Vickyb, I still feel overwhelmed by it all still now, we go through so much has and then we have all this to contend with after the chemo/radio has finished. The aches were eased when I switched from Tamoxifen to Zoladex, but it may have been the long term side effects of chemo settling. Don't push yourself, listen to your body.
Crikey, Chez666, that sounds like more adverse side effects from taking them in the evening! I have noticed less beardiness from Zoladex than Tamoxifen. I hope it all settles down for you. I do feel sort of stunned at the side effects I have been left with after this treatment.
Hi vickib, pleased to (virtually!) meet you. I haven't noticed any difference in the side effects by adding Exemestane in, except maybe my flushes are less severe, but that may be the swap from Tamoxifen to Zoladex. I think putting weight on is completely understandable given the changes you have had to make. Are you on Herceptin too?
Hope it is Ok to join this conversation. I am also using both exemestane and zoladex, and have 2 more weeks left of 4 1/2 weeks of radiotherapy. I seem to be having very similiar side effects. Does it make any difference to what time you take the exemestane to the side effects you get? 🙂
Oh, you are definitely not a wuss. These hormone treatments do funny things to us! I am hot, then boiling hot, then freezing cold....
Chez666, that is so wierd, I had my second last Thursday and it was way more painful than the first was too! And it was niggling me all evening too. I have been so hot since though, I am digging my summer clothes out. X
Thanks for the tonic tips, Gilly, I will try that one. And it's reassuring to know the chem brain will improve too, it's been particularly bad today. I'm glad you are on the mend. x x
I notice you girls mid treatment are talking about your brain ---- its had a lot to deal with so please be kind to it....
Following Chemo it was like baby brain and my Husband and Son who know a lot about communicating with Dementia patients wouldn't find the words for me or help me out..... Rats
I am two years this week from last Chemo and had reconstruction since then. Trust me girls that fuddled brain will get better. I used to have a note book and wrote everything down, particularly during appointments and anything important, it was really helpful. Still got it tucked away but i don't use it anymore.
Good Luck with the rest of your treatment. Gilly x
On the Tonic Water. Fever Tree Tonic (usually got to go to Waitrose or Sainsbury's) is a bit of a luxury but contains natural quinine rather than manufactured. With lemon and ice you can kid yourself it's got Gin in there. Its a really refreshing drink and it does help with the cramps / pains.
Take Care Gilly x
Ha, I too would like a functioning brain! Ah, I see, I might give quinine a go. I do feel more achy today. It's a good point about making choices yourself, we really just do as we are told. The SOFT trial looked at premenapausal woman and how ovarian suppression alongside hormone treatment plus or minus Exemestane might affect survival if they were still premenapausal after chemo or didn't have it. If you Google it, it will come up. I think, as set of patients, we women with breast cancer are probably the best informed about our disease and treatment.
Crikey, you had a stroke too?! That's awful 😞 I can understand why you didn't have chemo. What's the thinking behind the tonic water etc? I had a mastectomy, then FEC-T then Herceptin which I had to stop as my heart has been affected. I had Tamoxifen for 9 months, but alot of side effects, so my Dr knew about the SOFT trial and switched me to Zoladex and Exemestane. Like you, I'm hoping to have my ovaries whipped out!
Hi Chez666, thank you for taking the time to reply. I don't want to tempt fate either but I am pretty happy so far...... That's interesting that they said a year, I am hoping for the same thing. My first injection was painless but yesterday's hurt! Let's see how we go over the next months. Can I ask how old you are and if you had the chemo?
I have just been switched from Tamoxifen to monthly Zoladex and Exemestane with a view to removing my ovaries in a few months.... I am looking for other people's experiences of this combination, side effects, length of time, before they settle, etc. Can any ladies let me know how they find this treatment? I have had a mastectomy, FEC-T and Herceptin which I was unable to finish due to my ejection fraction falling. Many thanks in advance. 🙂