Thank you for listening to us......I just hope it is not going to be an age before the one that gets chosen actually gets commissioned!!
Thank you for listening to us and for the choice of pins - this is good news.
I would like to ask though, how many people with sbc are represented in the Breast Cancer Voices group?
The reason I'm asking is that primary ladies rarely want to think about the possibility of death from breast cancer and might opt for the pin that, to me, least represents the realities of sbc.
Are the differing views from sbc ladies or primary? I feel this is one area where the views of secondary ladies should come first. This pin was supposed to be for those with secondary bc and to raise awareness of the realities that go with it. The black was to honour all those ladies and men who have gone before us hidden and unheard.
Dear AllI am really happy to let you know that a new ribbon is being commissioned to be dedicated to and representing secondary breast cancer. As you can see there are 5 choices of design for you to choose from. Please watch this space as tomorrow there will be a link through to vote for your favourite. We will then also be consulting with Breast Cancer Voices and asking them to vote as well. Of the five designs, four have a black thread within or part of the ribbon. We have received differing feedback on black being incorporated in to the ribbon and so the other one does not have black. Do have a look and please do vote from tomorrow onwards. We will then commission the most popular ribbon and produce a new pin badge.Thank you all for your passion and determination.Best wishesAnnaForum Coordinator
I am so sorry to hear this, you are in my thoughts.
Helen, I was thinking the same thing.
BCC - You know the pink pin you supply for us.
Producer - Yes
BCC - Can you put a black edging on it?
Producer - Of course we can - no problem. It'll take 3-4 weeks. How many would you like?
Oh Mrs Blue - I'm so very sorry to read this. My love to you and your family.
We will keep pressing on with sbc awareness with your candle in our hearts and a pin on our lapels. x
Speaking as someone who ran marketing depts for large organisations, including in the not-for-profit sector, I am amazed at how onerous you are making this. Another pin, already using existing tooling, is not another project, only an addendum to an existing one. Hardly any work and minimal costs for large profits. A no Brainer. And then there is the inestimable reward of hearts and minds. It is damaging to your reputation to raise hopes only to dash them. Please remember we secondary ladies would be promoting sales to bring money to you. Terminal disease needs action not hindered by bureaucracy. Merchandise is such an easy marketing activity to which you seem to have applied a sledgehammer. It appears organisational processes require urgent review. Regards Bumpkin
I am sorry you are feeling disappointed and let down with regards the pin. The gift shop will be marketing a new butterfly pin this summer, as per their marketing plan, and felt it would be an idea to dedicate it to secondary breast cancer. With this in mind they opted to consult with you, the forum users, to choose which you felt most appropriate. There was an overwhelming majority that considered the butterfly not to be an appropriate dedication for secondary breast cancer and that a new or different pin would be better. Listening to your feedback and respecting the views of the majority the butterfly pin will not be used as a dedication to secondary breast cancer and this new thread was started for you as a group to discuss different pin/badge options and ideas.
We are still listening to what you want and really want to help and support you with this, but this is now a new and different project and as such will need to go through organisational processes. Listening to your views is the first step of this process; we also have other people affected by secondary breast cancer that we will include in this consultation, for instance Breast Cancer Voices . As this pin/badge will be a new addition to Breast Cancer Care, costing and feasibility will need to be established. Designs agreed and improved, budget allocated and prototypes commissioned. This unfortunately takes time and I hear the understandable groans as I say this.
At this moment I do not have a timeline and I am so very sorry for that. Metastatic breast cancer is not secondary in importance it is very much equal to all the other areas of breast cancer we support.
With best wishes
For want of a decision the ribbon was lost.
For want of a ribbon the campaign was lost.
For want of a campaign the message was lost.
Thank you again for all your responses. This thread has definitely been used for its intention of discussing a symbol or emblem to identify secondary breast cancer as a cause in its own right. I have read the responses to my post this morning and I can hear the frustration already. Breast Cancer Care is an organisation which does have processes to follow and people to answer to. The stage we are in at the moment is talking to people who have secondary breast cancer, of which you are an important part of. We will also consult with others who have secondary breast cancer but do not use the forums.
I understand that you want concrete answers and dates but sadly that is not something I am able to give you as I simply don’t have them. I do assure you though that this is not something I want to allow to fade away and promise to keep you posted and updated as it moves along. I also know, because you have told me, that time is of an essence and I understand the fear that you won’t be here to see the end result.
You are all an important part of this process, we started with you! And I thank you for your continued engagement with this and I will do my best to keep you all informed of the progress we are making.
I second that Helen, unfortunately time is not on our side we need to get the message out and make women aware of this dreadful, ugly disease!!!
Your positive responses to this thread have been amazing and very informative to read. We are sharing all the responses with various departments within Breast Cancer Care. As yet we do not have a timeline established and this is a first step in user input regarding the new pin badge. We will be engaging with other people who have or are affected by secondary breast cancer for their thoughts as well. I fully understand that now you are seeing some movement forward you are eager to see that movement take on speed. There are processes which we need to follow and we will keep you posted as to how it is all going.
Thank you all once again for your continued support of each other and Breast Cancer Care.
Thanks ladies. Wishing you all NED and looking forward to getting the pin to raise awareness.
Flori that's great news! So very pleased for you, it does us good hearing positive stories too.
Looking forward to hearing more news about the pin.
Hi JulieD - No, I don't find your comments upsetting or offensive. As far as I'm concerned if it's incurable it's no different to secondary cancer. I do use the secondary sections now and have found it really helpful, though I haven't been on the Forum much over recent months. I've received a lot of support for which I'm very grateful. There are a few of us who have skin mets and so someone set up a thread specific to it, which is really useful. On a very positive note, I just found out yesterday that, following a good response to Gem Carbo chemo, I'm now NED!
I have brought this thread to the attention of our managers, and will get back to you as soon as we are able to.