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You're Rather Young For That...How Old Were You?

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Re: You're Rather Young For That...How Old Were You?

Soory I meant scotishlass - chemo brain still not gone!!!!!

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Re: You're Rather Young For That...How Old Were You?

I was 48, no family history.

Val you give us all hope for a future!

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Re: You're Rather Young For That...How Old Were You?

Hi everyone, I was 39 when I was diagnosed but had found the lump a few years earlier and had it checked out as soon as I found it. Kept going back but was told it was ok! After mastectomy I had 10 years clear then got diagnosed with bone mets aged 49. I have recently had my 60th birthday and although still having treatment, I feel well and am still enjoying life. Even towed back the caravan from Cornwall to Scotland a few weeks ago....not by choice...my husband is in plaster because of a leg injury. I am caring for him now! Love to all, Val

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Re: You're Rather Young For That...How Old Were You?

Hi

My diagnosis came the day after my 37th birthday. No family history.

I was extremely lucky in that my GP referred me immediately when I went there, slightly concerned about a lump. I was seen, and tested, very shortly afterwards.

My diagnosis of DCIS came following a WLE 3 months later. After further surgery of a mastectomy it has been confirmed as only intermediate grade DCIS and no invasive bc.

I am extremely fortunate that my GP acted so swiftly.

Samm xx

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Re: You're Rather Young For That...How Old Were You?

I was 38 at dx (Feb 2008), my mum was 47 first time and 68 the second time. She is still here aged 76.

Rachy xx

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Re: You're Rather Young For That...How Old Were You?

Hi

I was 33 when i found a lump and dismissed by the doctor,6 months later and now 34 i was dx only after seeing a second doctor who said it was nothing but i could go for the scan to put my mind at rest and even at the hospital the breast cancer nurse said was i was having pains because i kept prodding myself!

makes you wonder.....

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Re: You're Rather Young For That...How Old Were You?

I had not long turned 32 when diagnosed, no family history at all. My GP was brilliant and referred me straight away even though she thought it would be nothing because it appeared to be mobile and smooth. At the hopsital first ultrasound was inconclusive and needle test came back negative but to be safe they advised me to come back to repeat test 6 weeks later. 2nd time at hospital, tumour still hard to find with ultrasound, 2nd needle test was negative so decided to do core biopsy. Turns out tumour was being hidden behind a fibrous lump which was what I could feel and what made me go to GP. Was 2cm, grade 2 and thankfully nodes clear. That was almost 6 years ago.

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Re: You're Rather Young For That...How Old Were You?

Thank you everybody for all your posts and information, please keep your posts coming.

Horace - what you do is exactly what is needed all over the country! I make a point of telling anybody and everybody who will listen to me about just how many people there are and how GPs should not dismiss people who 'don't fit into that category'.

Ruby

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Re: You're Rather Young For That...How Old Were You?

Eeyore, that was pretty much what happened to me. I had a fibroid that was hiding a tumour, so didn't find out until the week after I had the WLE as it didn't show on the tests.

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Re: You're Rather Young For That...How Old Were You?

I was 62 [pretty standard].I give talks to medical students at our GP surgery and I always stress that they should never dismiss a woman's concerns about bc because she is 'young'.

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Re: You're Rather Young For That...How Old Were You?

Hi
I was diaganosed in May 2010 aged 41. Originaly it was DCIS then when they tested lump after WLE they discovered it was cancer, cancer did not show up on mammogram, ultrasound or core needle biopsy.

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Re: You're Rather Young For That...How Old Were You?

Hi, I was 41 when diagnosed in January this year - no family history. I was in the shower when I found the lump, I never self examined as I thought I was too young.
GP was great he said he referred all ladies with a lump to breast clinic on the 2 week referal program.

Michele

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Re: You're Rather Young For That...How Old Were You?

I do think there needs to be more awareness as it is associated as an 'older' persons cancer. It didn't eve cross my mind that I could get Breast Cancer by the time I was 30!

Hopefully we will raise a little awareness and make a point of this as myself and some other lovely ladies are going on a charity trek end of Sept with some celebs and tv crew. It would be fantastic to use the opportunity to even just provoke some thoughts into just quickly checking themselves, or taking that step to see their GP with any concerns.

Paula x

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Re: You're Rather Young For That...How Old Were You?

Scmooley, I have found that some young women I have met around the mid 30s age group are not aware at all. A case in point are the 2 hygienists at my dental surgery. When I finished treatment and was going back to the dentist again, they both said they would never think to check themselves and even if they did wouldn't know what to do.

The foreign bank I worked in for years used to send us all for BUPA health screening every year and the company doctor taught all the women how to self examine - I had been doing this for 20 years when I found the lump.

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Re: You're Rather Young For That...How Old Were You?

I was 41 years old at diagnosis with a six month old baby. There is no significant family history of breast or any other cancers.

My doctor was fab though and referred me urgently and my cancer was confirmed six days after my initial doctors appointment.

I also feel that there is not enough done to make younger women more aware of the need to check themselves. I remember several times seeing articles about breast cancer symptoms and what to look out for but I honestly never thought it applied to me as I was young with no family history! I now know better and try to spread the word whenever I can.

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Re: You're Rather Young For That...How Old Were You?

Hi, I am very interested in this thread, because I was only 43 when I was diagnosed in 2007. Thankfully, it was caught early, and because there was no spread to the nodes and the lump was only 8mm, I only needed a lumpectomy, rads and Tamoxifen. One of my friends commented that I was young to get it, then she went on to say that whatever age you are, it still sucks. When I initially went to the hospital, I was told I had a fibroadenoma, then I was called back for a core biopsy, and BC was diagnosed.

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Re: You're Rather Young For That...How Old Were You?

I was 42 when dx, I had a 5 month old baby. I felt no lump just a thickening so was easily reassured at my anti- natal appts when they said it was due to my pregnancy. It wasn’t until I changed GP’s and happened to mention the thickening and they sent me to an urgent appt at the one stop clinic and I was diagnosed that day (5cm grade 2). I was so shocked, no family history.
Tess x

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Re: You're Rather Young For That...How Old Were You?

I do often wonder if GPs would benefit from regular training about various cancers. If you read a lot of the stories around in the news and magazines there seems to be an awful lot of symptom dismissal at GP level. In my own case I saw the same GP most of the time, but also 2 others if he wasn't available. I found the level of knowledge regarding drug treatments and even radiotherapy lacking. The one I saw regularly thought Herceptin was a tablet you took once a day, yet this was at the time it was never out of the news on account of the ladies who went to court and they had the letters to say my treatment was intravenous.

Another GP stopped what I was saying and said "whoa, you're talking to the wrong person, I don't know anything about breast cancer". This was about a week after my diagnosis and I was sitting there shaking. I was going to the Maggies Centre for a bit and one of the staff there told me the amount of patients they get saying to them their GP doesn't seem to know what it going on with their treatment was shocking. Towards the end of my treatment it became evident that they had not been bothering to read letters from my Consultants (the practice manager told me letters had been sent to my file marked "no action" when Consultants had asked them to prescribe something for me, I was having to chase things up weeks later).

The worst story I've read this week is about a lady who is dying from advanced ovarian cancer, which was wrongly diagnosed as IBS or a stomach infection by various GPs over a long period. How frightening is that?

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Re: You're Rather Young For That...How Old Were You?

Hi All,

I was 43 diagnosed Oct 2009.

I had been to GP 4 months earlier and told I had nothing to worry about which was true with the lump I originally went with but the mammogram picked up grade 3 tumor on my other breast.I personally feel any change should be seen by a breast consultant and not just dismissed by a GP AS hormonal as mine was.

Wendy xx

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Re: You're Rather Young For That...How Old Were You?

Hi All,

I was dx in april this year 47 years old, after finding a "dimple", mum dx 5 years ago aged 68, cousin dx 2 years ago aged 57 and aunt dx last year aged 70.

Told Gp family history and got an urgent referal thank god, 12mm invasive ductal carcenoma, high grade, grade 2 with 3/20 lymph nodes affected. WLE & SNB then ANC clearance, just started chemo but having genetic testing when its finished as I have 2 sisters, 2 daughters (aged 22 & 13) and 2 grandaughters.

Screening should start at a much younger age

Tracey x

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Re: You're Rather Young For That...How Old Were You?

HI ALL,
It is soo infuriating to be dismissed by the medical profession!
I was 41, no family history, then, but due to my diagnosis mum went for a mammo at 66, then screening stopped at 65, she had no lump to be felt but 2 areas, 1 dcis another grade 3, needed chemo and herceptin like me, but im also on aromisin after oophrectomy..........

But i strongly believe stress has a big contributary factor, ok we might have a prediposition to cancer but extreme stress can trigger it,

Jill

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Re: You're Rather Young For That...How Old Were You?

i was 30 when first dx , now i am 49.
reneexx

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Re: You're Rather Young For That...How Old Were You?

Hi,
I was 41 when I found lump, GP dismissed it until refering me aged 43.....[and that was only because I was persistent ]...Aunt dx aged 50...she was dx with sec's 12 yrs later and died last year aged 68.

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Re: You're Rather Young For That...How Old Were You?

Hi Ruby

I was 41. The issue of age is important when it comes to educating our daughters and their friends to be breast aware in their 20s.

Wizz

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Re: You're Rather Young For That...How Old Were You?

Hi

I had just turned 28 when i was diagnosed but found the lump three months earlier. I certainly had no idea that i could get breast cancer in my 20s and would have seen my GP much sooner if i'd known. I dont have BRCA1 or 2 but my cancer is strongly hormone positive.

Heather.x

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Re: You're Rather Young For That...How Old Were You?

Hi everyone,
I'd just turned 40 when diagnosed. last year...whoever said 'life bgins at 40'!! No family history of any cancer.
I didn't have children until mid thirties.
I work as a nail technician and suppose i breathe in quite a lot of chemicals each day. Could there be any connection?
Paula xx

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Re: You're Rather Young For That...How Old Were You?

Hi

I was 28 when had tests etc (mamogram on birthday) but 29 at actual diagnosis. No family history either. Thankfully doc took me seriously and referred me as non urgent but it only took 10 days to get appt. Felt like a cyst, consultant considered leaving it for 6 weeks but decided to do biospsy etc.

Em x

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Re: You're Rather Young For That...How Old Were You?

Hi all, I was diagnosed at 39 - referred as non urgent, despite me knowing (instinct) otherwise.
Hi Tedoris - yes, I worked nights and shifts for 20 years before my diagnsis.
Also worked in an A/E dept where 9 of us (out of 40) were diagnosed (3 with other cancers. The link? We all developed cancer approx 4 -10 years after working in the department when it was going through a revamp . During this time, portable xrays would be done (in our confined workspace) and we had no lead protection - the air was full of radiation I guess, as I believe that it disperses into the air with use of a horizontal beam.
Who knows? sadly, 5 of us have died, 4 still going....

XXX

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Re: You're Rather Young For That...How Old Were You?

I was 33 with no family history.
Jox

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Re: You're Rather Young For That...How Old Were You?

I was 29, although looking back at the symptoms it may have been there for a while without me knowing. No family history.

It is frightening to think that had I not just come accross 1 of the lumps by pure chance (had an itch on my chest and felt it when I scratched!) then who knows how long I would have lasted. Very morbid I know, but it does go through my head.

Paula xx

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Re: You're Rather Young For That...How Old Were You?

Hi, this is the first time i have written on this, i was 45 when i found out that i had breast cancer, i thought i was young till i met up with ladies alot younger than me and having to go through all the treatment and look after a young family - it was a real eye opener for me.

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Re: You're Rather Young For That...How Old Were You?

im 44 and think its very sad that no screening is done until you reach 50 there should be no age limit on your life xxx

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Re: You're Rather Young For That...How Old Were You?

Hi,

I was diagnosed after my first routine mammogram at 50, no symptoms and no family history. I'm finding it shocking at just how many young people there are diagnosed with BC. This is definitely NOT an old person's disease!

Val

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Re: You're Rather Young For That...How Old Were You?

Hi

aged 30, found lump myself and dismissed by two GP's!

carly x

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Re: You're Rather Young For That...How Old Were You?

I was 41 when diagnosed with bc. I went to my GP with a tender slightly thickened area in my breast that I found on self examination. Thankfully she refers all ladies who come to her with breast problems just to be on the safe side. Neither she or the consultant initially thought it was anything too serious - I was eventually dx with Stage 2, grade 3, triple neg breast cancer.

I was 20 when I had my first cancer, not bc, I had a sarcoma that luckily (!) was isolated - they thought at first that this was just a cyst.

Sil

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Re: You're Rather Young For That...How Old Were You?

I was 45 and thankfully the GP I saw told me she had to refer me for a mammo, but it would take about 6 weeks to get an appointment. However, as it was July loads of people were away on holiday and I had an appointment 10 days later. Sadly, I wasn't diagnosed until October as all my results came back clear, the surgeons found it when I was having the fibroid I'd been diagnosed with removed. I've often wondered if that couple of months made a difference as it was in one lymph node, but the surgeon said no.

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Re: You're Rather Young For That...How Old Were You?

first diagnosed at 37

diagnosed again with a new primary in the opposite breast at 40.

mum had bc at 57 and her granny in her 50s

im a brca 2 carrier but didnt get it from my mum she was negative

the mutation comes from my dad and i am the only person in our family to have had BC..... and there is only one case of ovarian ca in a second cousin of my dads who died at 45.

the other cancers are throat, oesophageal, stomach and rectal (mouth to bottom) but im doing more investigating to see if anything else comes out the wood work.

Lx

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Re: You're Rather Young For That...How Old Were You?

My cancer was picked up when I put myself into the NHS screening system at age 50. However,I had been going to my GPs since I was age 47 with symptoms which I was told not to worry about. My cancer would have been present at age 47 as told to me by my consultant. Many cancers take up to 10 years to manifest themselves. I would like to see screening start at a much earlier age. Screening may well have saved me from having a stage 3b breast cancer. If not earlier screening then better GP training. I have been trying for four years for this but it's a very difficult issue and campaign groups don't seem to want to know about the problem.

Jeannie

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Re: You're Rather Young For That...How Old Were You?

Ladies - this feedback is great in terms of getting this information together and seeing how many of us there are - it's just horrific that there are so many of us.

Ann - I've updated my post now - thanks for pointing out my omission.

Thank you everybody for all your input and also for any links that were posted, just getting round to reading everything and I'll definitely be following this up and feeding it to various bodies and people and let you know what sort of response I get.

I'm so determined to make women/men more aware of the signs and symptoms of breast cancer, and even more so for the medical profession and especially GPs to be better educated in spotting these too. As I said or may have said, there are too many women being told it's nothing to worry about - this just happened to a friend of mine recently - nobody thought hers was breast cancer and it was! Luckily she pushed to get it checked and it was followed up hence an early diagnosis but sadly this isn't always the case as I've witnessed.

Please keep the feedback coming.

Ruby xx

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Re: You're Rather Young For That...How Old Were You?

I was 51. Picked up at first routine mammogram so it quite likely would have been found at under 50 if I had been screened then.

Inconclusive and complex family history but just found out that I don't have a BRCA 1 or 2 mutation.

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Re: You're Rather Young For That...How Old Were You?

38yrs at diagnosis. No family history.

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Re: You're Rather Young For That...How Old Were You?

Hi
44 at diagnosis and no family history x

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Re: You're Rather Young For That...How Old Were You?

My daughter was 32 and a distant cousin on her father's side was also 32 and diagnosed in the same year.
My school friend's daughter was 34- she died last year aged 37

I also know 2 other women in their early 40s (one of these has also died).

I was diagnosed at 65- no previous history in our family before my daughter and no genetic link found. I'm 2 years post diagnosis.

My daughter had a 2nd cancer in her other breast but is OK, 8 years from the first diagnosis and 3 years from the second- we say our prayers.

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Re: You're Rather Young For That...How Old Were You?

Hello!
I was 47. I think my large tumor had been brewing for some time. R.x

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Re: You're Rather Young For That...How Old Were You?

Ruby - Did I miss it somewhere or did you not say how old you were at dx?

I was 55 and my Mum 76, btw.

Ann x

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Re: You're Rather Young For That...How Old Were You?

Hi Everyone
Aged 38 with no family history!

I have found link with night shifts very interesting as have worked shift all my life!

Are more women working nights?????

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Re: You're Rather Young For That...How Old Were You?

I was 46 my mum was 42.

I'm sick of GPs making stupid remarks like this. We're not stupid. No longer are they the keepers of medical knowledge. We can Google. We can get the statistics.
If our cancer is well advanced when it is found we are made to feel it's our fault as we 'didn't present early enough'. What exactly are we supposed to do to be taken seriously?

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Re: You're Rather Young For That...How Old Were You?

Hi everyone

Found lump myself. Age 54, no family history of breast cancer or any other cancer. I have 3 older sisters.

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Re: You're Rather Young For That...How Old Were You?

Hi

I was 37 when first dx in 2003.

Alison x

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Re: You're Rather Young For That...How Old Were You?

Hi, I went to dr with lump at 36 yrs old was dismissed as not cancer, eventually same lump dx at 40 when I moved .