Hi Josieb, i'v only just found this website told to me by my counsellor, so firstly if you want counselling, talk to your GP, they can refer you.
sorry to hear your story,sounds as if you have been really through it.
I have written my story,hoping for it to be published in Macmiilan's newsletter, intending to help others with this awful disease.
I'm a bit older then you 70 last birthday, diagnosed firstly in 1990, it was in both breasts, i was 47, had chemo & radiopherapy, no op, Then in 2002 it came back in one breast, this time quite aggressive & fast growing, i decided to have a double mastectomy with re-construction straight away, more chemo, then nothing more till nearly 3 years ago, i could'nt believe it ! i had just moved to dorset and was starting a new life, needless to say, they started me on a hormone drug called Letrazol which i hated, weight gain, knocking me for six, then after 2 years on this drug begging my consultant to let me have Tomoxifen as i had been given this drug in 1990 when i was first diagnosed and took it for 7 years, the consultant told me i would have to be on it for the rest of my life.
I feel very lucky to still be alive, my friends say i'm Indestructable, i like to think so, I know its a bugger of an illness, but PLEASE, dont give up the fight, I'm writing this for all you ladies out there, Where there's life, there's hope.
I'm happy to send My Story to anyone who wants it.
Hi Josieb, so sorry to hear how things are for you just now. This awful illness has been with you for so long that it must feel as though you'll be stuck as you are forever. All our stories are different, but we can all understand to a certain extent how you're feeling. I'm on my second breast cancer too, but I'm retired, so had none of your fears and uncertainties about future emploment, which must be a really big and scary situation that will fill your mind.
Just a couple of thoughts: the BCC helpline ladies are wonderful - I spoke to only one, but a number of ladies on the forum have mentioned what a great help they were to them too. Mine helped me to clearly think about what I wanted to do about mastectomy, as my mind was full of it all the time, but I was going round in circles. She was warm, understanding and friendly as well as very knowledgeable. I had a mastectomy on June 12th but I relaxed as soon as I'd thought things out following the helpline call, did the pro and con list as suggested by the helpline lady - how come I couldn't think of something I'd normally do in other situations on my own?? I guess we're so screwed up with the whole shock of breast cancer (again!) that we aren't our normal selves.
Secondly, I had a tough time going through the terminal illness of my dear sister in law at the same time as breast cancer this time around. I saw a specialised cancer physio last week for the first time, and she was wonderful, and after only one session I'm feeling more comfortable physically. But she also told me about the other services that are available, and has put me forward for psychological support, which I think is an excellent idea; talkng to somebody away from my family, who is trained to listen etc might be a very positive move for me - and I thought maybe there's something like that available in your area. The breast care nurses at our hospital have been excellent, but although they knew I was finding the illness of my dear SIL very hard to deal with at the same time as breast cancer, none of them mentioned the psychological help available. I expect speaking to a bc nurse could help you find psychological support too - I think of it as a crutch that supports for the time it's needed. It might help or not, but you have nothing to lose. I have no idea of time scales, so in the meantime, maybe you could explore relaxation classes, easy yoga, my third thoughts for you - again, that's something I'm wondering about myself.
I'll be thinking of you, Josie, and I'm sure lots of other ladies will be too.
Take care, Jo x
Hi Josieb, I can't give you any advice, but I'm really sorry you are going through this all again. I hope you have some idea about your shoulder now? It sounded very painful, sorry if that is an understatement.
Sending you big hugs and all the best wishes in the world
x x x