCC

josieb
Member

Worried for future

I'm 42 recovering from a reoccurence of breast cancer , I was primarily diagnosed in dec 2009 , had mastectomy , chemo ,rads , tamoxifen .went back to work struggled with tiredness , chemo brain but stayed working till nov 2013 when I went off sick with severe back pain,MRI says a have a slipped disc causing sciatica , meanwhile in March 2014 I was diagnosed with breast cancer reoccurence in scar tissue , had surgery ,also removed lymph nodes and full hysterectomy , followed by radiotherapy .i am now having physiotherapy for a winged scapula ( shoulder blade protrudes from back ) causing me severe pain ,can't lift my arm , lymph oedema in early stages and all the joys a forced menopause brings . I'm worried about returning to work as I don't think id be able to do my job physically with all my problems including the high risk of rib fractures as I've had radiotherapy twice in same area . People are telling me not to worry about work as it will get sorted but it's completely taking over my thoughts .im only 42 and have had 5 years of ill health and don't feel id be very employable if I finished work .i work for the city council and am in the union so they could probably re- employ me but with have so many problems I'm not sure if I'm reliable enough to do any job but don't want to be sitting at home on sick, haven't much confidence at moment so haven't contacted anyone at work as don't know long term prognosis of my shoulder , just feel in limbo , any advice anyone