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anastrazole and nausea

22 REPLIES 22
MrsGoggins
Member

Re: anastrazole and nausea

Hi Francine

Sorry it has taken me a while to catch up with your lovely reply.  I seem to have less and less time to dwell on anything these days as we are so busy.  How strange that your OH has had similar events to mine.  I also had a stent fitted which immediately remedied the situation.  What I found reassuring about the process was that I was awake and could watch it all on a double screened monitor so you see the 'before' and 'after' which is so blooming reassuring when something has gone so fundamentally wonky inside.  I am now due to start rads on Tuesday next week and one of our staff has decided to resign - so this week I have upped my time in 'front of house' to 7 hours today....I am so so tired and sore, my poor boobies dont like me pushing and pulling so much by I am sure they will survive!  I have been interviewing this week and have found what I think is a great person who will start this weekend and be eased in over the same weeks I have rads! Great for diversion from thinking about me... We also sold our house to fund this business but at least we do have bricks and mortar and whole shop of food it things go tits up - pardon the pun.

It sounds as if you have had a whole belly full of stuff to contend with and yes it is not surprising that your BP has protested. My OH has been experiencing the same and has recently been diagnosed as diabetic...the getting older malarky is not all it is cracked up to be!

Hope your ops have gone well and that you are on the mend again....

I sometimes resent not having time to think about what I am going through but then I give myself a shake and realise how jolly lucky I am compared to others who are having so much more invasive treatment than I am. And I do feel a sense of liberation having our own business as when I was ill before I was employed in health care ( I was a senior manager in mental health) Following my two events we sat on the beach for three months drinking wine considering what direction our life should take and that is where the shop came in......didnt factor in another illness, silly me!

We have had glorious weather this week and have been able to shut the door at 6 and go sit on the beach with a beer so we have much to be thankful for. (I still feel like ranting at times too and its healthy and yours certainly was not depressing)

We have much to be thankful for too with supportive OH's, mine is a marvel.

Take care and keep in touch.

Katie

x

 

Fuffs123
Member

Re: anastrazole and nausea

Hi Katie

What an awful time you've had, poor thing. You must be incredibly strong to have gone through all that and still be working in the shop, even in the back room. Strangely enough my OH nearly died from pancreatitis, due to a gall stone blocking his bile duct and then last year he had a heart attack (not as serious as yours but had a stent fitted) He had to take early retirement so we now rely heavily on my business income to pay the bills. I supply water testing kits to the healthcare sector and rather inconveniently, lol, it has grown hugely in the last year. Had a minor op on my ear today and my blood pressure was so high they nearly didn't do it. This puts my 2nd WLE due on Wednesday under threat. I've no doubt that my OH's health problems, having to move house and keep the business going whilst having BC treatment the same time has caused this. Who wouldn't have high blood pressure with all that going on?! Feeling so conflicted as I would really like to step away from the business for a bit to heal myself but we need the money to live on and I can't afford to take someone on. We sold our house to fund my business so would feel so guilty if I shut it down. My OH was very supportive of that decision so would never blame me but it doesn't help my feelings. Sorry, depressing rant over! X Francine
MrsGoggins
Member

Re: anastrazole and nausea

Hi Fuffs

Thank you for taking the time to 'join in'! I recall my first reaction to starting on this journey was all about our business and nothing about me or my mortality. I have had an interesting two years healthwise and thought I had cracked it all when this gremlin crept in by the back door! I had bilateral therapeutic mammoplasty for a 11mm Grade 3 mixed ductal/lobular tumour and clear nodes. 

I firstly had a heart attack, out of the blue and a very serious event at that which apparently should/could have killed me.  Then a few weeks later had a gall stone stuck in my bile duct which caused an infection that took weeks to get under control.  These two events have led my oncologist to be very relieved that I have declined chemo as the risks of reactions to it in my case seriously outweigh the potential benefits.  My oncologist also said he would support me in having the Oncotype DX test if I wanted but I dont want to hear that I would be one of the minority who would benefit from chemo as then the decision would be so painful in what to do.  There is utterly no way I could function in our shop whilst undergoing chemo. Already I have been missed this past two months as have put myself on back room duties to get my head around my situation.  I have only just started to disclose to anyone that I am undergoing treatment and hate to see peoples reaction as they are so upset.  It takes quite a bit of energy to support others and emotional energy that at times I feel I dont have.  

Have you been able to sustain your business whilst undergoing your journey?  

Warm wishes and thank you for stopping by to comment.

Katie

x

Fuffs123
Member

Re: anastrazole and nausea

Hi MrsGoggins

Hope you don't mind me joining in! I will be taking Anastrazole after my rads, once I can get going with them. I having a 2nd WLE ON Wednesday and they didn't get a clear margin last time. Hopefully, this will be the last one and I can start the rads when healed again. My onc didn't seem very bothered as to whether I started the Anastrazole before or after the rads so I've decided to wait. I have Grade 3 invasive and DCIS but no node involvement so am not having chemo, thank goodness. I also run my own business and like to try and plan as much as possible. The last couple of months have been very hard keeping it all going and I think it's going to be harder when i have rads. My hospital is a goodly distance away and a nightmare to park at. Have drafted in my OH to help in the business (good job he's retired) but he can't do it as well as me, lol. Yep, i'm a bit of a control freak😄. Take care x
MrsGoggins
Member

Re: anastrazole and nausea

Hi all

Thank you all for your thoughts and advice.  You are right I should speak to a BC nurse, I kind of keep forgetting I have one! She is phoning me this week as has been on holiday so will make a list of all my questions.

Re keeping a diary, this is a brilliant idea and I have already sourced and started a 'line a day' 5 year diary simply so that I can look back on all this experience at the end of my treatment and see how far I have come.

I have now picked up my prescription for Anastrazole and it is Accord brand, knowing there are possible different reactions to brands rather than the drug is hugely helpful as this means that even if we have side effects there is scope to rejig with my friendly pharmacist!

Now just need to get to the rads planning meeting on Tuesday and see what next timescale is....

I do sometimes wish I could be less planning mad but we have a very busy village shop, hence Mrs Goggins, and our lives are dictated by a 7 day routine and the past two months has completely put a spanner in the works but getting back on track.

Happy thoughts to you all

x

Erinna
Member

Re: anastrazole and nausea

Hello Maryland thank you so much for your reply. I am on TEVA as well.I am going to buythe ginger root capsules be worth trying, and I am going to take my tablet at bedtime see how that goes. love Erinna

Mags60
Member

Re: anastrazole and nausea

Makes sense to me!

Mags60
Member

Re: anastrazole and nausea

Thanks for this Maryland... It's really good to know. I'm feeling better now taking in the evening too. Glad you popped up to share your experience. Anti travel sickness band sounds like a good idea too. Also that you are informed re change in Anastrole brand. Different people have different coping mechanisms and it's so good to talk and learn from each other. Thanks again

Maryland
Member

Re: anastrazole and nausea

Hi.....Erinna - you could try taking ginger root capsules from health food shop or wearing an anti travel sickness band which might help. Taking it in the evening works well for me. As others have said, the different brands tend to cause different side effects for different people. I tolerate TEVA quite well (on it for nearly 3 years) and ACCORD very much less so (had it for two months - horrendous for me!). Trial and error...good luck 🙂

MrsGoggins......I started taking Anastrozole 2 weeks post RT as recommended by my Onc to give my battered body a break! Would certainly concur that dealing with all things bc as they occur is a pretty good plan. Found it helpful to keep notes in a diary throughout treatment three years ago, which was useful when Anastrozole brand changed. Couldn't believe the different brand could have such an impact. Seem to remember pharmacist said active ingredient is miniscule...it's what they pack it out with that causes the side effects...one step at a time 🙂

MrsGoggins
Member

Re: anastrazole and nausea

Hi Mags

Thank you for your response. I am trying to be very positive as that is generally my personality. I think my 'problem' is that I try to have a contingency plan for every eventuality which helps me feel in control so forward planning is important to me. I am learning that I probably need to 'let go' a little and just deal with things when they come up or indeed celebrate when they dont!

Katie

x

Erinna
Member

Re: anastrazole and nausea

Yes thank you so much for your advice it means a lot. Mrs Goggins perhaps talking to one of the breast care nurses would help. I spoke to one on Thursday and she was so kind to me. It is difficult to know what to do.

Mags60
Member

Re: anastrazole and nausea

In a sense yes but I had reflux and oesophagites post mastectomy and chemo... so it's hard to determine. All I know is it helped.... but that was just me. I don't take it now but I do occasionally feel sick depending on what I eat. I feel for you but I'm sure you will find your way through this. You've had a lot of responses so hopefully you will be able to glean something from the answers that may help you. Just proves the problem is not unique to you. I agree the side effects of tabs are worse early on... so I hope things improve for you soon.

Mags60
Member

Re: anastrazole and nausea

Mrs Goggins... Don't dwell on possible side effects deal with them as and if they happen....positive thinking is powerful if you are determined. I'm 3 years into Anastrozole and think it's got easier over time either that or I've become conditioned to side the effects. I've never considered not taking them. I had chemo but no rads so started Anastrozole immediately... So can't really answer.

MrsGoggins
Member

Re: anastrazole and nausea

Hi Erinna

Thank you for your thoughts! Always much appreciated to hear what others have done. We seem to be faced with so many blooming decisions about somethings we know not a lot about....I hope that I will have my rads planning meeting this week but not expecting to start until beginning of May as I am only two weeks post op....I guess waiting to start a drug that you take for 5 years is likely neither here nor there but as I chose not to (to the onc's relief) have chemo due to already having a dicky ticker and inability to cope well with infections I just want to do what I can to ensure I have given myself the best I can.

BW

Katie

x

Erinna
Member

Re: anastrazole and nausea

Hi MrsGoggins I took mine right away as I had to wait a couple of months for rads. It wasn't suggested waiting until after the rads. I noticed another poster on the Macmillan site was told by her oncologist to wait until the rads were completed. As the side effects of tablets are supposed to be worse at the beginning might not be a bad idea to hold off. My rads treatment was for 3 weeks, waiting that long to start doesn't seem too long to delay. Love Erinna

MrsGoggins
Member

Re: anastrazole and nausea

Hi All

I have just been prescribed Anastrazole and about to start rads in the next couple of weeks. Does anyone have any opinon about time of starting Anastrazole as Consultant said to start 'when I liked' which I took to mean this week when I have the drugs in my sticky mitt? I am trying not to read too much about side effects as I know how we can (well I can anyway) think ourselves into sensing all kinds of bodily changes. But if the rads are likely to cause nausea and fatigue and maybe Anastrozole does too should one wait and separate the treatments or just 'get on with it' and eat shed loads of ginger biscuits (my favourite and I have a shop which sells a whole range of the gorgeous little things).....

Any suggestions welcome.

Happy Easter

Katie

x

Erinna
Member

Re: anastrazole and nausea

Thank you Mags, it has affected my memory too! Sometimes I go up the stairs and by the time I get to the top I have forgotten why I came up! Will check the Mcmillan site. May I ask, were you prescribed the omeprazole just for problems caused by the anastrozole? Thank you again, love Erinna

Mags60
Member

Re: anastrazole and nausea

Erinna This drug has affected my memory I knew I had read stuff about different brands of Anastrozole. I just checked on the My Macmillan site and there is a thread by someone called Dreamtheif about cheaper brands on the market. You made find this helpful... its interesting nonetheless and something to watch out for.

Erinna
Member

Re: anastrazole and nausea

Hi Mags thank you for your reply I am definately going to try the ginger. Love Erinna

Mags60
Member

Re: anastrazole and nausea

Hi, my GP prescribed Omeprazole for nausea & reflux. Yes ginger tea helped me too or fresh ginger infused in hot water. Porridge in the morning helps as it lines the stomach and Quaker make individual microwave packets. I always eat little and often and also have ginger biscuits handy. I also started taking Anastrozole at night and this seems to have lessened side effects during the day. I also believe that there are different brands of Anastrozole so that might be worth investigating too.

Erinna
Member

Re: anastrozole and nausea

Hello Rosemaryanne thank you so much for your reply. You have described my diet too! I hope the sickness wears off a bit as time goes on, I am too afraid to stop taking it. Love Erinna

Rosemaryanne
Member

Re: anastrazole and nausea

Hi

I find I'm feeling, not being, sick on Tamoxifen. Nibbling ginger biscuits seems to help, and I make sure I never get hungry cos then it's overwhelming to the point of feeling faint. Bland stuff like boiled eggs and bread and butter, bananas and yogurt are my staples. 

It's awful isn't it?

Love, Rose

Erinna
Member

anastrazole and nausea

Hello I am currently on Anastrazole 1mg and experiencing terrible nausea. I was on Tamoxifen but changed as I was being sick all the time on that. I would be grateful if anyone could recommend anything they have taken which has eased the nausea. Thank you.